Does anyone on here suffer from Fibromyalgia?

[Colleen1]

On the fibro forum there is a thread--you know you have fibro when.....
it is hilarious. We keep adding to it. I wanted an aspirin for headache, my husband walked by and I asked him for it.."Can you please get me the...the...uhm...(pointing to the bottle right in front of him)..the...uhm..(pointing madly)---"Would you like some aspirin dear?"---YES!!
I opened the cupboard and found the milk, opened the fridge and found the dry cereal box
put eggs on the stove to boil---one hour later heard popping noises--eggs popping on the dry, black bottom of the pot
My husband now asks me when I'm about to go out the front door--"Do you have the cell phone, the keys, the water, your purse, your cane,your list (shopping, that is, but then I leave it in the car)--your prescription (I've gone right up to the pharmacy , the only reason to go to the store, and found I'd forgotten the prescription.)...

then there are the days that you end up totally exhausted from having worked all day, but accomplished nothing----Go to wash the dishes, need my glasses, go looking for them, spotted a spill on the floor, go get paper towels to wipe up the spill, found my glasses, go to do the dishes, noticed my cell phone not plugged in to charger, went to charger, but did not have cell phone, went to look for cell phone, slipped on the spill, went to get paper towels, no paper towels, went to garage to get another roll of paper towels, walked by the washing machine, laundry needs to get done, started putting in clothes into washing machine, needed to wash nightie I wore last night, went to bedroom to get it, bed not made, started to make bed--exhuasted, crawled into it, took off glasses and stuffed them into drawer--nap time---get up and start all over again---busy all day and not one dang then accomplished!!!

Oh wow! I know what you are talking about. I find that I save so much time and energy if I'm organized with lists and things are prepared ahead of time. It's one incredible balancing act and if I get behind and disorganized, I can't even think straight. It's not fun but I find that having a good sense of humour is a real blessing. I find that being crazy (funny) keeps me sane.

 

[Colleen1]

Wow, this sounds so much like our lives (my mom and I)! This is our daily ups and downs. And it's so true, sometimes all you can do is laugh. I have done similar things and so has my mom! Last week I almost put my camera into the fridge. Oh the stories my mom and I could both tell! haha

And it seems you know to a "T" what life is like. We at all ages are still suppose to be vibrant and fast paced. Sometimes I see people who work nonstop, have an ongoing social life, have a family and never seem to slow down or be ill at any point and I just wonder how they do it. I have wondered before why God made me the way he did and why I can't be more like the people I see but honestly for the most part I wonder how they do it! I know no ones life is perfect and we can't see what it's like behind closed doors but sometimes I just wonder how they keep up and seem so put together.





You took the words out of my mouth this time.
Im in a wheelchair, I have Spina Bifida (paralyzed from the waist down) and it was hard enough getting disability for an obvious illness let alone getting one for one no one can "see". The doctor I went kept asking "So.. you cant get up...at all?" I can just imagine going to a doctor to get disability for fibromyalgia.






This is true too. Humor does do a body good and physically makes me feel better about myself, life, my situation, etc.

 

[LadyOfMystery]

On the fibro forum there is a thread--you know you have fibro when.....
it is hilarious. We keep adding to it. I wanted an aspirin for headache, my husband walked by and I asked him for it.."Can you please get me the...the...uhm...(pointing to the bottle right in front of him)..the...uhm..(pointing madly)---"Would you like some aspirin dear?"---YES!!
I opened the cupboard and found the milk, opened the fridge and found the dry cereal box
put eggs on the stove to boil---one hour later heard popping noises--eggs popping on the dry, black bottom of the pot
My husband now asks me when I'm about to go out the front door--"Do you have the cell phone, the keys, the water, your purse, your cane,your list (shopping, that is, but then I leave it in the car)--your prescription (I've gone right up to the pharmacy , the only reason to go to the store, and found I'd forgotten the prescription.)...

then there are the days that you end up totally exhausted from having worked all day, but accomplished nothing----Go to wash the dishes, need my glasses, go looking for them, spotted a spill on the floor, go get paper towels to wipe up the spill, found my glasses, go to do the dishes, noticed my cell phone not plugged in to charger, went to charger, but did not have cell phone, went to look for cell phone, slipped on the spill, went to get paper towels, no paper towels, went to garage to get another roll of paper towels, walked by the washing machine, laundry needs to get done, started putting in clothes into washing machine, needed to wash nightie I wore last night, went to bedroom to get it, bed not made, started to make bed--exhuasted, crawled into it, took off glasses and stuffed them into drawer--nap time---get up and start all over again---busy all day and not one dang then accomplished!!!

lol! Is that thread here or somewhere else? If it's somewhere else can you PM it to me? I'd love to see it!

