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*The_Lords_Gizmo*

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Is there anyone else besides me out there having to deal with this? I was told about 2 years ago this was what I had and we figure I have had it for 20 years now.

I am looking for some good ways to deal with it without having to take meds. Any commits are weclomed.

TY and GB
 

2scoops

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I can tell you three awesome books that have done wonders for myself. Doctors do not know how to treat fibromyalgia, nor any other chronic pain syndrome for that matter. Fibromyalgia from what I understand is you have to have pain in at least 11 out of 18 points. Symptoms, like IBS, ulcers, acid reflux, Carpal Tunnel, CFS, brain fog, etc. seem to be common also in people with Fibro. I have had chronic back pain for over two years and these three books, The Mindbody Prescription by John E Sarno, Deadly Emotions by Don Colbert, and A More Excellent Way by Henry Wright, are the only things that worked for me. I am almost pain-free after debilitating pain. SArno is the only doctor I know that has success "curing" fibro. Another book you may want to check out Freedom From Fibromyalgia by Nancy Selfridge.
 
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heron

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I've known some people with it, and they hate it!

Some doctors have put their patients on low-carb diets for this, testing whether there are localized infections or parasites (not showing up in blood stream white blood cell/antibody tests) and have found some success with it. There are some related writings on acidity, but some of the sites have conflicting suggestions (oranges: acid or base in the long run?).

They mix the low-acid, low-carb intake with some natural immune boosters/antibiotics like oregano oil or goldenseal to help fight off any viruses/yeasts/bacteria that were established and feeding off the easily-digested foods.

Here's some interesting correlation with influenza-A (precipitated by)
http://www.thorne.com/altmedrev/fulltext/fibro.html

and a study on mycoplasmal infection
http://www.rain-tree.com/fibromyalgia.htm

When I know things are off balance in me, I also take alfalfa pills and eat lots of fresh parsley...it seems to help.

In the meantime, so sorry you have had to deal with such pain and detriment. Welcome to the forum!

Lord, hear The_Lords_Gizmo's prayers, and bring information to light that pertains to her situation. Give her insights that will lead to relief and better quality of life! And bring your direct healing touch on her as well. Strengthen her trust in you, give her a powerful and effective life, so her focus can shift and she can enjoy activity more. Thank you for your love for her.
 
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2scoops

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Well, I did not have fibro, but I did have chronic back pain for over two years, I mean real bad burning that ruled my life. Pain, fear and worry consumed me. I had been to a othopedic surgeon, neurosurgeon, chiro, p.t, pain management, etc. I tried many treatments just like many of you have. But I got no relief. I used to go to a back message board, becuase I felt maybe surgery was the last resort. Surgery results are mixed, it seems like no one ever got pain-relief. So, one day some posted a book called Healing Back Pain, said it cured them. So I was like yeah right, I thought it was a book just like all the others, you know change the diet, do back exercises, heat and ice, blah, you know what I'm talking about. So, out of desperation of not going under the knife, I got Healing Back Pain from the library and read the book and I thought , this is the answer to my back pain. Been "healing" every since. What is so special about Sarno is that he believes that many disorders, such as fibro, chronic pain, carpal tunnel, RSI, acid reflux, tendonitis, tennis elbow, knee pain, back pain, ankle pain, etc. are caused by repressed emotions. no oblviously if there is severe traum to a body part, then there is a real injury and all pain syndromes need to be check out by a doctor, to rule out serious disease.

Why does Sarno work, why is his success rate over 95% in dealing with these syndromes, becuase he knows the cause. Doctors do not know the cause, they simply treat symptoms. Touble is, is that there are not many people willing to accept Sarno, because he goes against traditional medicine. His program is about knowledge, learning about yourself and what is causing the pain. Sarno used to be an orthopedic docotr, but he started seeing traits in his patients, that had him come to a theory. His patients had all or just some of these traits, perfectionists, drive to succeed, goodists(meanin trying to please others, and going to great lengths to do so), worriers, low-self esteem, hard on themselves, etc. When I read the book, I was reading myself, I had made a connection. Sarno believes these pressure we put on ourselves, caused us to have changes made in our bodies. I mean, have you ever worried, and got a stomach ache, headache, etc. There is a direct correlation between our minds and our bodies, and eveyone has had a symptom once in their lives. Traumatic events in people's lives also cause this pressure and rage. As these life pressure, life events accumualte, that causes a different state in the body, it affects, the muscles, tendons, nerves and ligaments.

