- Oct 22, 2019
- 8,115
- 2,550
- 44
- Country
- United States
- Gender
- Male
- Faith
- Baptist
- Marital Status
- Single
Well, first off, my liver enzymes are getting too high and so my Rheumatologist wants to drop methotrexate and see if my liver enzymes come back into normal range. If they do, well then we drop one medication that was keeping my disease in remission, and if it doesn't well then my liver's been damaged and matters are even worse. But in the mean time, I have to drop it for a few weeks, and just.. risk falling out of remission and into full blown flares again.
To make matters worse, my mother wants to move across the country to be near my sister and her 3 children, it's understandable but.. I don't have the means or capability to live on my own. I lived with the untreated disease LOOKING for effective treatment for years, the damage piled up to where I'm disfigured and have bone spurs that make walking difficult for more than a few hundred feet at a time... so I'm dependent just to live, disabled and even if I was financially independent, I'm not physically capable of a lot of tasks. The issue is. one of the drugs that I also use to keep myself in remission the past few years.. is medical marijuana. My sister lives in a state where it's illegal, even medically.
So while my mother is convinced that the cops would just look the other way and that I can somehow find access to it like a college student, I'm not, it'd be going against Romans 13 as it is.. so we're looking at me suddenly losing 2 out of 3 medications to control my condition. The 3rd.. does the least amount of good, like it helps for general stiffness but does not prevent, or alleviate acute flares.
Prayer for healing has been ignored, for years and years and years.
I don't know how I'm supposed to bear with years of my immune system actively torturing my body with no end in sight aside from dying. The only thing that kept me going the first time around for years was actively seeking effective treatment.. but now that we found effective treatment and the plug is being pulled on it.... I got nothing.
So my options seem like.....
1. Keep telling my mom to be more patient, wait for the laws to change, and see if we can find a replacement for methotrexate, in which case I feel like I'm unduly burdening my family, I admit, it's not fair for me to expect her not to move.
2. Make the move with her and just.. suffer. I don't know how much of it I'll be able to bear.
3. Stay here but be homeless, without a vehicle, and I have no idea what would happen to me... probably freeze to death. I suppose there is options for homeless veterans but.. on federal government property, and without the means to acquire MMJ and it'd be illegal on the federal government property I'm left in the same condition as making the move, suffering because my disease comes out of remission and goes full blown again.
I just don't know how to go back to full blown disease, but this time no hope of finding treatment, just.. suffer and hope I die soon I guess. That kind of pain for months on end.. it exhausts you, physically, mentally, emotionally, and spiritually, you just stop wanting to live.
It doesn't build character unless "bitter and exhausted and not wanting to live" is character.
It's not suffering for my faith so it's not like I can look forward to rewards for going through it.. it's just.. suffering from a fallen world, and there's no reward for that.
it's just fruitless suffering, pointless suffering.
To make matters worse, my mother wants to move across the country to be near my sister and her 3 children, it's understandable but.. I don't have the means or capability to live on my own. I lived with the untreated disease LOOKING for effective treatment for years, the damage piled up to where I'm disfigured and have bone spurs that make walking difficult for more than a few hundred feet at a time... so I'm dependent just to live, disabled and even if I was financially independent, I'm not physically capable of a lot of tasks. The issue is. one of the drugs that I also use to keep myself in remission the past few years.. is medical marijuana. My sister lives in a state where it's illegal, even medically.
So while my mother is convinced that the cops would just look the other way and that I can somehow find access to it like a college student, I'm not, it'd be going against Romans 13 as it is.. so we're looking at me suddenly losing 2 out of 3 medications to control my condition. The 3rd.. does the least amount of good, like it helps for general stiffness but does not prevent, or alleviate acute flares.
Prayer for healing has been ignored, for years and years and years.
I don't know how I'm supposed to bear with years of my immune system actively torturing my body with no end in sight aside from dying. The only thing that kept me going the first time around for years was actively seeking effective treatment.. but now that we found effective treatment and the plug is being pulled on it.... I got nothing.
So my options seem like.....
1. Keep telling my mom to be more patient, wait for the laws to change, and see if we can find a replacement for methotrexate, in which case I feel like I'm unduly burdening my family, I admit, it's not fair for me to expect her not to move.
2. Make the move with her and just.. suffer. I don't know how much of it I'll be able to bear.
3. Stay here but be homeless, without a vehicle, and I have no idea what would happen to me... probably freeze to death. I suppose there is options for homeless veterans but.. on federal government property, and without the means to acquire MMJ and it'd be illegal on the federal government property I'm left in the same condition as making the move, suffering because my disease comes out of remission and goes full blown again.
I just don't know how to go back to full blown disease, but this time no hope of finding treatment, just.. suffer and hope I die soon I guess. That kind of pain for months on end.. it exhausts you, physically, mentally, emotionally, and spiritually, you just stop wanting to live.
It doesn't build character unless "bitter and exhausted and not wanting to live" is character.
It's not suffering for my faith so it's not like I can look forward to rewards for going through it.. it's just.. suffering from a fallen world, and there's no reward for that.
it's just fruitless suffering, pointless suffering.