I recently got diagnosed with SLE and am just wondering if there are any other CF members dealing with this who would like to talk or anything
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Lupus
- Thread starter meh
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I recently got diagnosed with SLE and am just wondering if there are any other CF members dealing with this who would like to talk or anything
blessedmomof5
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sorry i didn't see this post sooner, hope you are feeling well, my sister has lupus, so i know what she goes through. i will be praying for you meh
I recently got diagnosed with SLE and am just wondering if there are any other CF members dealing with this who would like to talk or anything
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I have Lupus, as well as SS too. I don't know if you're still around but I would be happy to talk and will pray for you.
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the.Sheepdog
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Mary I also missed this post. I am ashamed to say that. I will be praying dearly for you and your treatment. I am always here for you in whatever capacity you need or want dear one.
You have always been my favorite mod and my inspiration.
You have always been my favorite mod and my inspiration.
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Hi, not sure this will help you all or not, but it helped me deeply. I dealt with Lupus for 20 years and much pain. After coming to know the Lord, He began to show me that I was holding onto pain within my body, mostly emotional pain, that I felt was mine to hold and bear and it deeply effected my body. I also was a person sensitive to the pain others were feeling and often spoke that I wished I could take their pain from them. I did not see the depth of how emotional wounds of my own and that of others could effect me so deeply. When you have lupus, it is truly a focus of handling and managing and monitoring your pain, it keeps your focus on the pain and that it is there. When you are in that state of holding and managing your pain, it seems almost a daily job. Offer up to Christ your pain of any kind, physical, emotional or spiritual pain, it is His job to carry that, not our own. Once I began to look into my life and release the pain that was there to Him, my pain began to leave my body and I have now been off all meds for two years! Praise the Lord, have faith and keep offering to Him all you feel and ask Him to carry the pain for you. Do not fear going into the depths of your past to see the times where you have held onto pain for yourself or others, He will go with you and carry it all. Not sure that will help you all, but it deeply released me from the pain I endured.
RedRed
RedRed
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HisLittleHazelnut
Coming soon with new account... find me if you can
My husband is one of those rare men who have Lupus, right now he is in remission. He was in the middle of Junior year in college when he was diagnosed although it was clear he'd had it quite a while. He had to take five years off and now we're trying to finish our degrees.
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Hi!
I have Lupus, just not systemic. So they say. You could fool me cuz I have neuro involvement and now have to use a walker to walk. If I think about it I become depressed so I try to keep my mind occupied. I have chronic pain which in part could be the fibromyalgia. I've had Lupus for 26 years. How are you coping so far? What ways does the disease manifest itself in you? What medications did they put you on if any? I'm new so don't know what is available in the forms of communications here, but I do know how to answer a post. God bless you and help you cope.
I have Lupus, just not systemic. So they say. You could fool me cuz I have neuro involvement and now have to use a walker to walk. If I think about it I become depressed so I try to keep my mind occupied. I have chronic pain which in part could be the fibromyalgia. I've had Lupus for 26 years. How are you coping so far? What ways does the disease manifest itself in you? What medications did they put you on if any? I'm new so don't know what is available in the forms of communications here, but I do know how to answer a post. God bless you and help you cope.
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I am new here. I was diagnosed with Lupus 17 years ago. I take Prednisone for it. I had to quit work because of it. If you want, let me know your first name and I will put you on my prayer list.
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sampa
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meh - diagnosed with SLE nephritis. Its been along road to recovery this year. How are you doing? My hair is still growing back and I've been wearing wigs since last fall.
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Metal Minister
New Year, Still Old School!
meh said:
I recently got diagnosed with SLE and am just wondering if there are any other CF members dealing with this who would like to talk or anything
Same here. About 2 years ago. It's painful, and for the most part, manageable. I tend to get a flare about once a month or so that keeps me pretty much immobile in bed for about 24+ hours, but otherwise the meds keep me upright. I pray yours isn't as severe, and will pray for you!
May God Richly Bless you!
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Girl4God27
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I too have lupus. So I know hat you are going through and you are in my prayers much love, God bless!
much love, God bless!
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Girl4God27
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sampa
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Soon to take the wig off possibly in March. I've got two crowns (cow licks) on the back of the head and don't ever remember my hair this short. Its 6-7inches now.
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