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What is your relation to autism/aspergers?

What is your relation to autism/aspergers?

  • I'm autistic

  • My spouse is autistic

  • My child is autistic

  • My relative is autistic

  • I know someone autistic


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midnightbirdgirl

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pumanator said:
Itsgood posted in one of my posts and it brought me here to try to understand something new. If one of you would give the short version of Aspergers and what you deal with I would be greatly interested. .

This is as short as it gets:
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What Is Asperger Syndrome?

By Barbara L. Kirby
Founder of the OASIS Web site (www.aspergersyndrome.org)
Co-author of THE OASIS GUIDE TO ASPERGER SYNDROME (Crown, 2001, Revised 2005)


Asperger Syndrome or (Asperger's Disorder) is a neurobiological disorder named for a Viennese physician, Hans Asperger, who in 1944 published a paper which described a pattern of behaviors in several young boys who had normal intelligence and language development, but who also exhibited autistic-like behaviors and marked deficiencies in social and communication skills. In spite of the publication of his paper in the 1940's, it wasn't until 1994 that Asperger Syndrome was added to the DSM IV and only in the past few years has AS been recognized by professionals and parents.

Individuals with AS can exhibit a variety of characteristics and the disorder can range from mild to severe. Persons with AS show marked deficiencies in social skills, have difficulties with transitions or changes and prefer sameness. They often have obsessive routines and may be preoccupied with a particular subject of interest. They have a great deal of difficulty reading nonverbal cues (body language) and very often the individual with AS has difficulty determining proper body space. Often overly sensitive to sounds, tastes, smells, and sights, the person with AS may prefer soft clothing, certain foods, and be bothered by sounds or lights no one else seems to hear or see. It's important to remember that the person with AS perceives the world very differently. Therefore, many behaviors that seem odd or unusual are due to those neurological differences and not the result of intentional rudeness or bad behavior, and most certainly not the result of "improper parenting".

By definition, those with AS have a normal IQ and many individuals (although not all), exhibit exceptional skill or talent in a specific area. Because of their high degree of functionality and their naiveté, those with AS are often viewed as eccentric or odd and can easily become victims of teasing and bullying. While language development seems, on the surface, normal, individuals with AS often have deficits in pragmatics and prosody. Vocabularies may be extraordinarily rich and some children sound like "little professors." However, persons with AS can be extremely literal and have difficulty using language in a social context.

At this time there is a great deal of debate as to exactly where AS fits. It is presently described as an autism spectrum disorder and Uta Frith, in her book AUTISM AND ASPERGER'S SYNDROME, described AS individuals as "having a dash of Autism". Some professionals feel that AS is the same as High Functioning Autism, while others feel that it is better described as a Nonverbal Learning Disability. AS shares many of the characteristics of PDD-NOS (Pervasive Developmental Disorder; Not otherwise specified), HFA, and NLD and because it was virtually unknown until a few years ago, many individuals either received an incorrect diagnosis or remained undiagnosed. For example, it is not at all uncommon for a child who was initially diagnosed with ADD or ADHD be re-diagnosed with AS. In addition, some individuals who were originally diagnosed with HFA or PDD-NOS are now being given the AS diagnosis and many individuals have a dual diagnosis of Asperger Syndrome and High Functioning Autism.

For your information, I've included below a copy of the DSM IV Description. In addition, I've also added a more down-to-earth description that was originally posted to the autism listserv.




Diagnostic and Statistical Manual of Mental Disorders (DSM IV) Description (p77)

A description provided by Lois Freisleben-Cook




Diagnostic Criteria For 299.80 Asperger's Disorder

A. Qualitative impairment in social interaction, as manifested by at least two of the following:
  1. marked impairments in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction
  2. failure to develop peer relationships appropriate to developmental level
  3. a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g. by a lack of showing, bringing, or pointing out objects of interest to other people)
  4. lack of social or emotional reciprocity
  1. </FONT>
B. Restricted repetitive and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:
  1. encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus
  2. apparently inflexible adherence to specific, nonfunctional routines or rituals
  3. stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements)
  4. persistent preoccupation with parts of objects
C. The disturbance causes clinically significant impairment in social, occupational, or other important areas of functioning


D. There is no clinically significant general delay in language (e.g., single words used by age 2 years, communicative phrases used by age 3 years)

