Seizures

[Luther073082]

I just found out that I'm haveing them and I'm now on Diaxilin (or something like that)

Anyways I had a big one about 2 weeks ago. I don't remember what happened but I woke up and my light was on and I was in my bed and I remember feeling very sick and my tongue hurt (I bit it). I shut off my light and went to sleep not even questioning what just happened.

I woke up the next morning and my room was a pit it looked like I had a fight in there. On top of that my glasses where just where I would leave them if I was sleeping but where bent very badly out of shape. After my shower I found out my face was all red.

After talking with the doctor about it I recall that often when I'm concentrating on something I will blank out often for just one or two seconds and then have to regroup because I had forgotten everything that I was doing. Its happened while practicing ballroom dance but it happens most often on the computer. Once just before I had my bigger seizure I blanked out and convusled really bad to where I flung my mouse very far forward.

I also recall a time when I was 16 and I don't remember anything before waking up crouched over on the floor and holding my mouth and nose and bleeding profusely out of them. I went to the hospital for that and they asked me what happened and I said that I didn't remember. After grilling my mom (because they has some reason to suspect abuse) they diagnosed me with a concussion.

 

[David_The_Disciple]

Wed Mar 21

well i just got back from teh ER i went there due to very bad tremors allmost a shexoar the ER doc took few tests he siad it chould be due to leaking from my heart or thiored (sp?) .


i was in the Er for 12 hours the tremors lasted 4 hours
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Fri mar. 22

had to call off work due to shacking in m hands call my mom and talked to her about it.

Sat mar. 23
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was doing some looking up on the net and talking to me mom. mom is going to fly down to FL pick me up and me back to Huntsvill AL to get this looked at and see what we can do to fix it

after reading things up i am thinking i have Parkinson's Disease.

Sun Mar. 25
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mom get here and we drove half way to Huntsville, AL from Orlandao FL. only thing i chould say was i am very tried and was very tried all day and all nite.

mon. Mar. 26
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we drove all the way to Huntsville not we went to see my bro who lives in Huntsville so does my mom we where picking up her dog when i started to have tremors there they took me to the ER here in huntsville the ER doc gave me some med in the ER to stop it but they still lasted for a good 2 hours.

wen.
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saw the family doc. she is calling both ERs to get any tests they may have done to me to see what other tests that needs to done to see what is cuseing the tremors. she is thinking its something dealing with the mind which goes back toParkinson's Disease but not sure will have to see the tests and other tests that i may have to do to find out.

so yeah its some not good but hopefulf its something easy fixed by pills or something esle.

i will find out the pills later they are in the other room but ppl are sleeping in there atm.


This Thu.

went to te ER allmost blackedout and allmost called the EMS but mom drove me to the ER. They gave me some meds via IV idk what i was out like a light till 2pm the next thou we did go about 11pm at nite anywho they say its a mind thing thou not relly sure why cuse they did 2 CT and came up clean so they are not sure wht. but i cant drive or work due to this and the meds.

 

[tapero]

Praying for you David.

 

[whitebeaches]

I am praying for you too David. Praying God will give the doctors the wisdom they need to help you.

 

[Brownstoned]

Praying as well. Horrible things can happen when the brain is involved. Blacking out is about the worst thing that can happen in any situation.

 

[Crucifix]

David, I'm also praying for you.

The diary which you posted is a wise idea for you to do. It will give your drs. a better description of what is going on from your perspective. If there are any other family members around who could also keep a diary - provided they respond rather than react. This would also benefit the drs. b/c then they have an objective report of what has happened, if they're around you when your seizures occur.

My family has become paranoid over my least little behavior, so I'm not comfortable around them. It's more stressful for me and I have learned what might set off seizures and what my limits are. I would encourage you to do likewise. You'll then know better for yourself what you can and can't do and you can work within these parameters.

 

[David_The_Disciple]

well the i go see the brian doc Monday so i do not have to wait till may to see him.

thank you for all the prayers and thats a good ideda Crucifix

 

[whitebeaches]

That's great you were able to get an earlier appointment. Praying God will give the doctor knowledge to be able to help you.
hugs

 

[warrrior4him007]

i have grandmul sezuiresi have had seziures since the age of 27im 35 right nowand ibeen on lots of diffrent meds dillantin was the frist it made me sick
tegratol was the second
then depokote now im on topamaxits working i had a seziure friday

 

[snowowl21]

Hi i have seizures as well. i cannot afford to be on anything anymore but they are really starting to take a toll. i used to be on lamictal but it caused sucidal tendicies then i started another one i cannot think of the name but it is not strong enough. i cannot get to a neurologist because i have no insurance or money. lamictal cost 500 a month so even if went back on it i couldnt do it. i am a missionary so i have no money and i lost my part time job. i am moving so i really have no money but i have to do something. i have been praying for healing for a long time but for some reason God wants me to have them but my brain is not taking to no med real well. it is affecting my memory and my seizutres have always gone for the legs first i already am a toe walker so i have enough problem with them and to have them weakened by seizures does not sound like a good plan to me.well i am just asking for prayers that we can figure this one out.

 

[shanen98]

I too have seizures. Grand Mal seizures before I was put on 1500MG of Depakote. I still have partial seizures no matter how much/many medicine(s) they put me on.

Someone had asked to explain your seizures so I will explain mine. During my partial seizures, like someone above mentioned, I get really confused. It kind of happens in stages. For 30-90 seconds I have intense confusion, to where I dont even know where I am or who anybody is. After that anywhere from 30 minutes to several hours I have trouble comprehending (just one example, I was trying to read something and I saw the letters c-o-o-k-i-e but I couldnt comprehend they were spelling the word cookie), have major pressure in my head and am naseated.

