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Is there anyone there?

Michie

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So glad you got those letters out angelica. I believe it is the right thing to do. You are not only advocating for yourself but other disabled people. Thus neglect should never happen in a Church.
 
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anjelica

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Thankyou Michie. The priest is solid in what he is doing. He refuses to change.

On sunday we had a dreadful time. I really really needed to be peaceful in Church because I had had some very bad news about my heart during the week. I had also had two men from Social Services visit me who were bullying and intimudating and I had thrown then out of my house. I was very upset. It put my heart rate up to 175 and my oxygen levels dangerously low. I had had torest in bed for a couple of days.

So we went to Mass and I really really wanted to be there. I needed it.

We could hardly get a space at all, to be honest. We had to sit at the back against a pew that had bern placed against the back wall of the octagonal Church. Here wasnlittle space in front of us, as the Gifts table was there, and there was a large bookcase near to us with the hymn books in. There was another pew at the side of us in the bit that starts to go octagonal so it was slanting next to us.

We were sitting there waiting for Mass to begin, and ppl were coming in past us, knocking and banging us. I felt ill but still wanted to be there. It is my life. I need to go. I was in pa in because eac h time someone banged me it hurt. It hurt my back and sides. Which always hurt butnit caused excruciatingmpain to be knocked.

Mass began, but children were running around all over at the back, and running onto our feet which only had sandals on. Bob kept getting kicked by a littlebgirl next to him who insisted on swinging her legs LOL. Her mumdid not tell herbto stop kicking him.

Anlady had come up to us before Mass and said that Fr would bbring Communion to the back to us IF HE SAW US! He would NOT see us because there were 600 people in front of us! And of course they were mostly stood up and we were low down in our wherlchairs.

When the children went out for the Childrens Luturgy they came padt us and walked and jumped all over us. There was so little sp ace. In fro nt of us. Then when they came back. The same. Thing happened as they gathered round the. Gifts table to take the Gifts up. It was just awful.

We got as far as the distribution of Communion, and I said to Bob that we had to leave because I was feeling so ill. He wanted to leave too.

Straight after Mass would have finished Bob rang the priest. The mpriest said he would try and make a. Bit. More s pace for. Us at the. Bac k. Bob exol ained to him that it was al so the littlenkuds running around screaming all through Mass, and that their shrieks wen t through a sick person, and that we love children but c annot cope with that. He told. Him that when you. Are blind, all you can know is screaming, hear their fert running around close to you, not knowing quite where they are andnif they are suddenly going to run into you.

The priest refused point blank to let us go to the front future. He is not going to budge.

I was in tears by this tim because I was losing my beloved Catholic Church. We are converts and we lovenit deeply.

So Bob then rang up the priest of thenonly other Catholic Church in town, and asked if we could still havenour places at the front back at that Church. He was exceedingly friendly and said we could and it would be good to see us. But he is the one who would not bring me Communion when I had cancer, and other things too. We also have the geavy doors problem there.

We have not been to Mass anywhere all week because my fight has gone. My strengthmis depleted.

I told the firstmpriest in my,letter how mych I love God and how much I want to bebthere because there, i get my strength to carry on. I explained all the problems to him. Mi know he will not respond. They dont round here.

I amstruggling horribly with my health, feeling isolated, uncared for, and a whole host of other things.

My husband is much much better than he was, which is why I am notngoing the route I had decided on. Mi do love him and always have. Yes, henis a control freak, but henis verynsick too, and henis realising he has to let go the controls. When ge fell out of thempatio window themother day he cried as I cradled him in my arms. He is truly at the end himself, physically.
 
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Michie

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I have said it before but I am stunned how anyone can justify this neglect in Christianity. It really makes me sick!
Thankyou Michie. The priest is solid in what he is doing. He refuses to change.

On sunday we had a dreadful time. I really really needed to be peaceful in Church because I had had some very bad news about my heart during the week. I had also had two men from Social Services visit me who were bullying and intimudating and I had thrown then out of my house. I was very upset. It put my heart rate up to 175 and my oxygen levels dangerously low. I had had torest in bed for a couple of days.

