Rules

[jeffisthename]

Hey you guys,
I was wondering what you guys do about rules that are necessary for you special needs child safety/health but not necessary for your "normal" children. For example, my daughter has tone adjusters in both ears. Her audiologist recommended she not use ear phones or head phones of any kind because it can damage the tone adjusters. But my other kids are for the most part perfectly healthy. SO obviously this rule doesn't really apply to them. I'm starting to think this along with other rules that apply to her but not her siblings are hard for Cassie. But at the same time I don't want the others to feel burdened by their sisters medical issues. Any suggestions?

 

[RooMama]

I don't have any suggestions, but we will be facing similar problems. My son will be on a very restricted diet when he gets older and may demonstrate food-seeking behaviors. We may even have to lock all of our food up. I can't imagine that that wouldn't have a big impact on our other children.

 

[jeffisthename]

I don't have any suggestions, but we will be facing similar problems. My son will be on a very restricted diet when he gets older and may demonstrate food-seeking behaviors. We may even have to lock all of our food up. I can't imagine that that wouldn't have a big impact on our other children.

What disorder/diagnosis is your son?

 

[CarrieAg93]

If our son remains seizure free as he has been for 2 years we won't have to deal with that. If his seizures return he will have restrictions, esp. when it comes to driving. The best solution I've come up with is honesty. Just explain why the restrictions need to be followed. I know that's a very simplistic answer from someone who isn't in your shoes. Good luck.

BTW, how old is Cassie?

 

[RooMama]

I don't have any suggestions, but we will be facing similar problems. My son will be on a very restricted diet when he gets older and may demonstrate food-seeking behaviors. We may even have to lock all of our food up. I can't imagine that that wouldn't have a big impact on our other children.

What disorder/diagnosis is your son?

My son has Prader-Willi Syndrome, and he's featured on the website currently. He's the baby in green.

 

[jeffisthename]

If our son remains seizure free as he has been for 2 years we won't have to deal with that. If his seizures return he will have restrictions, esp. when it comes to driving. The best solution I've come up with is honesty. Just explain why the restrictions need to be followed. I know that's a very simplistic answer from someone who isn't in your shoes. Good luck.

BTW, how old is Cassie?

Cassie's 15, her username on CF is cassie121

 

[RedTulipMom]

I'm not sure. i do know my cousins son is allergic to peanuts (including anything with peanut oil). he is so allergic that even a small amt could kill him. So my cousin brings NOTHING with any peanut/peanut oil into the house and none of the 4 kids can eat it. (that includes all candy bars/chocolate becasue they are made in the same factory as reeses cups etc).