All the parts of the body that are affected with the pain syndrome Fibromyalgia. This is hard for some to accept, but those who do get amazing results, it may take time, but it's great to know there is hope for the sufferer, it took me almost a year, but has been well worth it. You've got to be able to say to yourself, this is caused by my personality, emotions, repressed anger,etc. You have to know the cure lies with knowledge. There i nothing wrong with your body, etc. I know that sounds strange but it works. I then read Colbert's Deadly Emotions, because he believes in the Mindboy-Spirit. Sarno is not a christian, and Colbert gives examples of patients going through symptoms that get better, with knowlwedge, and submitting unto God. Wright believes,most pain syndromes and diseases have a spiritual root, like fear, anxiety and worry. I have to agree with all three men and they all make good points and have totally changed the way I think. But the most important thing they all do, is the find the cause, the root. Everyone is different and finding the cause is more introspective, you have to examine your life. Most people I know with fibro, were female, have been divoriced, driven, and wanted to please eveyone, but when someone did something wrong to them, they kept that bitterness and rage. on the inside they are hurting and angry, but on the outside they try to seem llike everything is ok, they repress emotion. I am also describing myself by the way. People will continue to have these symptoms if the root is not found out, and healed, and I know a guy named Jesus, came to this world to die for those types of things.

Sorry this is so long, but I want to make another point from Sarno. He says people can have so much emotional pain(sexually abused, verbally abused,), anger, etc. that the mind gives us physical pain, to take our minds off the emotional. From experience I can say this is true. I use to worry, put so much pressure on myself, that I made myself sick, but when I got the back pain, suddenly, I did notfeel that way becuase I was so focused on the back pain. Any way, I hope you look into this, beucase it totally changed my life, and I longer see pain the same.
 
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heron

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The long post was great!

"Most people I know with fibro, were female, have been divoriced, driven, and wanted to please everyone" --true with those I knew. That made it even worse, because people treated them as if they were chronic complainers and made up the disease; they simply had a lot to complain about! And no sympathy.

Some more insight into the mind-body connection...remember Bio 101 class: when we are posed with danger, our body releases adrenaline and other fight/flight chemicals to stimulate us into action. Now extend that into a long-term stress situation. In fear, chronic stress, we continue to release these toxic substances. Instead of healing ourselves, we make our health worse. Also--in maintaining our pride being type A's or busier than the next person, we continue to beat on our body this way.

That was useful information, and makes a lot of sense. Thanks!
 
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Interesting post re Colbert and the connection between fear and anxiety and pain. Stress can certainly tighten the muscles and make knots. I believe there is a connection.

I had terrible back pain after a car accident (a driver ran a red light and hit me just behind my driver's side door). I went through the same intersection every day on the way to work. I realized I was harboring unforgiveness toward him. After I started praying for him and choosing to forgive him in Jesus name each time I went through the intersection, the pain went away. Now it only hurts when I do too much, and the pain always goes away. Praise God!

Pain is not from God. I'm praying for you Gizmo.
 
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2scoops

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heron said:
The long post was great!

"Most people I know with fibro, were female, have been divoriced, driven, and wanted to please everyone" --true with those I knew. That made it even worse, because people treated them as if they were chronic complainers and made up the disease; they simply had a lot to complain about! And no sympathy.

Some more insight into the mind-body connection...remember Bio 101 class: when we are posed with danger, our body releases adrenaline and other fight/flight chemicals to stimulate us into action. Now extend that into a long-term stress situation. In fear, chronic stress, we continue to release these toxic substances. Instead of healing ourselves, we make our health worse. Also--in maintaining our pride being type A's or busier than the next person, we continue to beat on our body this way.

That was useful information, and makes a lot of sense. Thanks!

I'm glad your open to that. Many people get angry with me when I tell them about the emotional cause, because they think I'm saying the pain is all in your head. I even had one lady tell me that she wished I had the pain and she wished I suffered like she did. I told her, well I did suffer and these books helped me, and that I know the pain is very real, and can be disabling. This is good news, not bad news. Now that we can see the REAL cause, then we can work on that. I know many believe that stress can increase symptoms, but they do not believe these tensions can cause, chronic pain, RSI, fibro, etc. But they do. The cure is not in a pill, the cure is in finding these emotions, and turning them over to the Lord. You made a good point about making ourselves worse. I originally went to the doctor for back soreness. he told me it sounded like I had what he had, which he had back surgery for. So he ordered an MRI and sure enough they found a "problem". So I took it easy, stopped doing the things I enjoyed, because I was afraid to hurt myself. After a year of my CT Scan, I got chronic pain. Real bad burning in my low-back down into my legs, and feet. I pretty much layed in bed all day, depressed, angry and in total pain. No one wanted to be around me and I got very lonely. I was programmed by those doctors, they did nothing but made me worse and they put a fear in me. That fear blew into chronic pain. Oh and the nerve damage they told me I had, it's gone. Why because I never had nerve damage, I had something else, that affected my nerves, tendons and muscles. SArno helped me get my strength back and helped me slowly rid myselfof the fear of physical activity. You know we have all these phobias, fear of spiders, the dark, but there is also fear of physical activity when these doctors tell us we have "structural problems".