So we went to Mass and I really really wanted to be there. I needed it.

We could hardly get a space at all, to be honest. We had to sit at the back against a pew that had bern placed against the back wall of the octagonal Church. Here wasnlittle space in front of us, as the Gifts table was there, and there was a large bookcase near to us with the hymn books in. There was another pew at the side of us in the bit that starts to go octagonal so it was slanting next to us.

We were sitting there waiting for Mass to begin, and ppl were coming in past us, knocking and banging us. I felt ill but still wanted to be there. It is my life. I need to go. I was in pa in because eac h time someone banged me it hurt. It hurt my back and sides. Which always hurt butnit caused excruciatingmpain to be knocked.

Mass began, but children were running around all over at the back, and running onto our feet which only had sandals on. Bob kept getting kicked by a littlebgirl next to him who insisted on swinging her legs LOL. Her mumdid not tell herbto stop kicking him.

Anlady had come up to us before Mass and said that Fr would bbring Communion to the back to us IF HE SAW US! He would NOT see us because there were 600 people in front of us! And of course they were mostly stood up and we were low down in our wherlchairs.

When the children went out for the Childrens Luturgy they came padt us and walked and jumped all over us. There was so little sp ace. In fro nt of us. Then when they came back. The same. Thing happened as they gathered round the. Gifts table to take the Gifts up. It was just awful.

We got as far as the distribution of Communion, and I said to Bob that we had to leave because I was feeling so ill. He wanted to leave too.

Straight after Mass would have finished Bob rang the priest. The mpriest said he would try and make a. Bit. More s pace for. Us at the. Bac k. Bob exol ained to him that it was al so the littlenkuds running around screaming all through Mass, and that their shrieks wen t through a sick person, and that we love children but c annot cope with that. He told. Him that when you. Are blind, all you can know is screaming, hear their fert running around close to you, not knowing quite where they are andnif they are suddenly going to run into you.

The priest refused point blank to let us go to the front future. He is not going to budge.

I was in tears by this tim because I was losing my beloved Catholic Church. We are converts and we lovenit deeply.

So Bob then rang up the priest of thenonly other Catholic Church in town, and asked if we could still havenour places at the front back at that Church. He was exceedingly friendly and said we could and it would be good to see us. But he is the one who would not bring me Communion when I had cancer, and other things too. We also have the geavy doors problem there.

We have not been to Mass anywhere all week because my fight has gone. My strengthmis depleted.

I told the firstmpriest in my,letter how mych I love God and how much I want to bebthere because there, i get my strength to carry on. I explained all the problems to him. Mi know he will not respond. They dont round here.

I amstruggling horribly with my health, feeling isolated, uncared for, and a whole host of other things.

My husband is much much better than he was, which is why I am notngoing the route I had decided on. Mi do love him and always have. Yes, henis a control freak, but henis verynsick too, and henis realising he has to let go the controls. When ge fell out of thempatio window themother day he cried as I cradled him in my arms. He is truly at the end himself, physically.
 
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anjelica

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Thankyou Michie. It makes us sick too. We can hardly believe it either, and I think that is part of our pain as well. That they are so unchristian. I don't get it.

Yet when I landed at the Anglican church in tears after all this, they treated me like a queen. Sondifferent. But I am CATHOLIC!
 
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anjelica

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I am sorry to say I am going downhill fast again.
Life is SO hard, and I fight SO hard, but i am on my own in it here where I live. Lots has hap pened this last week, and it has drained my strength and. My. Wi ll has g one.

I had a b out of "the runs" on Wednesday night which knocked me for six, but also I have had someone come from Social Services again, to be granted a paltry two hours a week personal assistant! assistant . I could have puked.

I am very very lonely. I feel hurt by the Church, and a s if no one c ares. I have done all that I can to reach out but it does not work.

