I've suffered from CRPS, also known as RSD, but mine is systemic throughout most of my body.
I can only liken it to having irons on your body or go outside in below freezing weather naked and stay until you think your frozen burnt, but can never leave. It's also called the suicide disease. The skin becomes so hypersensitive for someone to breath on my skin would cause pain. Can't take showers, ect...
You fight for your life just to survive another day. There is little joy. Before it got me I had a nice home, business, wife and kids..we had the best life.
In time the business went as I tried to still work it. I should've went on disability a few years ago, but we lived off savings, hoping I would get better. I had a relapse that took me out. I couldn't even use my disability that I paid for because I didn't pay myself the last quarter...didn't know.
I wait for SS, but probably a few years the way it progresses in NC. My wife is disabled from 4 back operations, but gets around.
We've about lost everything. Next to go will be our home. Family buys us basic needs, but none have money. It was a terrible change, one I wasn't ready for at 41 when it started.
I have nights that I have cussed God and begged him to kill me. Like many with this illness I fight suicide, not wanting it, just no quality of life to want to live.
Even as bad as pain is nothing is worse than watching your family suffer so in poverty. You want to change it, but can't. Walls come up. My wife loves me, but I know she must be at her wits end dealing with this. She stresses everyday on just how we eat.
How do you that deal with pain make it with your loved ones. I'm to the point to let my wife go so she may could later find a better life and maybe it's just time for me to let go and move on.
I can only liken it to having irons on your body or go outside in below freezing weather naked and stay until you think your frozen burnt, but can never leave. It's also called the suicide disease. The skin becomes so hypersensitive for someone to breath on my skin would cause pain. Can't take showers, ect...
You fight for your life just to survive another day. There is little joy. Before it got me I had a nice home, business, wife and kids..we had the best life.
In time the business went as I tried to still work it. I should've went on disability a few years ago, but we lived off savings, hoping I would get better. I had a relapse that took me out. I couldn't even use my disability that I paid for because I didn't pay myself the last quarter...didn't know.
I wait for SS, but probably a few years the way it progresses in NC. My wife is disabled from 4 back operations, but gets around.
We've about lost everything. Next to go will be our home. Family buys us basic needs, but none have money. It was a terrible change, one I wasn't ready for at 41 when it started.
I have nights that I have cussed God and begged him to kill me. Like many with this illness I fight suicide, not wanting it, just no quality of life to want to live.
Even as bad as pain is nothing is worse than watching your family suffer so in poverty. You want to change it, but can't. Walls come up. My wife loves me, but I know she must be at her wits end dealing with this. She stresses everyday on just how we eat.
How do you that deal with pain make it with your loved ones. I'm to the point to let my wife go so she may could later find a better life and maybe it's just time for me to let go and move on.