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Derealization/Depersonalization

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ShannonJ

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Hi there! I too suffer from DP and DR, like today at walmart (because I had anxiety about going) I was DR'd the whole time. You are in good company, you can always come here to vent or just to talk to people that understand! It is comforting to know that DR is just a symptom of anxiety but not itself the problem, even though it seems to cause even more anxiety! I will pray for you right now, please PM me if you need anything! Also the other people that have posted on this blog are wonderful at support too! They have been such a blessing!
 
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NorrinRadd

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Hi there. :wave:

I deal with this dp/dr thing too. First started when I was an adolescent or young teen, and I had maybe half a dozen episodes over the next 35 or so years. I've had quite a few of varying lengths and intensities over the past 6 or 7 months.

Here is a description at a site entirely devoted to "depersonalization." On that page or elsewhere at the site, one of the experts comments that those who experience dp are in some sense "too sane," as opposed to "insane"; instead of being unable to distinguish reality from illusion, we have feelings of UNreality, AND are acutely aware that they are wrong. THAT is why they are so disturbing.

Here is a page that lists dp/dr and several other symptoms some of us probably find familiar (even if we don't immediately recognize their names) among possible manifestations of migraine aura. (Since "aura" can sometimes occur with little or no subsequent headache, and since migraine is often "co-morbid" with anxiety, it can be more than a little challenging to pin down the specific cause of dp/dr.)

Here is a page about "Alice in Wonderland Syndrome," which is probably akin to dp/dr.


Eeeep, I get this quite a lot =/
I first experienced it when I was about 9 or 10. I remember telling my Mum about it, but she just nodded and didn't seem to understand.

Yep, I know that feeling. If someone has never experienced it, they either look at you like you're crazy, or else they get visibly uncomfortable and try to change the subject.


And I have it right now...
When I get it, it feels like all my life has been just a dream or something and like I've just woken up to the world? =/
It sounds stupid...but I find myself touching things to make sure they're real? And when I look in the mirror it's like it's not me looking back...
*Excellent* descriptions. I *hate* those feelings.


Yeah i know both of those feelings but mine tend to be triggered by different things but I also get random ones. I tried to explain it to someone and they thought i was crazy.

For me, anxiety alone doesn't do it. Needs to be combined with something else, such as sleepiness and/or low blood sugar.


I am slightly confused. I have a question. Do sufferers of depersonalization/derealization experience these feelings, state of mind, etc for certain long (or short) periods of time as opposed to just passing thoughts or questions in the mind such as, "What if life is an illusion?" or they examine themselves marvelling at how they were made, etc., or are these experiences much deeper and broader than that? :scratch:

Hard to explain. They are feelings, perceptions, altered states of consciousness. They generally last for seconds or minutes. But some people do get "stuck" in them for very long periods.

If you want more info, I'll do my best to describe my personal experiences; it's hard to convey to someone who has no personal experience with it.


jbug,

I am truthseeker1987 and new to CF as of today. After reading your post I was amazed that someone else has experienced this sensation. I've had many such experiences within the past 3-4 years but have never read about it. It is an overwhelming feeling and I have to end up leaving the room and going somewhere quiet to "get a grip". The scary part is thinking I'm losing myself within myself.

Yes, those feelings are familiar. The feelings are frightening, and our natural impulse is to flee from that which frightens. But the source of the fear is inside our own heads, and we can't outrun it. That overwhelming desire to flee, coupled with the inability to do so, can lead to a full-blown panic attack (he says from experience).


I am trying to learn to use scripture when this happens...like reminding myself to "take every thought captive unto Christ"..and "whatsoever is good...think on these things". I realize I'm not seeking Him to "guard my ....mind"... rather, I'm trying to hold on with my own strength. Problem is, I'm still healing from anxiety related issues that tend to bring on these episodes so my strength won't cut it. ...
That's a good idea, but one I've not myself been able to master. In my case, I have to find something to distract me -- talk radio, getting the items on my shopping list (since it tends to flare a bit when I'm shopping, maybe because I'm one of the ones who finds fluorescent lighting to be a factor), etc. -- so I can focus on what I'm "hearing" or "doing" instead of how weird I'm "feeling."