We ARE going back to our old Church, but jyst because we have a place to put our wheelchairs there. There will be little help from there but at least we will be in Mass.

I am feeling very verymlow indeed, and. Am giving up almost. Thankyou for taking the time to read this.
 
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Anhelyna

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It's so sad that the care which the Government says is your right - is actually not available in your area. Yes Local Government is strapped for cash - they are having to cut back on lots of things - but it doesn't always seem to be the obvious stuff they cut back on :(
 
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anjelica

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Well the personal assistant was just to take me to the supermarket. But they will not take me in my own wheelchair. They would put m e in their car and then go. Ge t the st ore wheelch air and push. Me ro und. The re is a LOT wrong wit h tha t. My mow n wh erlcha ir d oes. Not caus e more pa in in me. It. Is F. OR me. A st ore one w ould. There a re lots of other reasons why. That is far from ok too.

I am getting tired of the fight becausempeople do NOT understand. I have to PROVE everything. People just do not see what is before their eyes. I am very very alone and isolated by virtue of my disabilities. I try to be outgoing, confident, and ha ppy, an d giving to others. I have run out of steam and turned into a very exhausted frightened person who feels c ut off from others and scared stiff. Mi am getting afraid of going out. I am going downhill very fast now. The worst I have bern in a long long time.

And I want to be with irdinary ppl too, and not pushed off into just disabled groups, blind groups etc which are fine and useful but I want to be part of normal society because I am still a person.

My strength has nigh on gone and I am vvery very scared.
 
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anjelica

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The other thing is that in order to push the problem away, ppl often blame me in a sense by suggesting that I am not doing things. It is as if i have to fit their moulds and their ideasnof whatni should do and what ishould be. Mi am jyst sick of life. Nblaming the victim is endemic
 
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benedictaoo

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I am sorry to say I am going downhill fast again.
Life is SO hard, and I fight SO hard, but i am on my own in it here where I live. Lots has hap pened this last week, and it has drained my strength and. My. Wi ll has g one.

I had a b out of "the runs" on Wednesday night which knocked me for six, but also I have had someone come from Social Services again, to be granted a paltry two hours a week personal assistant! assistant . I could have puked.

I am very very lonely. I feel hurt by the Church, and a s if no one c ares. I have done all that I can to reach out but it does not work.

We ARE going back to our old Church, but jyst because we have a place to put our wheelchairs there. There will be little help from there but at least we will be in Mass.

I am feeling very verymlow indeed, and. Am giving up almost. Thankyou for taking the time to read this.
We are here and we care. I wish I could do more.
 
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anjelica

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Thankyou bene.

Well, this morning I had not even the strength or will to ask God to help me. I had given up. Just felt so exhausted and weak and ill. Tears were pouring down my face and were coming unbidden. Then later in the morning I summoned up the strength to say "Jesus help me." Then I asked hubby to ring the Chairman of the Pastoral Parish Council at the church where we had to sit at the back. He told him all about what had been happening, and he was really upset and is going to see Father tomorrow. He does not understand what Father's problem is. I have already written to Father, nd Bob has spoken to him twice on the phone. Bob also wrote to the Bishop. Via email and sent it yesterday. He cited. Pope. fra ncis to o, and his caring for the disa bled and sick and re minded him of his directives. It was a good letter.

Then a few moments ago. I got an email from Social Services saying they want to come again. I agreed to it but am worried as it puts my geart rate right up when they fail to deliver and fail to understand our needs.

So I am feeling slightly better but still very tearful, which is not like me at all.

Thanks for your caring and prayers
 
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anjelica

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Thankyou Stabat.
An amazing thing has happened - my husband sent the letter he sent to the Bishop to Cardinal vincent Nicholls, archbisop of Westminster, as well. He has eeplied, so kindly, sending us both his blessings and praying for God's blessings on us both. This happened only a day after my husband sent the letter. He will now be watching, no doubt, to see how Bishop Patrick reponds. Mwonderful.
 
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