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my 'new' life...

Jul 6, 2009
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Not too sure where to start except that I feel like my life is crumbling. And you'd think I'd be thrilled about all the new things in my life, but I'm not. Let me explain.

I've been successfully weaned off Zyprexa and have been completely 100% off it for three days and am on Zeldox now. Its fine for the most part but I have yet to speak with a single person who's on Zeldox so just to start with, I'm feeling isolated.

Zeldox is the absolute opposite of Zyprexa. I know they do the same job but they make me feel completely different. So different that I'm having a hard time coping. On Zyprexa I was tired all the time, ravenously hungry and slept 12 to 15 hours a day (not 'cause I'm depressed, just 'cause that's what the drug did to me). Now I'm on Zeldox and its like I've woken up from a deep sleep, crossed through thick fog, thawed out from the ice-age I lived in and for the first time in six years, my eyes are fully open and things are in focus. That's truly how it feels. Its all fine and dandy to be alert all of a sudden but I've absolutely lost all interest in food and sleeping. Not in a manic way...

So much of the last six years has been spent dreaming up my next culinary concoction and researching different cooking techniques for whatever complicated recipe I was going to attempt next. Cooking was pretty much the only thing I could focus on, honestly. It was the only thing I had energy for. Now though, food is disgusting. I don't want any part in touching food, preparing food, eating food, cleaning up after food. Food is gross. Revolting. I eat because Zeldox has to be eaten with meals in order to metabolize but in the last month I've eaten a proper meal three times - and only cause there were people watching. Mostly I stand at the kitchen counter and eat something straight out of the package (like crackers or naan and tzatziki)... about a quarter of what I normally would eat and certainly far less than the 45g of carbs per meal that my dietitian would have me eating. While this has been great for weight-loss (I gained nearly 100lbs on Zyprexa between being starved all the time and the drug killing my metabolism - I've lost 11lbs in three weeks so far). I eat a thing of Boost for breakfast, a banana for lunch and a piece of naan for supper. Not exactly a well-rounded diet, but I can't bring myself to eat more. I feel so sick after I eat and want to barf (though I haven't actually vomited and I pray I don't). So because food is so gross that I don't want to cook or eat, I'm not spending forever washing pots and pans and dishes either.

And to top it off, I'm not sleeping. Its not because I'm not tired... I'm exhausted! I just can't sleep. I lay there for hours and think of all the fantastic things I could be doing if I didn't have to lay there and try to sleep. So frustrating as I know that if I got up and made these thoughts a reality, I'd be headed straight for mania. I just can't "turn off". My pdoc gave me a sleeping pill (Zopiclone) but he warned me that it can be addictive. I'm glad he warned me but now I don't want to take it at all. I've taken it three times and its so nice to just take it and fall straight to sleep and I wake up feeling rested after 9 hours. I'm paranoid about becoming dependent and in a way I know I already am. Not in an addicted sort of way, just that I haven't really slept a night through without it in almost a month. He only gave me the pill 10 days ago and I feel like a failure that I've had to take it three times (even though he said I could take it every other night...). And because I'm not sleeping 12 to 15 hours a night and because I'm wide awake the whole time (a 'good' night's sleep without zopiclone is about four hours of tossing and turning) then I have all this spare time on my hands. I work three nights a week (16hr shifts) which is full-time hours so that's good but the other four days/nights is a long haul. I have tons of crafting hobbies but certainly not enough to fill four whole days. *sigh*

I hate to complain about all this 'cause I know I should feel blessed that we live in a day of good meds and that I should be grateful I don't have to take the older ones that were truly terrible but this is a lot to adjust to and while my moods are under control I just wonder if this drug change is really worth it. I miss Zyprexa because I knew what to expect on it and I knew how to function in a fog. I don't know how to function now that my world is in focus and I have energy to meet the day. This is a nightmare, honestly, and its upsetting mostly because I didn't anticipate it being this hard. I don't know how I thought I'd feel but I guess I figured I'd go on feeling stoned and sedated and tired and that was just going to be my lot in life.

I need to know someone's listening. Am feeling a bit lost in my new life...

-Dee
 

SinkingShip

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Hi Dee!
I have an idea of what you're going through. When I first went up to 150mg of Wellbutrin I stopped eating for a few weeks, and felt "eerily great" as I finally broke from the depressive waves that had hit me before. It sounds like you've been on the new med for only a few weeks. After several years of being on a med, it may just be taking your body longer to adapt to the new med. Don't worry about it feeling weird, your body is trying to interpret the new med and may just need a little longer.