Wow, sounds like our days! It does get quite busy. So glad your husband helps you. The whole "do you have your cell phone...etc" sounds like me when my mom is getting ready to leave for something. The looking for something always leads to finding something else and losing track of what you were first doing. And 1 chore turns into 50!

Oh wow! I know what you are talking about. I find that I save so much time and energy if I'm organized with lists and things are prepared ahead of time. It's one incredible balancing act and if I get behind and disorganized, I can't even think straight. It's not fun but I find that having a good sense of humour is a real blessing. I find that being crazy (funny) keeps me sane.

Lists are great, I use to hate making them but honestly if I dont get step by step what needs to be done where I can see it on paper, I wont know how much there is to do and then I'll always forget something.

 

[Colleen1]

lol! Is that thread here or somewhere else? If it's somewhere else can you PM it to me? I'd love to see it!

Wow, sounds like our days! It does get quite busy. So glad your husband helps you. The whole "do you have your cell phone...etc" sounds like me when my mom is getting ready to leave for something. The looking for something always leads to finding something else and losing track of what you were first doing. And 1 chore turns into 50!




Lists are great, I use to hate making them but honestly if I dont get step by step what needs to be done where I can see it on paper, I wont know how much there is to do and then I'll always forget something.

Yes, it's good to find little tricks that help us along the way. They can be a great help.

 

[LadyOfMystery]

Indeed they can

 

[mmksparbud]

It would not let me type out the site address!! Tried several times---www.patientslikeme.com

 

[mmksparbud]

Why does my message get changed when I leave a private message???

 

[HeSaveDave]

I have Fibromyalgia, Arthralgia, Arthritis, and other pain. It is very tiresome.

 

[Colleen1]

I have Fibromyalgia, Arthralgia, Arthritis, and other pain. It is very tiresome.

Yes, it is. It just isn't easy. The pain along with the fatigue just seems to be a continual cycle, in a sense feeding off of each other. The main thing I find helpful is pacing and balance. This is easier said than done because I find that it constantly needs to be adjusted if other things come up such as additional illness, tasks, stress and then on the positive side as we get a bit better we need to change things by increasing activity. This process can seem long, continual and frustrating. Last month I had 3 weeks of pushing myself beyond what is healthy, knowing full well I would later pay the price. Still, the tasks I was working needed to be done. It can be hard to fit into a world that many times doesn't understand / accept our need to pace and have balance. It can seem like the world is spinning feverishly out of control while we're simply trying to think and see straight.

 

[mmksparbud]

That's one of our problems--feel a little better and we do more. Then we crash. It takes a long time learn to pace yourself even on our seldom "good days."--Instead of doing so much more, just do a little more, without feeling guilty that we are not doing enough!! Most of us were workaholics, had the "get it done right, get it done now"-we never could relax even on our days off--we have to retrain our brain to go slower, we don't have a choice!! Otherwise, we bring more pain on ourselves. We have to learn to ignore what other people think about us, and just plod along at our own pace.

 

[Colleen1]

That's one of our problems--feel a little better and we do more. Then we crash. It takes a long time learn to pace yourself even on our seldom "good days."--Instead of doing so much more, just do a little more, without feeling guilty that we are not doing enough!! Most of us were workaholics, had the "get it done right, get it done now"-we never could relax even on our days off--we have to retrain our brain to go slower, we don't have a choice!! Otherwise, we bring more pain on ourselves. We have to learn to ignore what other people think about us, and just plod along at our own pace.

So very true.

 

[catwoman61]

I do believe from all the things I have read about it , I have it indeed because no dr that i have been too and that is several Im talking about has been able to pinpoint it and i dont know why ? I just know it is devistationg to have it happen . I hate it and wish it would just go away one day but we all know who suffer from it , that will not be the case . UGH !!!

