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Migraines

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night2day

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Treasurer said:
Yeh, medicare and Bush, what a combination :doh: . (We'll have to see how this drug prescription program works -for me in January- keeping finger and toes crossed). As of right now neither medicare or medicaid cover my meds. I have to get samples. So its an up and down thing.

You know this heat is playing havoc on my system, along with the humidity :sick: .

Our heat wave just broke...with a bang. I feel for the people north of us. Major storm damages at various places. :eek: Some areas of which my family and I used to live when I was younger. We missed a vast majority of the activity though.

I remember getting one of those Medicare coverage forms in the mail about 5 days before it would have to be due. I really hate it when they pull stuff like that...waiting until the last minute. :doh: So, I do have a secondary insurance as a dependant, for the time being, and was told to discard Medicare's offer. I've head...and read...rather questional things about the new drug plan. It sounds like it will hurt more than it would help. In either case, I doubt Bush can be blamed if some or all goes wrong. It took both parties to constantly "dip" into Social Security and other projects that were supposed to be off limits for their use. Can anyone say "pork barral spending"?

Sides, senators and congressmen in both parties are set for life. They and their families don't have to worry about health care. If they did, maybe they would pay more attention to third of the population who has to decide whether or not they're going to eat or buy medicine.
 
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Treasurer

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Night2Day :hug:

Perhaps we cant blame mr bush, but it seems like he stirred the pot.

I got all kinds of medicare stuff in the mail, none of it made much sense to me. Then I got a letter that said I didnt have to do anything I was already approved, that one made sense. So I went with it. The other ones were all these choices and stuff. I felt like I needed legal aide.


Hey KristiAnn :hug: Head pain is the worst!



I read about a new cure for migraines-head transplants. (just kidding, unless you think it would work, lol).
 
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night2day

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Treasurer said:
Night2Day :hug:

Perhaps we cant blame mr bush, but it seems like he stirred the pot.

:hug:

Hmmm, by brining up the issue...no. But by his plans he did. I can only guess the Dems just didn't want to bring anything to the table just so he could be blamed for everything. In other words, looking out for themselves instead of the country as a whole.

The issue of private accounts has actually worked for some I have heard. I don't like how he appears to consider the disabled. My impression was "if you try hard enough..." And once when referring to mental illnesses he made it sound as if it was the person can "get over" instead of them being a medical problem.

It seems more and more voting for people in office is a choice between the "lesser of two evils". :doh:

I got all kinds of medicare stuff in the mail, none of it made much sense to me. Then I got a letter that said I didnt have to do anything I was already approved, that one made sense. So I went with it. The other ones were all these choices and stuff. I felt like I needed legal aide.

I have no idea why they do that. Especially when they know many of those on disability may have mental problems and an inability to look through all that jargon. Guess that's why they expect people on S.S. to have advocates. But what if a person doesn't??

I read about a new cure for migraines-head transplants. (just kidding, unless you think it would work, lol).

Well, it's not that much of a joke! The FDA either approved or is in the stages of approving a surgery for migraines. Basically an MRI would be taken (I think) and a neurologist works with a cosmetic surgeon. Nerves which are involved within migraines also travel right through the sinuses. So, those nerves are the ones which would be basically deadened/cut. Also, some of the muslcle tissue is cut through since that messes up the blood flow during the migraine. There wasn't word of what happens to any of the other symptoms of migraines either.

Of course, take this with a grain of salt. The FDA has been known to make approvals only to later learn of longer term effects. This was on a news segment early in the morning on the national news (while I was trying to get to sleep). I haven't heard anything of it since.
 
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rosemoss

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GoodMorning,
Its early and I'm still a little foggy but the part about surgery for migraine got my attention, goodgrief, people think they can fix everything don't they? :doh:
Just imagine how many people are going to want that surgery and how much the doctors ect. are gonna charge for it!
Well, I better go have breakfast and a shower before I keep typing, my mind needs to wake up!

God Bless,

rosemoss
 
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allieisme

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Oh I hate migraines!
Lately my migraines have been so bad I vomit. My husband doesnt understand how someone could literally get sick just from a headache. I've explained it to him many many times that it is not a headache, but he doesnt get it.
I've tried taking imatrex for it, and it doesnt work worth beans.. I've also tried another migraine pill, I cant remember the name of it, but it strarts with a "R" that seems to work very well for me
 
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night2day

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rosemoss said:
...Its early and I'm still a little foggy but the part about surgery for migraine got my attention, goodgrief, people think they can fix everything don't they? :doh: Just imagine how many people are going to want that surgery and how much the doctors ect. are gonna charge for it!