Truthseeker, I'm very much like this too. These episodes have been occuring with less frequency, but each time they happen I get a new "freaked out" feeling, as if this time it'll be for good, or I'm losing sanity, or I won't feel human again. ...

Yep, those are familiar sensations.


I have been dealing with this off and on for about 3 1/2 months and it is no fun. I was doing great for about 3 weeks and then I took a trip back to my home town by myself and it was a long drive.

Yep, driving can cause mine to flare somewhat, if I'm already tired, or if it's night-driving on an unfamiliar road.


... DOes anyone else have short-term memory problems with this. It seems that if I really try I can remember my day but it is as if I remember it in a kind of haze...........
Sort of. Time sort of telescopes. Events of a few seconds ago can suddenly seem hours or days in the past, and can seem like trying to recall a faded dream. Then when the episode passes, time rectifies and those things are clear, not distant and faded.

I also get deja vu and jamai vu sometimes.


I understand very much how you feel. Yes, when I'm in an episode (which hasn't happened for quite awhile, thank God), my memory seems to be hazey and kind of weak. Usually my grasp on time seems a bit off. Five minutes will feel more like twenty.

Yup.


When you go through an episode do you have trouble concentrating on what people are saying to you? I was at the dentist and had another episode:sigh: and I barely remember being there, and the dentist was talking to me and I could barely grasp what he was saying all I wanted to do was get out of there! It was all I could do to not panic. It is like I get really dizzy and almost disoriented and cannot concentrate one bit, it is so scary......... is the disorientation/concentration problem the same for you?????

Yup. You feel weird, disoriented, disconnected, unreal, in a dream state -- but you know darned well you are awake and really "there." You fight to push aside the weird feelings, listen to what the person is saying, make appropriate replies, and hope the other person doesn't notice your weirdness. And then concern about that intensifies the feeling of weirdness.


Yeah, I self-monitor a lot, and it's hard to break the habit. The dr/dp causes us to think about our state of mind so much that we get stuck on it even when we want to just live. It'll be there sometimes, but when I feel that way, I try to do something that demands my attention elsewhere. That's one reason why I like these forums- I can get lost in other people's thoughts on here and forget about monitoring myself.

:hug:

Yeah, that's my tactic -- self-distraction.
 
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junezephyr

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Hi there. :wave:

I deal with this dp/dr thing too. First started when I was an adolescent or young teen, and I had maybe half a dozen episodes over the next 35 or so years. I've had quite a few of varying lengths and intensities over the past 6 or 7 months.

Here is a description at a site entirely devoted to "depersonalization." On that page or elsewhere at the site, one of the experts comments that those who experience dp are in some sense "too sane," as opposed to "insane"; instead of being unable to distinguish reality from illusion, we have feelings of UNreality, AND are acutely aware that they are wrong. THAT is why they are so disturbing.

Here is a page that lists dp/dr and several other symptoms some of us probably find familiar (even if we don't immediately recognize their names) among possible manifestations of migraine aura. (Since "aura" can sometimes occur with little or no subsequent headache, and since migraine is often "co-morbid" with anxiety, it can be more than a little challenging to pin down the specific cause of dp/dr.)

Here is a page about "Alice in Wonderland Syndrome," which is probably akin to dp/dr.




Yep, I know that feeling. If someone has never experienced it, they either look at you like you're crazy, or else they get visibly uncomfortable and try to change the subject.


*Excellent* descriptions. I *hate* those feelings.




For me, anxiety alone doesn't do it. Needs to be combined with something else, such as sleepiness and/or low blood sugar.




Hard to explain. They are feelings, perceptions, altered states of consciousness. They generally last for seconds or minutes. But some people do get "stuck" in them for very long periods.