Other small annoyance after I have a partial seizure is I "seem" to hear the same phrase repeated by many, many different people or even on television or the radio. I can never fully hear the phrase and it drives me silly Does anyone else experience that?

Also I keep pressure in my head (this never happened till I started having seizures in August of 2005). My doctor has not even tried to do anything about it. He just says it could be from the epilepsy or a side effect of the medicine. Do any of you with seizures or on seizure medicine keep pressure in your head?

Another problem I am having is Driving... Before my first 2 grand mal seizures I had intense pressure in my head and I new something wasnt right (I wasnt driving, but I would have been able to pull over if I had been). The 3rd grand mal seizure I had, I had no warning at all. I was not having a "bad" day. It just happened. I would not have had time to pull over. So I am very,very paranoid about driving.

Im not trying to steal this thread, sorry if it seems that way.

Shane Newman

 

[Brownstoned]

I too have seizures. Grand Mal seizures before I was put on 1500MG of Depakote. I still have partial seizures no matter how much/many medicine(s) they put me on.

Someone had asked to explain your seizures so I will explain mine. During my partial seizures, like someone above mentioned, I get really confused. It kind of happens in stages. For 30-90 seconds I have intense confusion, to where I dont even know where I am or who anybody is. After that anywhere from 30 minutes to several hours I have trouble comprehending (just one example, I was trying to read something and I saw the letters c-o-o-k-i-e but I couldnt comprehend they were spelling the word cookie), have major pressure in my head and am naseated.

Other small annoyance after I have a partial seizure is I "seem" to hear the same phrase repeated by many, many different people or even on television or the radio. I can never fully hear the phrase and it drives me silly Does anyone else experience that?

Also I keep pressure in my head (this never happened till I started having seizures in August of 2005). My doctor has not even tried to do anything about it. He just says it could be from the epilepsy or a side effect of the medicine. Do any of you with seizures or on seizure medicine keep pressure in your head?

Another problem I am having is Driving... Before my first 2 grand mal seizures I had intense pressure in my head and I new something wasnt right (I wasnt driving, but I would have been able to pull over if I had been). The 3rd grand mal seizure I had, I had no warning at all. I was not having a "bad" day. It just happened. I would not have had time to pull over. So I am very,very paranoid about driving.

Im not trying to steal this thread, sorry if it seems that way.

Shane Newman

Shane your first 90 seconds or so of a partial seizure sound identical to mine.

 

[Protinus]

How is everyone??? Shane, Brownstoned, David, Crucifix???

You guys are so courageous. I've worked with patients that have seizures for 25 years now...every story is amazing to me!! Bless you all!!

 

[shanen98]

As mentioned in my testomony here: http://www.christianforums.com/t5437381-miracles-are-not-dead.html

I am doing much better.

As long as a take my medicine like I should then I have no Major seizures and my partial seizures are less frequent and less severe.

The testimony above is about ever since I started having seizures I have had "pressure" in my head. The doctors couldnt figure it out and just said it was a side effect of my medicine or slight brain damage. But one Sunday morning I was trying to pray and worship God and he healed me of the pressure. So after 2 years of having pressure in my head every moment I was awake, Praise be to God I have no pressure in my head and havent for a couple of weeks now.

Miracles are NOT dead

Shane Newman

 

[Protinus]

Thanks Shane and I'm so glad your secondary symptoms are better!! While I believe that the Lord intervenes in our lives, it is important to state the importance of follow-up or phone contact with your epileptologist for primary and even secondary symptoms. It sounds like you did that but to remain vigilant about it.

 

[rainier]

I had childhood epilepsy; so now I no longer have the seizures. They were partial seizures and rather mild in nature. I could have one and noone even know because it would be a simple as staring out into space sometimes I would faint. While I was having them I would not remember anything of what going on. I would also lose control of my bladder sometimes. I was on dephokote from the time I was one to the time I was eightteen. What I recall most is how happy I was to be taken off the medication. Many children with partial seizures evenually out grow them; I wish everyone could be so lucky.

 

[Protinus]

HI rainer! the good news is that you can grow out of seizures.

What about the rest!?

 

[SafeStars]

I'm really praying that you all will be safe, and that they find a cure for this terrible medical condition

Please take care, and God Bless you all!!!!

Dave

 

[craftycook]

I don't have seizures, but my 12 yo son was diagnosed with idiopathic epilepsy 2 months ago. All the tests were normal, the EKG, MRI, EEG, lab work. They don't know why he had the partial seizures, or the 2 convulsive seizures back in May. He's now on Carbatrol and will be until he's 14. He's responded to it well, praise God.

He's such a typical kid, he just wants Mom to chill and give him his life back. I've tried to return to as normal as before. Swimming is a big concern. He loves to swim and he's very good at it. We've only swam once since the seizures, and it went okay but I was nervous. I witnessed both convulsive seizures he had. I was so scared and felt helpless as his mom. Being a nurse didn't prepare me for this. It all went out the window when it was my child. I'm worried about what will happen when he comes off his meds, but we'll cross that bridge when we get there. For now, things seem o.k.

Like Protinus said, you're all so courageous. I appreciate your openness and willingness to share. I might need to call on some of you. God bless you all.

 

[TheDag]

Sorry I didnt respond back quicker.
Still not doing too well. Doc wants me to swap to another medicine. Supposedly it increases your weight (makes you think you are more hungry than you really are).

I have been on meds that have weight increase as side effects. I find it is because the medication increases your appetite. I found that as long as I was careful about how much I ate I was fine. This can be hard to do of course and requires alot of discipline.