I also wanted to expand on Fibro. Henry Wright in his book said what he also felt the cause of fibro is. He said the lack of male leadership in the home. He said women want to be cared for, spritually, emotionally and physically. They were made to love their husbands and let them lead there household. But he said most men have failed in that area. Causing the women to have to take that role, causing more stress, and pressure on themsleves and they are not created to be that way. God created man to take that role. I thought that was really insightful. I wastalking to my friend this weekend, she was just diagnosed with fibro and just went through a divorice a couple of months ago. So it was very easy for her to accept what I had showed her I learned throughthose three books. When I told her about the lack of a man being a spiritual leader in the home. She was in total agreement, and she told me that she never thought of it that way, but she did believe it had something to do with her pain. It is such a blessing to see when people start making these connections, and see that they have hope of becoming healed. She told me, that she had to get the divorice because her husband stopped going to church, praying and hit her child. He was not a godly husband that he pretended to be when they were dating. So she made that connection with her pain and destroyed marriage. I am gonna give her these books so she can heal. It is such a blessing, and for eveyone that does not believe me when I talk about this stuff, which is most people, but when that one accepts and starts healing, it is well worth it. One lady I talked to, said she read the books and about a month later got rid of her chronic back pain and migraines. She told me she used to stay in bed for days at a time. I had posted about Sarno on another message board, and she told me the day before she prayed to Goid that someone would come along and tell her why she had the pain and the next day I posted about Sarno and she got her answer. God works in mysterious and awesome ways. I almost did not post that day because a lot of people will not accept emotions and health, but god worked it through. God may not always touch and heal us, but I tell you what, He can give us the knowledge and wisdom to turn these tensions over to Him and allow us to have this pain leave our bodies, maybe quickly or maybe little by little.
 
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2scoops

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*The_Lords_Gizmo* said:
Very useful information.....And hits close to home...I can total relate to it. It gets boring reading the same ol fibro infomation.....this is all new info and I apprciate it..Thank You!

You sound like your open. I have a strong feeling that if you looked into these books, you can bring about a healing. It does take work, but your relationship with Christ will become stronger and you will be able to not allwo some of these life pressures hold you bondage. You will be able to change the way you think and see life differently. What a blessing that is and what power that is. God did not give us the spirit of fear, but of power and of love and of a sound mind. That is what God wants us to enjoy, not Satan's lies. God gave us Jesus that we might live our lives more abundantly. That's good news. Plus those books that I read, gave me hope, and that was something those doctors could not do for me. But I knew the new knowledge I had learned allowed me to see that not only was I going to be changed, but become pain-free. That;s exciting news.I pray that God bring s you healing. But I know most of the info you probably have on fibro is incorrect, that's why just about eveyone who has fibro just has to live with it, but you don't. God bless, and I know you will get over this valley.
 
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Wildwood said:
Interesting post re Colbert and the connection between fear and anxiety and pain. Stress can certainly tighten the muscles and make knots. I believe there is a connection.

I had terrible back pain after a car accident (a driver ran a red light and hit me just behind my driver's side door). I went through the same intersection every day on the way to work. I realized I was harboring unforgiveness toward him. After I started praying for him and choosing to forgive him in Jesus name each time I went through the intersection, the pain went away. Now it only hurts when I do too much, and the pain always goes away. Praise God!

Pain is not from God. I'm praying for you Gizmo.

You mka ea very strong point. Pain can be directly related to unforgiveness, harboring anger towards someone. When our bodies are injured in an accident, it usually heal itself, unless you in a pretty major accident and there is a lot of damage. After that time of healing, which usually takes no longer than a month, now I am saying usually, and I know there are cases that say otherwise. But after that time if your still having pain, I believe it because we harbor anger either at ourselves for causing the accident, or against the driver who had the accident. Then we also have to think of the rage and worry that builds up from, we may have to take time off work, who will take care of the kids, especially if it's a single mom, how will I make my car payment, who will cook dinner, etc. Not only does that add to the rage, then you add guilt and shame and the pain continues. just some food for thought. But very good observation Wildwood.
 