If you want more info, I'll do my best to describe my personal experiences; it's hard to convey to someone who has no personal experience with it.




Yes, those feelings are familiar. The feelings are frightening, and our natural impulse is to flee from that which frightens. But the source of the fear is inside our own heads, and we can't outrun it. That overwhelming desire to flee, coupled with the inability to do so, can lead to a full-blown panic attack (he says from experience).


That's a good idea, but one I've not myself been able to master. In my case, I have to find something to distract me -- talk radio, getting the items on my shopping list (since it tends to flare a bit when I'm shopping, maybe because I'm one of the ones who finds fluorescent lighting to be a factor), etc. -- so I can focus on what I'm "hearing" or "doing" instead of how weird I'm "feeling."



Yep, those are familiar sensations.




Yep, driving can cause mine to flare somewhat, if I'm already tired, or if it's night-driving on an unfamiliar road.


Sort of. Time sort of telescopes. Events of a few seconds ago can suddenly seem hours or days in the past, and can seem like trying to recall a faded dream. Then when the episode passes, time rectifies and those things are clear, not distant and faded.

I also get deja vu and jamai vu sometimes.




Yup.




Yup. You feel weird, disoriented, disconnected, unreal, in a dream state -- but you know darned well you are awake and really "there." You fight to push aside the weird feelings, listen to what the person is saying, make appropriate replies, and hope the other person doesn't notice your weirdness. And then concern about that intensifies the feeling of weirdness.




Yeah, that's my tactic -- self-distraction.

Hey NorrinRadd, thanks for such a comprehensive post! And welcome. It stuck out to me when you said that dr/dp spikes up sometimes when you shop - I'm the same way. In my case, it's a sensitivity to the chemicals in shopping plazas. Fragrances, preservatives (many clothing preservatives contain formaldehyde, which is toxic), dyes, etc. I cannot go into shopping malls anymore (which isn't much of a problem for me because I like to avoid new stuff anyway). Many malls actually spray fragrances through the air vents which can have a negative effect on the brain. There is usually a big difference if I go shopping in a thrift store - I'm much less likely to get an episode in them versus stores containing new products.
 
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The thinker

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Hi everyone, I just found this thread and thought I'd try to revive it!

I've been to dpselfhelp.com but I prefer CF as I have been around here for over a year so I trust the community.

I've been suffering for 8 months, I experienced it briefly when I was younger but it became cronic when I tried taking magic mushrooms without really knowing what I was getting myself into. Since then I have been yo-yoing up and down getting better and worse, it has also been affecting me in different ways as time has gone on. Occasionally I have also wilfully made it worse because when I am at my lowest points I cling to the belief that DP is a spiritual condition, a sort of breaking down of the illusions of this life. But because I believe this when I am feeling better I sometimes end up bringing it back through thinking too much.:doh:

Today I was spurred on to write this post because I just experienced a sudden switch from DR to DP which has scared the heck out of me! I feel like I have not got a soul or that I am not real... I am trying to convince myself that that's not true, that I just feel like this because I do not feel [as] connected to anything on earth as I used to but I am still feeling awful. I'm scared to my core.

Love,
Richard
 
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Alixen

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Hey all

I havent been diagnosed yet, but i have no doubts about what i personally suffer from. I can't form relationships because i'm always so weary of everything. I cna start to form relationships, but then every desire to deal with it fades and i neglect them. If left to my own devices i would never call anyone really; it's typically my friend and family that initiate conversation. I've had a few girlfriends and i started out like any teenager; intrested and eager, but over a week+ or so its always petered out and i could care less about anything to do with the relationship or the girl.

I have no motivation, the world always looks muted, and the people around me actors on a stage who i feel could just as easy disapear utterly and it would feel little diffrennt. Video games actually feel more real than our world to me; when i beat a really good game with a good story i always get extremely depressed because for the time i was playing, i had a life that was full. I ceased to exist as i am, but as game character i took the role of the depersonalization wasnt there because all my focus and mind was on the story.

