fibro, my skin hurts to touch

[bugaboo]

To answer the OP... I am really sensitive to touch a lot of the time. Some days you can tap me on the shoulder and I can still feel it ten minutes later. Some spots are worse than others. My arms and legs seem to be the most sensitive.

 

[Kuraisto]

I have syringomyelia, which is a rare degenerate spinal cord disease. I've noticed what seems to be many similarities between fibromyalgia and the pain caused by syringomyelia. This made it obvious to me that fibro is a neurological disease; I'm disturbed by how long it has taken the rest of the medical community to stop referring patients to rheumatologists. Actually, many still do. Anyway, about the subject. I've found that my skin is oddly sensitive from the shoulders and chest up. It's like there is a certain dullness, but at the same time a definite sensitivity to light touch. It makes it difficult to go to sleep when I can feel my clothes and sheets touching my skin and it is aggravating. I don't think it's painful, but I don't think it's normal either. Sometimes it even feels nice to be lightly touched in that area.

 

[HappyChicken]

I was diagnosed with Fibromyalgia a week ago. I'm now taking Lyrica for it. Anyone else on Lyrica?

 

[Blank123]

nope, i've never taken it. I've heard some pretty mixed reviews on it so i'm not sure if i really wanna try it, heh.

how has it been working for you so far?

 

[Brother Jason]

I was diagnosed with Fibromyalgia a week ago. I'm now taking Lyrica for it. Anyone else on Lyrica?

It works wonders for some people, didn't work for me.

 

[HappyChicken]

nope, i've never taken it. I've heard some pretty mixed reviews on it so i'm not sure if i really wanna try it, heh.

how has it been working for you so far?

So far, its given me some relief from pain! There have been moments where I have had excrutiating pain though....but I'm on a very low dose so far, and hoping to increase. I have had minimal side effects, increased thirst and appetite, and more frequent urges to go urinate. But nothing remotely unbearable. It's worth giving a try, in my opinion. Especially if you start with a low dose to avoid harsh side effects. I'm going to start watching my diet and exercise more because I dont wanna get fat, but if I have to gain a few pounds to be pain-free, I'm willing to do so.

 

[nannymaroon]

Hi,

I know how you feel I have CRPS/RSD and sensitive skin is part of the parcel!! I use desensitization to allow myself to wear clothes, socks and shoes when I have to. I find that breezes are the most painful, especially in areas I keep covered all the time, ie my legs and feet.

Take care

Mel x

 

[waynebo]

I've had fibro for 19 yrs now and yes my skin has been very sensitive/painful.Clothes hurt,people touching me,hugs are not for me anymore.I have had people come up and give me a welcoming slap on the back and bring me to my knees,i'm 6'2" 250lbs.

Its hard to live with,hard to have a life.No one can see the physical pain and therefore look for you to carry on as normal,i can't remember what normal is like now.
If you don't have depression you probally will after a few years,it took about 3 yrs and it finally hit me i would always be in pain and then depression set in,now bi-polar from all the stress and greavances i've had to deal with.
The old saying"what doesn't kill you makes you stronger" does not apply here,it continually degrades your life,i live for faith now.

 

[Hockey_Fan]

Wow, looks like I'm not the only male. Just found out about this recently.

How the heck can you have something your entire life and never have serious symptoms until you're in your 40s?

 

[HappyChicken]

So far, its given me some relief from pain! There have been moments where I have had excrutiating pain though....but I'm on a very low dose so far, and hoping to increase. I have had minimal side effects, increased thirst and appetite, and more frequent urges to go urinate. But nothing remotely unbearable. It's worth giving a try, in my opinion. Especially if you start with a low dose to avoid harsh side effects. I'm going to start watching my diet and exercise more because I dont wanna get fat, but if I have to gain a few pounds to be pain-free, I'm willing to do so.

I just found this area of the forum!! HELLO FELLOW FIBROMITES!!! I take lyrica. so far i'm on 75mg's three times a day. I get all the same side effects listed above....and i had some blurred vision while getting use to the dose...but the vision corrected itself and all the side effects I have had are very tolerable compared to the pain. I still have very bad days...but its better than it was.

 

[seajoy]

My doctor would not put me on lyrica because I take so many other meds. I do take Nabumatone for my pain.

 

[Blank123]

have any of you noticed how diets affects your fibro? I've been playing with a semi-vegetarian diet (i try to limit myself to white meat on an occasional basis) and even though at first my flareups were more intense than i've ever felt them now my symptoms have gotten so much better. can't say i'm cured by any means, but i do feel like i've gotten a big part of my life back

ETA: not that i'm suggesting such a diet would work for everyone, because we all know fibromyalgia is not a uniform condition. what works for one may not work for another. but i am curious to see how many others are affected by diet.

 

[bunnys4me]

Today is a very bad pain day.
My skin even hurts to touch. Has anyone else had that?
Even the hydrocodone isn't helping the pain today.

Sorry, I just needed to talk.

I am having the same problem I hurt all over and it has been getting more painful than ever. I cannot do anything anymore I hurt. My job at work is shopping grocery orders for tug boats and crew boats. This is and all day shop. I have been doing this for 7 1/2 years and I struggle but with a smile most of the time. I don't know and my doc keeps trying everything and it doesn't work. My legs and arms hurt so much. Cannot bathe no more cannot get out of the tub. I am 46 and I need help

 

[seajoy]

I am having the same problem I hurt all over and it has been getting more painful than ever. I cannot do anything anymore I hurt. My job at work is shopping grocery orders for tug boats and crew boats. This is and all day shop. I have been doing this for 7 1/2 years and I struggle but with a smile most of the time. I don't know and my doc keeps trying everything and it doesn't work. My legs and arms hurt so much. Cannot bathe no more cannot get out of the tub. I am 46 and I need help

I'm sorry you are suffering so much. I'm 46 as well. I stinks to be our age and having so much trouble.

Talk some more to your doctor. Perhaps you need to be on disability. I'm trying for it right now.

May God keep you in His care.