After all the hours spent at the hospital, the hour wait in the MRI waiting area, with my hubby in his scrubs and C in his hospital clothes.... this is what I posted an hour ago:
This is really, really, really disappointing. Gonna take a minute to not cry after all the stress of getting him in for an MRI this afternoon, waiting for an hour and then told they can't do it til they get records from Seattle about type of metal in his catheter. Told them it's not a shunt and was told it's not metal. It's never been a problem before. I don't even know what to say. *feeling frustrated*
It was really longer than an hour. We were supposed to have an appointment at 4:30, but were held up with the clinic apptmt til 4:50, and so we got there around a little after 5, and by 6:30, they came and told us this.
I was so angry that I could barely speak to the woman. She was trying to tell me he has a metal thing in his head. I told her he has a small catheter that we were told was plastic. It's never been a problem before. I was livid because they said they couldn't do it without Seattle's hospital records of what type of metal was the item. She tried to say a shunt and the catheter were the same thing, but saw my expression, which I was thinking "Don't you think I don't know the difference...I know the difference and you're not getting that by me"), and quickly said they weren't the same, but they're both metal. Yeah, ok. Poor kid, and I was about in tears over this. We are supposed to go back tomorrow evening around 6, but probably be a little later than that, and that depends on if they can get the records from Seattle. The only records they got were from Denver. Even though all the Children's Hospitals in the States are networked, they can't seem to just access the records online. Probably the stupid HIPPA thing. Anyway, I was just so livid I could barely speak. Probably because of all the stress we went through through the day over this. But mostly because he doesn't have a shunt and his catheter is a tiny plastic round thing in the back middle of his head. anyway, so much for that. Hopefully they'll get the records tomorrow. All I've gotta say is that every single medical issue we've tried to set up for our boys in this state have been dismal, convoluted and horrible. I don't know if it's the state or the change in healthcare overall. But hubby said it's this state and it goes all the way back to Romney's set up in this state. Well, it stinks on ice is all I've gotta say on that.