E. There is no clinically significant delay in cognitive development or in the development of age-appropriate self-help skills, adaptive behavior (other than social interaction), and curiosity about the environment in childhood

F. Criteria are not met for another specific Pervasive Developmental Disorder or Schizophrenia




A More Down-to-Earth Description
by Lois Freisleben-Cook




I saw that someone posted the DSM IV criteria for Asperger's but I thought it might be good to provide a more down to earth description. Asperger's Syndrome is a term used when a child or adult has some features of autism but may not have the full blown clinical picture. There is some disagreement about where it fits in the PDD spectrum. A few people with Asperger's syndrome are very successful and until recently were not diagnosed with anything but were seen as brilliant, eccentric, absent minded, socially inept, and a little awkward physically.

Although the criteria state no significant delay in the development of language milestones, what you might see is a "different" way of using language. A child may have a wonderful vocabulary and even demonstrate hyperlexia but not truly understand the nuances of language and have difficulty with language pragmatics. Social pragmatics also tend be weak, leading the person to appear to be walking to the beat of a "different drum". Motor dyspraxia can be reflected in a tendency to be clumsy.

In social interaction, many people with Asperger's syndrome demonstrate gaze avoidance and may actually turn away at the same moment as greeting another. The children I have known do desire interaction with others but have trouble knowing how to make it work. They are, however, able to learn social skills much like you or I would learn to play the piano.

There is a general impression that Asperger's syndrome carries with it superior intelligence and a tendency to become very interested in and preoccupied with a particular subject. Often this preoccupation leads to a specific career at which the adult is very successful. At younger ages, one might see the child being a bit more rigid and apprehensive about changes or about adhering to routines. This can lead to a consideration of OCD but it is not the same phenomenon

Many of the weaknesses can be remediated with specific types of therapy aimed at teaching social and pragmatic skills. Anxiety leading to significant rigidity can be also treated medically. Although it is harder, adults with Asperger's can have relationships, families, happy and productive lives.



NOTE: Lois Freisleben-Cook's description was originally a post to the bit.listserv.autism newsgroup/listserv . I thought it was an interesting explanation and included it on this site. A visitor recently pointed out that not all Asperger Syndrome children exhibit superior intelligence and felt that the post was somewhat misleading. It is my understanding that the majority of children diagnosed with AS do have at least an I.Q. in the normal range and that many children do have I.Q.'s in the superior range. It is important that you take the time to read through several explanations of AS, many of which are available on O.A.S.I.S. In addition, use the bibliographies, the libraries, and those professionals working with you to further your knowledge about Asperger Syndrome.

Barb Kirby
OASIS


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The O.A.S.I.S. (Online Asperger Syndrome Information and Support) Web Page and all O.A.S.I.S. links from the main page and formatting of those links (http://www.udel.edu/bkirby/asperger/)are © by Barbara L. Kirby For permission to reprint, please contact bkirby@udel.edu

Home to O.A.S.I.S.http://www.udel.edu/bkirby/asperger/
 
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pumanator

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I talked to my brother and I thought his son had autism but when I asked him about aspergers he said oh yea, that's more like what he's got. Lots of verbal skill but doesn't always make sence.

This has brought up again the fact that in my area there is no outreach to the disabiled. I deal with adult add and chronic pain in most of my joints which has brought on bouts of depression.

I want to start to minister to ppl in this area but I'm clueless as to what to do. The church we settled on does have quite an impressive ramp up to the sanctuary but I never see anyone use it...never see special needs adults and only a few kids here and there in the churches where I live. I'm sure there are ppl with all kinds of issues...it's overwhelming because I know ppl for the most part don't know how to relate:confused:
 
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itsgood

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about there being no outreach to the disabled, this is a real problem everywhere these days, and recently the NSW Greens have presented a legislation which says that anyone in a "vulnerable" position can not be witnessed to or evangelised, meaning it will be illegal to share Jesus with anyone with a disability, or anyone under 18, the socialist ideology will restrict our religious freedom
 
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HollyHobbie

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My son Matthew age 5 was diagnosed with Autism (he is somewhere in the middle closer to the lower part of the spectram ) a yr and a half ago. My daughter Rebecca age 3 was diagnosed with a mild form of Autism a couple months ago.