And...the surgery also doesn't work for everyone. The migraines have been known to come back. And damaged nerves have been known to "rewire" themselves in time in order to function depending on what type of nerves they are and what functions they serve.

I would think orthodox treatments would have to be tried first. But who knows?

Instead of surgery or trying to "break" in and snip where it may not be necessary, why don't doctors find the cause of Migraines? Not the triggers but the cause? It's known triggers react with the central nervous system, why all the sensory and pain perception is by heightened by 1,000%, errant brain signals bounsing off the walls, changes in blood flow, ect.

That's the most frustrating abut having a chronic illness methinks. Always treating the symptoms...not the chief cause since the medical arts don't know what that is.

But then, at least a majority confess it's not just "stress" anymore.


...Warning...vent ahead...


Btw, the nurse at my neuro's main office once again blew off my concerns. When I told her I was nearly off one of my preventative meds her chief reaction was "What do you want me to do about it?" (?!) Uh...I thought nurses were to take patient's names and numbers as well as just why they were needing to get off the drug they were prescribed...and take the information to the doctor in order to seek help for the patient.

Normally it's three strikes, then out. This was the forth call in a number of weeks, with me calling each time I had too pull back on the Topomax. And still have no reason to believe any concern of mine was relayed to the doctor.

Thank goodness I don't see him at his actual office. Being in a rural area, he's one of the specialists who visits a local hospital to see patients to save them the 3 hour long trip one day a week. I'm sure he visits other places.

However, if seeing him doesn't help and something isn't done...guess it's time to look for another neurologist. No way I'm putting up with this. :sick:
 
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night2day

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allieisme said:
Oh I hate migraines! Lately my migraines have been so bad I vomit. My husband doesnt understand how someone could literally get sick just from a headache. I've explained it to him many many times that it is not a headache, but he doesnt get it...

I read somewhere one of the areas of the brain affected by a migraine will switch "off" the stomach. Besides, migraines are not "just headaches".

They are classified as Neurologial Disorders of the Central Nervous System.

Neurological diseases.

Besides that: sensory perception (sight, smell, taste, touch, hearing, etc.) is heigtened 1,000 fold: regular speech may sound like shouting, regular touch may feel like a painful electrical shock, regular taste would taste like bile, regular smell makes one nausous, regular light would seem like a very blinding glare.

Those who think migraines are "just headaches" obviously never had one.
 
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Treasurer

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Amen Night2Day!

Since I have been going to doctors, which has been a long time for my migraines, they have changed their opinions, thank God (I can say that because I mean it). Finally it no longer is considered in our head. It is not just stress. It is not just because we are women and we are moody. Or any other number of stupid excuses.

But still I have to deal with the scars and chips on my shoulders and heart. The medical community has been hard on us. But at least for the next generation it has gotten better. At least now there is medications out there made specifically for migraines. When I first started out I was a guinee pig. At the hospital they called me a drug addict and a frequent flyer. At least they are getting further than they have in what--- well checking history the founding fathers, I think one of them had migraines, so its been a long time coming.

Do you realize we have only really had one cure that I know of and that was for sickle cell anemia. And that was by a guy who is still living. (I think he won the nobel peace prize, he lives here on the island where I live and is a dentist now). Why do we not have cures? All this research, I see it on television all the time, money being raised for them, do we have any progress? Or just all these cute little zoloft pills running around instead.

Guess that is just another heated discussion, lol.

I honestly cant believe they would want us to sever our nerves. Isnt that by our spinal cord? We are talking about the one by our cerebral cortex right? There is absolutely no way, I like walking. The side effects of pills are bad enough.

(*Side note: Most people who have never had a migraine will never be able to understand them. They may be able to feel sorry for you, but they will never be able to understand the extent of the pain.) An example I give to them is by giving them an ice cream cone and make them eat it really fast til they get an ice cream headache, and then I tell them imagine that pain never going away for days on end. Then add nausea and vomiting, smells bothering you. Light making the pain worse. And making you vomit. Movement making you vomit and the pain worse. Noise making the pain worse and vomit. And that is just some of it.
 