 

[Colleen1]

I do believe from all the things I have read about it , I have it indeed because no dr that i have been too and that is several Im talking about has been able to pinpoint it and i dont know why ? I just know it is devistationg to have it happen . I hate it and wish it would just go away one day but we all know who suffer from it , that will not be the case . UGH !!!

Ugh, I feel for you. It is hard to get the proper help and diagnosis. It can be frustrating and seem never ending. I do hope you get the support you get the right diagnosis so you can get the proper support. Take care.

 

[mmksparbud]

I do believe from all the things I have read about it , I have it indeed because no dr that i have been too and that is several Im talking about has been able to pinpoint it and i dont know why ? I just know it is devistationg to have it happen . I hate it and wish it would just go away one day but we all know who suffer from it , that will not be the case . UGH !!!

Yah--but the research they are doing is helping everyone to understand more and more about it, so that maybe, one day, we will be able to get better help. We have to keep our spirits up, otherwise the fools think that we're depressed and that if they treat "our depression" we will be all better---what they can't seem to get is that we can get depressed, but it's because we can't sleep, can't work, our brains have gone on vacation and are not coming back, we're loosing (or lost) our independence, oour money and who the blazes wouldn't feel a little depressed about that???!!! But it's important to keep our spirits up and laughter is good--like a medicine--
One thing that keeps crawling into my mind is--they know pretty much that this is a brain thing. It's like our brains have short circuits, as thoug it remembers every stinking little pain we have ever had and it just keeps sending those signals out, helter skelter--our little finger hurts, next our elbow, then maybe a shoulder, or 2--then the hips and on and on--it's no wonder dsr's think we're crazy, because this is a crazy, no sense condition. Soooooo---how about somebody doing some studies on electric shock therapy???!!! It's much better now, they put you to sleep (that in itself sounds wonderful to me--I do understand why Michael Jackson went the propafel route, I've worked around that stuff and wish I could have it too!!) so there is no pain. It can mess up some of your memories, but some memories are best forgotten anyway!! I saw a show about twin women, one was very depressed, the other not. Nothing helped the depressed one, it took 16 electric shock treatments, but she was back to normal. So why can't they zap us, see about getting all those little nuerons and synapses and whatever firing normally again? I'll volunteer!!!

 

[HeSaveDave]

That's one of our problems--feel a little better and we do more. Then we crash. It takes a long time learn to pace yourself even on our seldom "good days."--Instead of doing so much more, just do a little more, without feeling guilty that we are not doing enough!! Most of us were workaholics, had the "get it done right, get it done now"-we never could relax even on our days off--we have to retrain our brain to go slower, we don't have a choice!! Otherwise, we bring more pain on ourselves. We have to learn to ignore what other people think about us, and just plod along at our own pace.

I feel better knowing I'm not alone in feelings like these. I am new in dealing with this but when I have a week or more of "good days" I feel like I got better. Then, it comes back and I get depressed about it. I'm trying to learn how to deal with the mental aspect of all this. Including being one of the seemingly few men who live with Fibro.

 

[mmksparbud]

I feel better knowing I'm not alone in feelings like these. I am new in dealing with this but when I have a week or more of "good days" I feel like I got better. Then, it comes back and I get depressed about it. I'm trying to learn how to deal with the mental aspect of all this. Including being one of the seemingly few men who live with Fibro.

You should really try going into Treatment and Side Effect Info from Patients Like You There is a fibro forum and there are a few men on there. Fibro has no prejudice!

 

[mmksparbud]

There it goes again--I typed Treatment and Side Effect Info from Patients Like You andd it turns up as that--I never typed Treatment and Side Effect Info from patients like you!! Why is that??

 

[mmksparbud]

AAAAAccchhhhh!! patientslikeme.com

 

[Colleen1]

I feel better knowing I'm not alone in feelings like these. I am new in dealing with this but when I have a week or more of "good days" I feel like I got better. Then, it comes back and I get depressed about it. I'm trying to learn how to deal with the mental aspect of all this. Including being one of the seemingly few men who live with Fibro.

I hear you. It's not fun. It can feel long and frustrating apart from all the symptoms and pain we have to deal with. It can be a real downer but I find it is helpful to have a place to vent where people understand and don't judge or criticize. I imagine it would be tough since there are fewer men diagnosed.

 

[mmksparbud]

OK__guess You can't type the 3 w's!!!--sheesh!