When i was a little boy my father left my mother, i was bullied verbally and occasionally physically from starting school to finishing; my grandfather slowly wasted away unable to breath in a hospital bed when i was 11/12 infront of me and my mother&Grandmother, my mother is disabled and has been ill for a long time, ect, ect. Basicly my depersonalization could have started at any point there, but i've had it as long as i can remember so i'd say it started in my early teens, if not a little before. i remember i used to phase out and stare for half-hour at a time in class.

I have no ambition either; i've hadf so many dreams i couldnt stop talking about, and yet weeks later they are nothing more than memories that i could care less about. Myfather bought me a profesional Camera since i wanted (still would like to be) a Photographer; i barely pick it up, let alone use it. I'd like to, but i have no motivation.

My lack of motivation isnt just laziness; it has destroyed any chance at a normal life i ever had. I bath once a month or less; it just never occurs through the haze that bathing would be a good idea, and if it does i have no motivation to do it, since i don't paticularly care about anything. I havent brushed my teeth in months; i don't want rotton teeth, i just.... never seem to do it. I live with my family since i'm incapable of regular housework; when i lived alone weeks old mouldy bread packets would be sat around fom a soup dinner, i would never fill the dishwasher, the sink was ful of pots and thick rancid sludge that i'd occasioanlly squirt acidic condimenst int to try and make less disgusting. I wear clothes weeks at a time. I lived on snacks since i had no motivation to cook.

In the end theres just no one home; or i'm seperated from life by a foggy window. I definetely know what people are talking about where people are talkign to you and you just can't take it in at al, you just sit feeling odd. I get so floaty that i can't even get motivated to panic.

In the end i have no qualifications at all (not even GCSEs), i failed to complete 4 collage courses, and i have no plans in life except to let Jesus guide me. I do get motivation for short periods where the illness lifts; i'll get realy excited and eager about something, only for it to again fade as the depersonalisation fals in again.

I'm thankful i'm ill. If i wasnt ill, chances are i would never have found Christ and Grace. Through a lot of amusing and spookily coinicidental/unlikely events i became a Christian. It is a truly terrible illness, but at the same time its saved my eternal life, even if this temporary one will come to nothing.

I have no illusions; if i suddenly got better now on the spot i may be even more screwed than i am now. I have no qualifications and am too old to go back to collage, yet too young to go to uni as a mature student. The job center would force me into adead end 9-5 tjob at the local supermarket 6 days a week, ect. I can't even comprehend it as ill as i am; maybe it would be easy were i well, i have no clue.

Still, i truly do fear that my illness may doom me in the end.

I read a page or so of the Bible a week; i just have no motivation to sit down and start reading. When i do it brings me comfort; but occasionally it also brings up a burning question about life that must be answered, but is pure torture to try and come to a conclusion over for someone who can't even brush their teeth. At one point my zeal was wonderful; i actually read chapters a night for weeks, and got midway nto Kings before my ilness kicked me full force again.

I pray often, i talk to Jesus throughout the day and ask for forgivness and safety and tell him i love him. and yet i fail him at almost every turn; the Bible says we must have the spirit to be saved, that you get it upon being saved. I beleive i have the spirit; as a person i have changed phenominally since i asked Jesus to save me, mellowed out to the point my unsaved friend keeps making gay jokes about me. The guilt i feel when i do something wrong is agonising; that never happened before, so thats new, my depersonalization used to have me care little about morals. Everyone i know was amazed at my change.

I beleive i have the spirit; yet the Bible says that if you have the spirit you will overcome sin and stop giving into bodily urgesand desires. This illness by its very nature makes me weak to bodily desires. I have masturbation problem, up to three or four times a day on a bad day, i have no shame in admitting it, its a weakness that this illness exploits; i don't want to burn with desire as the Bible puts it, and yet nor can i get a wife as the Bible says is the cure for it. I would be a disservice to any woman as i am. Nor am i sure it would be a cure for the Burning, since it boarders on obsessive at times; doesnt matter where i am or what i'm doing, i must find somewhere private and ahem. I try to fight it and sing Amazing Grace in my head, but when the hormones start rushing there is nothing i can do to resist. Then again, we are saved by Grace and still do Sin, Paul himself said he sinned, though he tried not to. it is the fighting against sin that counts? If one such as Paul sinned, what chance do any of us have?