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night2day

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Treasurer said:
Amen Night2Day! Since I have been going to doctors, which has been a long time for my migraines, they have changed their opinions, thank God (I can say that because I mean it). Finally it no longer is considered in our head. It is not just stress. It is not just because we are women and we are moody. Or any other number of stupid excuses.

I hadda rush mom to the tv as soon as that was broadcast way back when. (Perhaps 5 years ago. Unsure.) FINALLY. They began to fess up to what alot of migrainers knew all along. Inflmation, swelling, and pain signals bounsing off the wall.

In many, many cases until recent years women's medical in general weren't taken seriously. Not only do I know this from personal experiance...but also from my mother's and her mother's own experiance. While I have a condition that's being more accepted in the medical field as "viable"...another one, the main domino which plunked after Mononucleosis over 15 yrs. ago, ME/CFIDS/PVS (Post-Viral Syndrome) is still poorly misunderstood. (Unfortunately, in my case, it's the one getting worse.) My mom's been treared worse. And...well, what the medical field did to my grandmother from her early teens on until her death last year was completely horrendous. Quite a few horror stories.

I admire my grandfather though. He was always there, always caring for her in any way he could up until he wasn't able to any longer.

The medical arts has been slow in realizing that men are differnt than women. *gasp* Or that our systems react differntly to the same illness due to their make-up. One example would be a heart attack. You may have heard the sterotypical signs for men: can't breath, pain in chest...that sort of thing. A woman doesn't normallty get that though. Her symptoms would be tiredness and aches down one arm. But not chest pain. Also, a heart attack is more deadly for a woman not only because in the past emergency rooms would often state it's "anxiety", but she doesn't even need as many risk factors as a man does. Men's veins are larger and can carry more blood and oxygen. With a women, especially as she ages, the veins are thinner and more fragile.

But still I have to deal with the scars and chips on my shoulders and heart. The medical community has been hard on us. But at least for the next generation it has gotten better. At least now there is medications out there made specifically for migraines. When I first started out I was a guinee pig. At the hospital they called me a drug addict and a frequent flyer. At least they are getting further than they have in what--- well checking history the founding fathers, I think one of them had migraines, so its been a long time coming.

To be honest, at least the Depakote cuts in half the longevity and severeity of the migraines...usually. At least, if I'm unable to take Maxalt for them. Though I still feel aweful. Nice to be properly diagnosed with the Migraines being seen as an organically based diagnoses. Got sick and tired of hearing from my then GP "It's only sinus...sorry...can't do anything." One woulda thought he woulda picked up on the growing and additional symptoms. But anyway...

Do you realize we have only really had one cure that I know of and that was for sickle cell anemia. And that was by a guy who is still living. (I think he won the nobel peace prize, he lives here on the island where I live and is a dentist now). Why do we not have cures? All this research, I see it on television all the time, money being raised for them, do we have any progress? Or just all these cute little zoloft pills running around instead.

Guess that is just another heated discussion, lol.

I would say it has more with the little dollar signs that race along with the cute little Zoloft pills. :)

I honestly cant believe they would want us to sever our nerves. Isnt that by our spinal cord? We are talking about the one by our cerebral cortex right? There is absolutely no way, I like walking. The side effects of pills are bad enough.

Er....no. Rememeber, we have nerves travling throughout our body. The surgery would be concerned with some of the nerves that are often affected by migraines. That would be within the sinus areas since they share some of the same location. (It's why also some Migrainers, self-diagnosed or no can be confused with having Sinunitus...the pain travels through the same area.)

*Side note: Most people who have never had a migraine will never be able to understand them. They may be able to feel sorry for you, but they will never be able to understand the extent of the pain...

People with Chronic Illnesses can also fall into the same trap...almost fighting over who's worse off. Which is unfair since it's immpossible to know how much pain the person is dealing with, how much they can personally tolerate, ect.

* * *

Oh, yes...the neuro's office actually did call back this morning:

"Discontinue the Topomax and if you're still having problems within a week...schedule an appointment with the doctor."

Uh-huh. Someone there is behind on their note taking skills :yawn: *grumble*
 
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Treasurer

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definately behind on the ole note taking skills :eek: ! Good thing it wasnt an emergency eh.

