Please pray for me

[CM]

What I have, is called "Caudle (or something spelt like that) Regression syndrome, and if effects nerves in my bladder and colon..thus (as you might guess) Creating a few problems, I had it since i was born..but it really didnt bother me intill I was 12..I mean, it was just part of life for me, catheriseing..it was part of the day, just gotta do it. Below is something m ymom typed..bout all the surguries I've had..I'll try to explain in my own words what they did to me, and how I felt..but Some I dont even know. >>

1:T&A, and tubes at age 2 ½ . Removal of tonsils and adenoids. Put tubes in ears.

2:Cysto (age 3 or 4) Look in bladder. (They just figured out what was wrong)

3:Orchipexy and cysto repair of undescended ball : Some tube didnt move and they had to do it

4:Mitrofonoff stoma- took appendix to make tract for bladder catherization in stomach

5:Change of mitrofonoff catheter (Make the hole different so a new kind of catherter could go in)

6:Bladder stone (crushed stones with laser)

7:Removal of small fragments of the stones

8:Revision of mitronoff stoma: Went in and made opening bigger

9:Bladder augumentation took part of colon to make bladder larger due to small bladder

10:MACE took part of colon to make stoma for colon irrigations (Theese would proove to be..painfull, and..didnt work)

11:Open stone removal: Opened bladder and got the stones out

12:Revision of MACE stoma: Remade the opening for Irrigations
13:Stone laser: Blast em
14:Stone laser
15:Stone laser

16: On May 26th....its gonna redo the whole MACE thingy..and try to get it to work this time..I pray it works.
On the 25th..Gotta go in and stay the night ..I guess to flush me out completly..doc wants me clear >> then 26th the sugery..dunno how many nights I gotta stay overnight..I hope not too many

I'm just having a hard time going through this..I just keep remembering it not working before, but I'm gonna do my best to make the best of it.
Please pray for my Mom, she's havin troubles too.

Thank you all, and God bless.

 

[praisinggod]

You have been through so much. I know the Lord has his hands on you.
I will keep you in my daily prayers. God Bless You.

 

[desi]

Pray for the stones to stop.

 

[Cat59]

You have had to put up with so much- I'll pray for you and your family, but especially for you, that the Lord will give you strength to cope with all this and that this latest operation be successful



Cat

 

[Blade]

Know that Jesus loves you both and hears you. Praise God, this will not be a part of your life. He, the Great I am is going to heal you and cause the finances to come. Now praise him.
Praying.

 

[Live4God]

YOU INDEED have GONE through Soo MUCH! PRAYing hard for YOU!
If YOU NEED a friend 2 talk to Please feel free YIM IM me (Yahoo) or Pm me
& I will give U my email addy! GOD BLESS YOU! Nick. L4G!

 

[Bartimaeus]

What I have, is called "Caudle (or something spelt like that) Regression syndrome, and if effects nerves in my bladder and colon..thus (as you might guess) Creating a few problems, I had it since i was born..but it really didnt bother me intill I was 12..I mean, it was just part of life for me, catheriseing..it was part of the day, just gotta do it. Below is something m ymom typed..bout all the surguries I've had..I'll try to explain in my own words what they did to me, and how I felt..but Some I dont even know. >>

1:T&A, and tubes at age 2 ½ . Removal of tonsils and adenoids. Put tubes in ears.

2:Cysto (age 3 or 4) Look in bladder. (They just figured out what was wrong)

3:Orchipexy and cysto repair of undescended ball : Some tube didnt move and they had to do it

4:Mitrofonoff stoma- took appendix to make tract for bladder catherization in stomach

5:Change of mitrofonoff catheter (Make the hole different so a new kind of catherter could go in)

6:Bladder stone (crushed stones with laser)

7:Removal of small fragments of the stones

8:Revision of mitronoff stoma: Went in and made opening bigger

9:Bladder augumentation took part of colon to make bladder larger due to small bladder

10:MACE took part of colon to make stoma for colon irrigations (Theese would proove to be..painfull, and..didnt work)

11:Open stone removal: Opened bladder and got the stones out

12:Revision of MACE stoma: Remade the opening for Irrigations
13:Stone laser: Blast em
14:Stone laser
15:Stone laser

16: On May 26th....its gonna redo the whole MACE thingy..and try to get it to work this time..I pray it works.
On the 25th..Gotta go in and stay the night ..I guess to flush me out completly..doc wants me clear >> then 26th the sugery..dunno how many nights I gotta stay overnight..I hope not too many

I'm just having a hard time going through this..I just keep remembering it not working before, but I'm gonna do my best to make the best of it.
Please pray for my Mom, she's havin troubles too.

Thank you all, and God bless.

Father, we lift our brother up to you. We pray that the doctors hands be guided by you, and that you give them the discernment and concentration they need to do what it takes to make this procedure work. We lift his mom up to you, Lord, that she may have peace during these hard times, and that she will trust and know that whatever is needed, you will provide. These things we pray in the matchless name of Jesus, Amen.

 

[Live4God]

Also PRAYing for Your Mom! GOD BLESS YOU ALL! Nick.

 

[AngelaHelene]

Praying for you and your mom.God Bless you as you go through all this.

 

[CM]

Thank you..all of you, it makes me feel so much better knowing I have people praying for me.
I'm going to go through this strong, I'm not going to let this get me down..not anymore. I know God's going to help Mom and me through this.
Thanks again, I feel stronger now.

 

[Bartimaeus]

You are very welcome.

 

[devoted daughter]

You have had to put up with so much- I'll pray for you and your family, but especially for you, that the Lord will give you strength to cope with all this and that this latest operation be successful



Cat

AMEN!!!

 

[CM]

I went in on tuesday and did the fun prep, didnt get any sleep that night, it was horrible..I was crying just to go home..but, We got through it. and then everyone came by before the surgery, and stayed with me a bit. Then it was time, they took me to the elevators and Jessica, my Mom, Mamaw, my uncle, and a few other peeps came with me, then they told them where the waiting room is and took me down this hall...it was weird seeing Jessica right before she came out of site. then they took me to the operating room and moved me to the other bed, put in the stuff to make the "sleep stuff o.o" Not burn as much..though it almsot put me to sleep. I just remember asking God to help this work. I woke up in the room..I seen Jessica and everyone else, it was really strange in a way, I was still out of it, but I think I asked how it went, and mom said it went good, they had to re-do the entire mace thing, but they got it working, and they went in and got a bladder stone out while they were at it. and I had to stay intill saturday at the hospital..wasnt really fun, but mom stayed with me..and Jessica came to visit a few times, so it wasnt that bad, got to eat first bit of solid food that day too..chicken, mashed potatops, and chocolate pudding..rather good.


I'm glad it went well.but I'm just worried about the irrigation part of it, starts monday (tommorow) put water down it..see if it flushes out everything. I'm just worroed about if it doesnt work..or wont all come out at one time, or..just stuff like that.

but thank you everyone for praying for me..thanks a lot.