They are my precious gifts !!!
Love In Christ
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Laura

"For when I am tried and purified I shall come forth as Gold ":thumbsup:
 
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kayd1966

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aspie2x said:
I have a son, 10 with High Functioning Autism and my husband has Aspergers syndrome. Makes for a very interesting life. Are there any other families like this?

You're family resembles mine :) ... my 4 year old son has high functioning Autism and my husband has Aspergers, and our daughter is 'normal' developing with a lot of attitude! :o OH what an interesting life!!!

Welcome to CF!
 
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CoolMom6

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itsgood said:
I wish I could be a brilliant, uplifting person, for me living with Asperger's is like hell, how do I become like your friend?

All I know for sure is that this gentleman/brother of mine is first and foremost in love with Christ Jesus. He lives his life for the glory of God and spends much time teaching and helping others to see the truths in the Bible. I think if you talk to some of the people in this forum, you will see a lot of "positive" outlooks on life despite of problems or circumstances, that come from looking at life through Jesus' eyes. I suffer from depression and low self image, and I have plenty of other quirks. I believe God can take your situation and use it to bless you and others. I will pray for you. If you would like to talk to my friend, I can ask him to pop in here, or PM you, if you'd like.
 
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itsgood

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Yes that would be good if he could talk to me. I should be more in love with Christ Jesus. I like to read the Bible to my non-Christian brother. I wish to have a positive outlook on life despite my circumstances. But I don't have this positive attitude at the moment.
CoolMom4 said:
All I know for sure is that this gentleman/brother of mine is first and foremost in love with Christ Jesus. He lives his life for the glory of God and spends much time teaching and helping others to see the truths in the Bible. I think if you talk to some of the people in this forum, you will see a lot of "positive" outlooks on life despite of problems or circumstances, that come from looking at life through Jesus' eyes. I suffer from depression and low self image, and I have plenty of other quirks. I believe God can take your situation and use it to bless you and others. I will pray for you. If you would like to talk to my friend, I can ask him to pop in here, or PM you, if you'd like.
 
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CoolMom6

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itsgood said:
Yes that would be good if he could talk to me. I should be more in love with Christ Jesus. I like to read the Bible to my non-Christian brother. I wish to have a positive outlook on life despite my circumstances. But I don't have this positive attitude at the moment.

OK, itsgood,(I like your username; one of my sayings);
I will see him around today or tomorrow, and I'll bring it up to him. He is very helpful. But, he is a bit shy and I won't push him quickly.
 
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romaneagle13

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My nephew has Aspergers. I am still learning about it. It just seems strange to me because I have only seen him a few times (he lives out of state and his mother can't bring herself to make the commitment to marry my brother and settle down like a normal family--but that's another problem). My nephew is 5 and just seems to be a normal, smart and precocious little boy. But I guess the problem is in his dealing with children his own age.
 
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midnightbirdgirl

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romaneagle13 said:
My nephew has Aspergers. I am still learning about it. It just seems strange to me because I have only seen him a few times (he lives out of state and his mother can't bring herself to make the commitment to marry my brother and settle down like a normal family--but that's another problem). My nephew is 5 and just seems to be a normal, smart and precocious little boy. But I guess the problem is in his dealing with children his own age.

RomanAngel, sadly when most people see an aspie, they see a normal child. It is not until you live with them or have more consistent interaction that you can see how debilitating this disorder can be. One of the worst parts of it is people not "seeing" it. Many members of my family still say nothing is wrong with our son. And say if there is a problem, it is because we are poor parents. Very typical, very common.
MBG
 
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CoolMom6

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itsgood said:
thanks coolmom I look forward to hearing from you

Hi, itsgood;

I am going to e-mail my friend today, in fact, and see if he would like to counsel with you, my friend. He is around here, but not often enough.
I'll get back to you either way. Shall he PM you?
 
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KIRKBIBLE

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My 19 y.o. nephew has aspergers. He was never diagnosed by a doctor but I was watching 20/20 on night and I rushed to the phone and called my sister and told her to turn on her tv asap. Everything the little boy on there was doing was my nephew to a T! We are still trying find a doctor for him but we cant seem to find one anywhere near us. BTW, we live in KY. if any one knows of a doctor around here that actually knows what aspergers is :scratch: Please IM me or PM me or email me! Thanks and God Bless!!!:D
 
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