My dad has problems again

[Michie]

I’m glad he got some food down. Often meds are removed when they are in comfort care. Still praying.

 

[Susie~Q]

Starting with applesauce is the way all hospitals I know do it and then build up from that. I am glad that your dad was able to eat enough so he could take his meds. As to not being able to swallow bread, that's fairly common, it's dry and can be hard to get down, it would be a good idea to soak the bread in warm milk with butter, sort of like mush, it would be easier to eat plus the warmth would also help it go down his throat better, cold can cause the throat to sometimes constrict.

Also, all food should be pureed, that is what they did when they first took the NG tube out of Steve, it goes down very easily, like baby food, in fact, baby food is another good option. You see, there are a lot of options, the darn doctor should be prescribing them, I can't believe that he/she hasn't. I don't like how they're handling all this. Usually, a dietitian will come in and talk to the patient as well and write on their chart the type of meal and how it should be prepared in their chart.

 

[Cosmic Charlie]

Lady:

I've been recalcitrant in getting back to you because, well, personal stuff that's not important here.

Maybe I should DM this. I don't know.

I'm sorry.

I'm so sorry for you in this situation.

I wish I was there so I could wrap my big [bless and do not curse][bless and do not curse][bless and do not curse][bless and do not curse][bless and do not curse] arms around you and hold you and let you know it's going to be ok.

Just let it go.

Bless you.

cos

PS:

Just let Jerry and the boys wash a 55 year old ballad over you like a cool breeze.....

 

[Lady Bug]

Often meds are removed when they are in comfort care.

I know. I hate to say this, but I don't like when they do that.

Lady:

I've been recalcitrant in getting back to you because, well, personal stuff that's not important here.

Maybe I should DM this. I don't know.

I'm sorry.

I'm so sorry for you in this situation.

I wish I was there so I could wrap my big [bless and do not curse][bless and do not curse][bless and do not curse][bless and do not curse][bless and do not curse] arms around you and hold you and let you know it's going to be ok.

Just let it go.

Bless you.

cos

PS:

Just let Jerry and the boys wash a 55 year old ballad over you like a cool breeze.....

Thanks CC, I go on and off in weakness/stability. When I'm weak, it's insufferable, and when I'm stable, it's not for very long.

 

[Cosmic Charlie]

Thanks CC, I go on and off in weakness/stability. When I'm weak, it's insufferable, and when I'm stable, it's not for very long.

Been there.

Done That.

Weak is supposedly the way God wants us (I'm not so clear on that, but that's what the smart people tell me).

Stable is an illusion. (Very clear on that one)

Like I said.

Hang tough. Button up. Do what you have to do to get though.

And then, indulge yourself.

Just a little.

Just because you can.

Damn.


I'm really not of any help, am I ?










{heavy sigh}

 

[Michie]

I know. I hate to say this, but I don't like when they do that.

Well sometimes the meds do more harm than good given the prognosis. I know my stepdad went off a lot of meds that would have made things worse given his condition. I know it’s hard to understand but things change as people get older, sick, or injured.

 

[Lady Bug]

Well sometimes the meds do more harm than good given the prognosis. I know my stepdad went off a lot of meds that would have made things worse given his condition. I know it’s hard to understand but things change as people get older, sick, or injured.

Oh I see. I suppose that if the palliative doc okd the reinstatement of those two meds, perhaps I didn't step out of bounds, but I'll be careful.

 

[Lady Bug]

Been there.

Done That.

Weak is supposedly the way God wants us (I'm not so clear on that, but that's what the smart people tell me).

Stable is an illusion. (Very clear on that one)

Like I said.

Hang tough. Button up. Do what you have to do to get though.

And then, indulge yourself.

Just a little.

Just because you can.

Damn.


I'm really not of any help, am I ?










{heavy sigh}

I can't exactly indulge myself after all this until I know I can support myself, then I could think about that. Right now I can't afford to move because of gutter and plumbing problems that are simply too expensive to fix, and no one will accept a house with those two problems, yet I can't afford to live anywhere else either. It's too depressing in this house but I don't want anyone else to have this house either. There is no solution.

 

[Michie]

Oh I see. I suppose that if the palliative doc okd the reinstatement of those two meds, perhaps I didn't step out of bounds, but I'll be careful.

Oh they understand the concern. Don’t worry about stepping out of bounds. All you are doing is asking, etc. They know that most people do not understand the med withdraw in these situations but they will explain it to you.

 

[Lady Bug]

I'm struggling with seeing signs of aspiration in my dad and I keep hoping it won't get worse but it's not my choice

 

[Michie]

I'm struggling with seeing signs of aspiration in my dad and I keep hoping it won't get worse but it's not my choice

Well it sounds like he might have been aspirating at home on occasion. I’m sure the swallowing issue does not help. I’m sure they are looking out for signs of pneumonia given his condition.