In the mean time, take it easy and give your body time to adjust. Don't beat yourself up, your body has been thrown a curveball with the new med and a lot of this sounds like your body's attempt to make sense of going off one med and onto a new one with different side effects.

Hope this helps, feel free to message me if you want to talk more.

-SS
 
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mum24

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We are listening, and caring... So sorry you are feeling down. I'd advise you to take the sleeping pill as directed.. Every other day. I was afraid to take it when prescribed to me too but don't be, they know what they are doing. Lack of sleep can really mess with you and could explain much of what you are feeling now. Take the pills and be grateful for the efficacy. They work and the doctor has prescribed them in a way that won't harm you. You don't feel like a failure for needing your other meds do you? This is no different. Take heart and give it a shot and time to work for you. It's probably the solution you need. Hugs.
Prayers.
 
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Jul 6, 2009
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Hey there guys.

Thanks so much, mum24 and SS for making it through my lengthy post above. I'm doing a bit better now and wanted to let you guys know that.

Zeldox is still hard 'cause its a whole new world... and I feel in a way that I'm more the person I used to be before I was medicated (minus the severe mood swings). Its nice in a way but rough in others... I've got tons more energy and want to get out there and do stuff like I used to but I'm still epileptic and my seizures are triggered by flashes of light so I'm still just as limited in what I can do and where I can go as I was before but the difference is that now I'm not a zombie all the time. I also worry about my future and how I'll make a living and find a partner and raise children. I'm on assistance now as a 'Person with a disability' cause my seizures are still bad and very limiting. In that respect, Zyprexa was easier. I didn't worry about my future 'cause I could barely cope with the present. I didn't want to go out and do things and was content to just stay home and crochet.

I've had some obvious mood swings. I had about a month of hypomania followed by about a month of depression. My moods aren't as controlled as they were on Zyprexa. I see my pdoc in a week so will bring this up with him.

I think the hardest thing for me right now is the extra photo-sensitivity on top of the trouble I already have with flashes. Bright light gives me the worst headaches. I don't think they're migraines but tylonal doesn't help and at times I want to cry. My house is dark and I keep my drapes drawn during the day as the sun just makes my eyes water and head pound. And sitting in front of the computer does it too, which is why I've been absent from the web-world lately. I can tolerate it for about half an hour or so before I go back to crocheting in the dark! Once the sun is mostly set I open the drapes and enjoy some dim natural light. This is hard!!

And to top it off, I got my bloodwork back today from the lab. I'm making an appt with my GP tomorrow morning as my fasting glucose was higher then it ought to be. I've already been branded 'pre-diabetic' when my blood glucose was much lower (5) and now its 6.2, instead of the 5.5 max. Its not hugely over so I'm not getting too bent out of shape over it and I know that they'll have to do other bloodwork to officially diagnose me as diabetic but... it makes me really mad at Zyprexa. What a great drug for my mind but its done terrible things to my body. 100lbs, high cholesterol and a high fasting glucose. I think diabetes is unavoidable at this point but I hold on to the fact that since I've been weaned off Zyprexa I've lost 12lbs. I eat right and exercise so... I just need to keep that up, right? I know I sound like I'm trying to convince myself that everything's ok. I suppose I am. I just need to give myself a pep-talk that I can handle diabetes with the Lord's help. I just hate the judgement that I get from people who think that I've eaten myself to this size and that its my own fault for becoming diabetic. SO! NOT! THE! CASE! People are going to judge me no matter what... I just have to keep moving forward, I suppose.

I'm still not interested in food at all but I'm coping with that. Its been hard but I've found other things to fill my time besides cooking, eating and doing dishes. I'm back to baking for my coworkers and that's been positive. I tried out a new recipe on them the other day and it was well received.

People have generally been really good but its hard for them to really understand as none of them have ever taken drugs that muck with how you think and feel. The only people who get what I'm going through are people like you who've walked this road. I've got really supportive people at work, though and I'm really grateful for them... including a coworker who has experience with psych drugs. I haven't spoken with him about this but I get the sense that he feels my pain.

SS, you're right, there's a huge adjustment period when you start a new med. I didn't anticipate my life being turned upside down as much as it has been so it caught me off guard when I couldn't function anymore. I'm coping better though.

Mum24, I'm sleeping better. Gosh, that was a rough patch that I went through. I'm still having trouble falling asleep but its easier then it was a week ago. And I'm able to stay asleep, all without the drug. I took it some more and I agree now, he gave it to me for a reason and it helped me through that nightmare... things are going better now and haven't taking it for more than a week and have reworked my bedtime routine so sleep comes a little easier.

My head is pounding so its time for me to log off.

Thanks for your support guys,
-Dee
 
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