In answer to gracechicks questions. Basically it has been a very long hard road probably like the rest of you.
First, I saw an ad in the local newpaper looking for people who thought they had SAD or have been dx with it. Living in Seattle, a lot of people have at least some symptoms of SAD, but I always knew mine was worse as I was barely able to function in fall and winter. The research was done through the UofW. The research was a double blind placebo using "fake" or "real" light boxes. The doctor nor the participant knew whether or not the participant was on the "placebo" or real thing. The "carrot" was that at the end of the 8 week research study, you got a free light box...every person's dream who suffers from SAD as these light boxes were the top of the line

To see if I was eligible, I was given a pretty in-depth screener and then was approved for the study.
For the study, I was required to wake up at 5:00 am every morning. I had a dawn simulator that was supposed to wake me up. Then I had to sit in front of a light box for 30 minutes (I think - it was 10 years ago). I only lasted for 2 weeks until my grades started to fall drastically and I became extremely depressed - very untypical of my usual just extremely tired behavior (probably moderately depressed but didn't feel really sad - possibly subconcious??) . This study was conducted in the middle of serious SAD time - winter time. The doctor encouraged me to continue because "if" my light box was placebo, then my data would have been extremely helpful to add to their study as I was HORRIBLE! I felt so bad but I had no choice but to break the study. I told the doctor that I was CERTAIN that the lightbox I had was a placebo based on the way I was feeling. At that moment, he checked because he didn't know either...sure enough, a placebo light - strange that there is actually a placebo light. He was so disappointed and to this day I will never forget the look on his face when he found out as my data was so good for further research into SAD. He told me during that time that I was on the severe end of the spectrum.
I moved to WA DC for grad. school (SAD still there). I was tested for ADHD... I always had the symptoms but never thought to get tested. I was initially tested by a Clinical Psychologist on my campus. I was given a few neurological assessments that tested my impulse control using computerized instruments...it was good. I was also given a few other tests. I am a school psychologist now and the testing that they used was very different compared to what we give - definitely more thorough. I saw a psychiatrist who read over my report, took my background history, listened to what happened at the U of W SAD research study and thought I had the symptoms related to mild bipolar II (of course I didn't believe Bipolar at the time). He also suspected mild OCD as well (obsessive thoughts - not the typical compulsions). He gave me Depokote which made me more depressed and put me too sleep. He then said I wasn't bipolar based on my interaction with this one drug.
For the next 8 years, I was still on this roller coaster ride between severe anxiety to extreme fatigue in addition to ADD. The last five years I live in AZ (not counting last year where I lived in OH). In AZ, I was more stable due to the sun...but strangly enough I did still cycle...mildly I guess.
My last year in AZ, I decided to call a sleep specialist and get me tested. My first sleep specialist was a physician who was more of a pulmonary specialist, not a neurologist (pulmonary sleep specialists are important due to sleep apnea and other disorders that could cause sleep problems - my narrowed understanding). I was hooked up to electrodes and was tested over night and during the day. The testing was examined and discovered that my body hardly had any stage three or four sleep (I think it's right before REM). It was described to me that that was the probable reason why I had fibromylgia symptoms because your physical body (I don't know about brain), basically repairs it self during this stage. I also had at least 150 sleep arousal during the night which meant my body suddenly woke up - I didn't know it but it was seen in my brain wave activity. I had another sleep test in OH and it showed very different results. I did have the same amount of sleep arousals but had absolutely NO stage three or four sleep. It also showed I had no REM sleep whereas the other test showed I had too much (which I heard could be a symptom of Narcolepsy - going from stage one to stage four sleep too quickly). Again, I am NO expert so take what I say lightly until you do the research. Both, however, agreed that I had cycles and that my fibromylgia symptoms, anxiety, ADD symptoms and cycles may be related, at least slightly, to my sleep problems. The sleep specialist in OH was a neurologist who had additional training in sleep disorders. He stated that if you have similar problems that I had, it's better to go to a neurologist than a pulmonary specialist as he is better able to tease out other problems.
I was seeing a psychiatrist at the time and they worked extremely close together. The information they both gathered was very beneficial to helping me....the problem...I was a difficult case and they both agreed. The psychiatrist now had a backup and physical proof...my brainwave activity during sleep. The Lamictal has worked wonders although I still can't fall asleep very well at night.
In AZ, there was also a place that hooked you up to electrodes (basically they were glued on your head - not dangerous), and had you do various cognitive tasks. By doing this, they are able to see which areas light up. According to them, they could tell by the areas that light up if it's depression, anxiety, ADHD....I am still confused at how you can tell depression looking at what is being tapped into during a cognitive test...seems confusing. So, there are various tests that can be done now. The "physical proof" is so hard to proof, but I believe a sleep assessment could show something which would armor you with the actual proof you need. If you see a neurologist who specializes in sleep disorders, at least they can look at your brain wave activity. I am sure there is other things that can be done: the tricky part is finding the right neurologist.
I wonder if there is anyway to get proof regarding OCD. I could be completely wrong here, again, but I remember that OCD is actually in your hypocampus (maybe...correct me someone, please), and your brain literally gets caught in a loop making it close to impossible to get out of that cycle of thinking. I maybe thinking of bipolar instead.
Some doctors do actually listen. If any of your are experiencing somatic symptoms (physcial complaints), you never know. The phsycial symptoms may vey well be related to sleep. Although, I know it maybe related to other things as well. There are many variables.
Neuropsychologists can do very indepth testing....they can also refer you to someone who specializes in an area that they may not have enough knowledge in. Usually neurologist in university settings are good from my experience. Anyways, God bless and I hope that we all get answers soon! I am so happy that I am able to have the proof that my pain has a cause!!! I don't feel as crazy anymore.