 

[Lady Bug]

Well it sounds like he might have been aspirating at home on occasion. I’m sure the swallowing issue does not help. I’m sure they are looking out for signs of pneumonia given his condition.

He had been having problems with foods containing breads. For example, hamburgers (the buns), tacos (soft tortillas), pita bread, etc. Ironically, he didn't have a problem eating a turkey sandwich with whole grain bread/Oscar Meyer lunchmeat and cheese but that may have been a weird exception.

 

[RileyG]

He had been having problems with foods containing breads. For example, hamburgers (the buns), tacos (soft tortillas), pita bread, etc. Ironically, he didn't have a problem eating a turkey sandwich with whole grain bread/Oscar Meyer lunchmeat and cheese but that may have been a weird exception.

Continued prayers!

 

[Michie]

I hope today is a better day for all of you.

 

[Lady Bug]

Today took a nosedive. He barely ate yogurt and had only a few ML of water (because he was coughing it) and has been sleeping all day. I could tell yesterday, his eyes had a certain look and I was kind of worried about it, but now it all makes sense, those are the eyes of a person who is starting to die and it feels impossible to accept That look kind of starts two weeks before, I think, that look in their eyes that is slightly more vacant than normal, and you try to chalk it up to fatigue or the sedative, but my heart knows better than that

I could even tell when he was sleeping today that it was a different kind of sleeping. This whole thing is terrible but it's made worse by my money issues (I don't feel like going on that tangent right now but that part IS terrifying).

I know my brother has a point that my relatives have a right to know about this and certain ones will know but I'm worried that my brother is relying on one relative who I absolutely want to avoid like the plague, the one that wanted to come to the house back in December. He makes me shudder. I wish that my religious freedom were achieved in an infinitely better way than this, but if my brother keeps trying to get closer to these relatives, I don't see how it's going to go well for me at all.

It's a busy night with groceries, it's 9 pm and I never ate dinner.

 

[RileyG]

Lord have mercy! Continued prayers!

 

[FaithT]

Today took a nosedive. He barely ate yogurt and had only a few ML of water (because he was coughing it) and has been sleeping all day. I could tell yesterday, his eyes had a certain look and I was kind of worried about it, but now it all makes sense, those are the eyes of a person who is starting to die and it feels impossible to accept That look kind of starts two weeks before, I think, that look in their eyes that is slightly more vacant than normal, and you try to chalk it up to fatigue or the sedative, but my heart knows better than that

I could even tell when he was sleeping today that it was a different kind of sleeping. This whole thing is terrible but it's made worse by my money issues (I don't feel like going on that tangent right now but that part IS terrifying).

I know my brother has a point that my relatives have a right to know about this and certain ones will know but I'm worried that my brother is relying on one relative who I absolutely want to avoid like the plague, the one that wanted to come to the house back in December. He makes me shudder. I wish that my religious freedom were achieved in an infinitely better way than this, but if my brother keeps trying to get closer to these relatives, I don't see how it's going to go well for me at all.

It's a busy night with groceries, it's 9 pm and I never ate dinner.

Eat something and try to relax.

 

[Lady Bug]

Eat something and try to relax.

I will, but I kind of wish I had a video of how his eyes looked yesterday though. Not that I'd watch it for leisure, but it's the same as when my mom was about two weeks out, I kept those videos of her.

 

[FaithT]

I will, but I kind of wish I had a video of how his eyes looked yesterday though. Not that I'd watch it for leisure, but it's the same as when my mom was about two weeks out, I kept those videos of her.

Well, at least you’re not like me. I’m usually in denial when it comes to the end of life.

 

[Michie]

Today took a nosedive. He barely ate yogurt and had only a few ML of water (because he was coughing it) and has been sleeping all day. I could tell yesterday, his eyes had a certain look and I was kind of worried about it, but now it all makes sense, those are the eyes of a person who is starting to die and it feels impossible to accept That look kind of starts two weeks before, I think, that look in their eyes that is slightly more vacant than normal, and you try to chalk it up to fatigue or the sedative, but my heart knows better than that

I could even tell when he was sleeping today that it was a different kind of sleeping. This whole thing is terrible but it's made worse by my money issues (I don't feel like going on that tangent right now but that part IS terrifying).

I know my brother has a point that my relatives have a right to know about this and certain ones will know but I'm worried that my brother is relying on one relative who I absolutely want to avoid like the plague, the one that wanted to come to the house back in December. He makes me shudder. I wish that my religious freedom were achieved in an infinitely better way than this, but if my brother keeps trying to get closer to these relatives, I don't see how it's going to go well for me at all.

It's a busy night with groceries, it's 9 pm and I never ate dinner.

I’m sorry to hear that. Breathing does change during sleeping when things are slowing down. Continued prayers for all of you.