Although it sure could have been. You know they need a hotline or something at them offices. So you could actually talk to a doctor or something. Really cuz meds are not something to mess with. Just my humble opinion.
 
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Kristi1

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Treasurer said:
Night2Day :hug:

Perhaps we cant blame mr bush, but it seems like he stirred the pot.

I got all kinds of medicare stuff in the mail, none of it made much sense to me. Then I got a letter that said I didnt have to do anything I was already approved, that one made sense. So I went with it. The other ones were all these choices and stuff. I felt like I needed legal aide.


Hey KristiAnn :hug: Head pain is the worst!



I read about a new cure for migraines-head transplants. (just kidding, unless you think it would work, lol).


thanks....

I get them because of a bad Ruptured disk in my neck at C5-C6 that sends pains into my head.... :cry:

I wish I could Get a Body Transplant *tee hee* mine at age 45 is worn out and Needs Repair Badly!!
 
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PureGrace

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Migraines are such a huge part of my life. I get them absolutely terribly, and it makes it so difficult for me to carry out a normal life. I've lost friends and respect from some people because they can't count on me to be where i say i'll be because I so frequently get my migraines. I absolutely hate it. I was in the hospital 3 times last year alone for IV meds because it got to where i couldn't take it any more. My migraines last for up to a week at a time. I hate it, but am going to have to learn to live with it. I've had them since I was very young. :sigh:

Keep my in your prayers!
 
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Treasurer

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PureGrace :hug: sure know how that feels. :hug: :prayer: (Numbers 6:24-26)

~your blessing and prayer~

The Lord bless thee, and keep thee:
The Lord make his face shine upon thee,
and be gracious unto thee:
The Lord lift up his countenance upon thee,
and give thee peace.

(And then this is what the Lord said to Moses to tell Aaron and his sons: And they shall put my name upon the children of Israel; and I will bless them).

The Lord now has placed his name upon you and blessed you. You are his child. Keep this prayer in your heart and in your mind. That this is yours.

God Bless You :hug:
 
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night2day

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Treasurer said:
definately behind on the ole note taking skills :eek: ! Good thing it wasnt an emergency eh. Although it sure could have been.

No kidding. I'm just glad I look up the resources and things about the medicines. The office never once told me to go off Topomax s-l-o-w-l-y. Yet, if a person does not, there's a high risk of seizures and other bad withdrawl effects. I read the info on several medical sites from the net. But, what about those who need the info and don't have access?

Either the doctor didn't say or the nurse just "forgot" to mention it. At any rate, the nurse I spoke too won't be "forgotten" when I tell the doctor of her.

Appointment scheduled, although I hafta a couple weeks.

You know they need a hotline or something at them offices. So you could actually talk to a doctor or something. Really cuz meds are not something to mess with. Just my humble opinion.

You're right, meds aren't something to mess with. Although, if it was an emergency, I'd doubt I'd "just call the doctor". ;)
 
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night2day

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Treasurer said:
Hey Night2Day :hug: havent popped in and said howdy in awhile.

Hope everyone is doing well. Hugs for you all :hug: :groupray:


:hug: to you back! For the time being my head has been somewhat behaving itself. As long as the mold counts and ragweed doesn't get as high. Middle of ragweed season here. And as long as the atmosphere stays stable.

I wouldn't even want to think what dealing with the mold, chemicals, rotting corpses, and all the strong oders that brings would be like. The news has been stating of the sanitary and health risks lately. Nothing is hardly stated about those who are affected in other ways due to those conditions....such as migraines. Without considering all the list of deep concerns of the storm alone the survivors face, being medically sensative and seriously being ill is something no one needs.
 
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night2day

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Just an update.

Was finally able to see my neurologist yesterday. (Would have been sooner by family emergency came up.) He apologized for the treatment I got from his office and promised to speak to the girls.

He decided to slowly increase the Depakote to see if that would help since I seem to be fairing much better with that than I did on the Topomax.

He commented because of my asthma he wouldn't be able to give me any beta-blockers which might have helped. (Asthma meds tend to increase blood pressure, the blockers are also used for high blood pressure patients. Meds would be fighting against one another.)

Wasn't too happy to hear him say he may never get my migraines under full control...which is what he's aiming for.

Can't help but wonder if any herbal remedy's may help.
 
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