I also spend many/most of my waking hours emmersed in MMOs (Massivly Multiplayer Online Games) to hide from my illness and distract myself from life itself. The Bible tells us not to be of this world, and i could sarcasticly reply thats no problem thanks to my illness, but i do worry that burying myself in games would be classed as being part of the world.

Basicly; i'm messed up.

I would like nothing better than to spend my life preachingthe gospel to the world, to suffer for my Lord, and so forth.

Yet, at Twenty years old, i'm so tired. I'm weary.

I'm currently on a 7 month or more waiting list to see someone about this, shows how well the system works, eh?

Sorry for the rant; but i'd appreciate feedback on my worries about my walk from any fellow Christians and any pastors. Me, my mother,and my stepfather comprise our on own little church; so it would be nice to get some outside advice.
 
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KTKat

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I'm so sorry I didn't get to you sooner! But I'm happy to hear that you're getting help, I really hope it makes things better! Depression and depersonalization go hand in hand together. I believe that's when I noticed my DP. I can also relate to the illness as a "good thing". Since going through my anxiety/depression/depersonalization I too have become closer to my faith than I ever have been. Keep praying and I'll be praying for you too! That "floaty" feeling you describe is one of the worst feelings ever. Pay it no attention and keep moving forward, it will get better for you! I'm always here to chat, feel welcome to PM me anytime :)
and please keep us all updated on your progress!
 
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Daughter of His

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My advice is everytime you get that miserable floatie feeling pray pray pray and I believe the Lord comes to our rescue and shortens the discomfort. I am so glad you are getting to talk with a specialist since there is a lot they can recommend to help you. :pray:for you!
 
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Alixen

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Thank you both for the messages; the Lord does indeed help daily. Were i unsaved and unaware of my savior as a once was i would be in constant torment, anger and depression. As it is, i hardly notice the depression. It's there, but there always seems to be something shielding me from its worse effects. I wonder what that could be. =P

I have to admit i have little faith in this specialist, but i have all faith in my Lord; so i'm sure things will go fine. Problem is in todays world pharmasuticals are one of the biggest money makers around, so a lot of the time they don't even try to fix you, just dose you up on a lot of expensive medicine that is harmful in the long term and does nothing to help the root of the problem.

My appointment is on monday, so that will definately be intresting. =D

Praying for you both. :)
 