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Zita123

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I would NEVER wish this on anyone!! I will pray for all that have it! I do not get any sleep at night because the pain is too intense! If I turn over, My husband has to get up and physically turn me on my side, But, then my arms are in so much pain, I have to wake my husband up again and he has to come over and physically pick me up and stand me up! He is a firefighter so when he sleeps nights, My 16 yr old daughter has to do it! I get so upset that I have to have her sleep with me and wake hre up all night! I feel that I should be taking care of her not the other way around!!
My pain shoots from my feet to my head!NO amout of meds took the pain away. I just have to learn to live with it. I'm sure that with all my praying , that someday, I might be healed!
GOD BLESS YOU ALL FOREVER!!!!
Zita
2scoops said:
You mka ea very strong point. Pain can be directly related to unforgiveness, harboring anger towards someone. When our bodies are injured in an accident, it usually heal itself, unless you in a pretty major accident and there is a lot of damage. After that time of healing, which usually takes no longer than a month, now I am saying usually, and I know there are cases that say otherwise. But after that time if your still having pain, I believe it because we harbor anger either at ourselves for causing the accident, or against the driver who had the accident. Then we also have to think of the rage and worry that builds up from, we may have to take time off work, who will take care of the kids, especially if it's a single mom, how will I make my car payment, who will cook dinner, etc. Not only does that add to the rage, then you add guilt and shame and the pain continues. just some food for thought. But very good observation Wildwood.
 
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2scoops

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If anyone is interested, checkout a website called www.tmshelp.com. There is a message board there and people that post there have had success in eliminating the pain from fibro. Here is another site that explains Sarno's theory. http://www.tarpityoga.com/tms.html
 
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*The_Lords_Gizmo*

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I posted this on the other FM thread...figured I would put it here to....
# Fatigue that interferes with work and daily activities.
# Sleep problems (difficulty falling or staying asleep, waking up feeling tired).
# Morning stiffness lasting less than an hour.
# Constipation or diarrhea related to irritable bowel syndrome.
# Memory problems and difficulty concentrating.(Cognitive/Memory Impairments) ("brain fog")
# Numbness or tingling in the hands and other parts of the body. The skin may be ultrasensitive, reacting to a firm touch with tingling, numbness, or a "pins and needles" sensation.
# Anxiety or depression.
# Widespread pain .. Persistant Pain in muscles and ligaments
# Tenderness in the neck, shoulder, knee, elbow, or upper buttocks or thigh areas.
# Mood changes. Mood Swings/Disorders
# Irritable bowel syndrome.
# Headaches, sometimes migraines.
# Abdominal pain.
# Bloating.
# Constipation.
# Diarrhea.
# Environmental Sensitivity
# Dizziness
# Impaired Coordination
# chest pains and pressure beneath the breast bone
# Sinus and Allergies
# Dry Eyes and Mouth
# Intolerance to Heat or Cold
# Temporomandibular joint dysfunction (TMJD)
# Mitral Valve Prolapse (MVP)
# Restless Legs Syndrome and Nocturnal Myoclonus
# Raynaud's phenomenon
# Scoliosis
# Fibrocystic breast disease and endometriosis
# Reflux (Gerd)
# rheumatory arthritis
# nighttime grinding of teeth (bruxism)
# water retention and swelling; especially in the hands, face and feet
# pelvic pain
# 18 out of 18 "tender" points
# worse PMS

So far these are the ones I deal with regularly. Not all at once but many a day...Each day is different and new. Its scary cause you never know what the next day will bring.
 
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I also have everything you wrote!! I can't believe someone has this problem as bad as me. I am in so much pain everyday it's unbelievable!! I can't work, When I sleep it's only for a little while because any side I lay on , I have to wake my husband up to turn me over and then to pick me up out of bed. Usually I can't stand any more by 3 or 4 am. I'm so tired. I went all the pain meds route , that did nothing but make me have an addiction. Now, I'm also bipolar, so I have anti depressants, bipolar meds , serequol, klonipin, soma.
I don't want to be so long winded. but, I am glad I saw your thread!
GOD BLESS YOU! I will pray for you!
Zita
*The_Lords_Gizmo* said:
I posted this on the other FM thread...figured I would put it here to....
 
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*The_Lords_Gizmo*

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heron said:
Oh-oh-oh that reminds me. Everyone, check for black mold in your house.

"Toxic effects [of stachybotrys] at relatively low doses include rashes, mild neurotoxic effects such as headache, nausea, muscle aches and pains, and fatigue. The immune system may also be affected resulting in a decreased resistance to infections."

http://www.doh.wa.gov/ehp/ts/IAQ/MoldStachybotrys.HTM
http://www.cdc.gov/nceh/airpollution/mold/stachy.htm
http://www.mold-help.org/stachybotrys_chartarum.htm
...


The house I lived in a few years back had the black mold real bad.....plus the pole yard down the road was contaminating the ground.....my now 4 year old developed breathing problems so bad she was having attacks, turning blue, was on treatments round the clock for her first year in life, ended up haveing allergies to animals and dust. The we were finally able to move out of there and within just 2 weeks she no longer had to take one simple med of any kind, we can have animals, and dust doesnt bother.....she dusts my house for me now!. It was totally amazing!
 
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