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dancingforJesus

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I know what y'all are talking about. I too have this and it is awful! It is one of the scariest feelings. It's like I'm here, but yet somehow I'm not. I can still go about whatever I'm doing and do it just fine, but it's like I'm not really here while doing so. Like watching yourself from a distance or something. It just happens from time to time and for no apparant reason sometimes. For me, it triggers my anxiety mostly. I will feel that way and then begin to get anxiety because I "freak out" about how I'm feeling. I "freak out" because I feel like I'm "out of it" and going to go crazy. Other times I will be anxious about something and because of that I feel dp/dr.
It is really hard to deal with sometimes and certainly hard to explain to anyone. They don't get it at all and have no clue what you're talking about. I've had people tell me to just deal with it or to ignore it and it certainly isn't as easy as that! It's like it will not be ignored no matter how much you try to ignore it.
I have had this sense I was a child, I don't remember how old I was when I first noticed these feelings though. I know that I was little and had these feelings and each time I thought it was worse then before. Like this time I might go crazy or not be able to "snap out of it". Like when I have that anxiety feelings where you feel like you can't breath right (well of course you are or you'd be collapsing, but it just somehow feels like you can't)...then I would think this time it seems worse and maybe I will end up not being able to. So, then those thoughts would trigger the anxiety and the anxiety would trigger the dp/dr, which would trigger those thoughts and so on. Like it just keeps going around in circles, one triggering the other. And, it always seems unending...like it's going to go on forever and you can never get out of the cycle.
At times I have this feeling at some point nearly every day. Other times a few days or so will go by without noticing any of these feelings. It usually happens when I'm out somewhere. Like when I go shopping or am around people I don't know and such. This has kept me from doing alot of things actually because I will end up with these feelings and then anxiety. Well, today I decided I would go to church, as I have been avoiding going do to this. I prayed before going and again once I got there. But when I went in I still ended up with the dp/dr feelings and some anxiety. I was trying to focus on what was being said and in singing along with the songs and focusing on God. But, those feelings just would not go away. I started to feel hot and then almost feel a bit like I might faint, which goes along with anxiety. So, I began to pray and ask God to help me to not feel that way and to bring me peace. I started to feel a little better after that and those feelings weren't as bad. I made it through without "freaking out" as I call it and without feeling like I needed to bolt out of there or I would faint or "freak out". So, that's a small step for me actually. And, they were talking about eliminating fear during the church service.
What I've found helps is to pray and ask God to help you and to calm your nerves. Whenever I start to feel that way the first thing I do is pray and seek God's help and then put my faith and trust in Him that He will help me. I try to stay focused on God and the fact that He is there with me. That's what really helps me...usually I begin to feel better and more calm. Sometimes it takes a while but eventually I do feel better.
I don't really know why we have to go through this. I know God can heal us and deliver us from this and yet we still have it. But, I know there must be a good reason that we go through this and are not healed of it when we ask. Maybe for some of us it is to bring us to the place where we are totally reliant on God...where we learn to trust in Him always...where we learn that we need God in our lives daily. Maybe for others it's because we need to learn that God is there with us always and will help us. Maybe just so we come to see the need for Him in our lives and so that we will be more focused on Him, because for me, I know I have been way more focused on Him when this is worse then when it wasn't. I have come to the place where I know that I can not make it without God...that I know I need Him daily...and I have come to be more relient on Him then on myself or anything else. Whatever the reason, I know that God loves each of us and will work everything out for our good, even if at the time we don't see it as such. God knows what's best for us and has a good and perfect plan for each of our lives and we have to trust in Him to work that out. Whatever He brings us to, He will bring us through.
Just listening to the words of my favorite song really helps. It's "I Have To Believe" by Karen Wheaton and it is so true...
I have to believe that He sees my darkness
I have to believe that He knows my pain
I declair that He is my refuge
I have to deny that I am alone
I have to lift up my eyes to the mountains, that's where my help it comes from
He said He's forever faithful, I believe it
He said He's forever true, I know it
He said He can move mountains
If He can move mountains,
He can move my mountain,
He can move your mountain too
I have to stand tall when the wind blows me over
I have to stand strong when I'm weak and afraid
I have to grab hold, ahold of the garment, the garment of praise...yeah
He said He's forever faithful, I know it
He said He's forever true, thank you Jesus
He said He can move mountains,
If He can move mountains,
He can move my mountain,
He can move your mountain too
 
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Anonywtc

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I have experienced depersonalization but not derealization. I wouldn't say that I found it terrifying so much as frustrating and sometimes strange. I've been experiencing it since I was a child due to verbal/emotional/spiritual abuse from my mother. But it has always been more of a tool to deal with stressful situations. When I was young it would weird me out a little because it would be difficult to believe I was me and that this was my life and not a dream and how could I be myself and not someone else. Also sometimes I would temporarily confuse my imagination with reality for just a few minutes. But those were kind of my escapes. If I could dissociate from something that would normally scare me then I can deal rationally with it.

However now that I am an adult and mostly no longer in need of it, it can be a huge hindrance in relationships. I feel like I involuntarily check out emotionally when I really need to be in the relationship. I want to be able to experience real intimacy but it can be impossible at times and all I can do it wait it out :(
 
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