Frustrated

[CaseyK]

My second daughter has albinism and some other issues. She is now the big sister to a 2 1/2 month old who we believe has albinism as well. Dh and I have no problems with this and dont view it as a life sentence. Well, I mentioned it to my parents and my dad actually said well you better stop at 3:o

I was shocked, I didn't understand why he would say something like that. We want more children and I couldn't imagine not having any more just because they might have albinism.

Has anyone else gone through this? What should I have said to him. I just stood there with my mouth hung open and couldn't speak. ARGh my family can frustrate me sometimes.

Casey

 

[Mayzoo]

If he is Christian, you can always say something like:

"Why, they are Godly made as is his plan--isn't it presumptious to second guess his plans for both them, and myself?"

If he is not Christian--let me know....I have been know to come up with some pretty good zinger come back that leave the ignorant party with their mouths open instead!!

Ignorant relatives just seem to come out of the woodwork when a special child is born--you are not alone...if I have to hear one more time "why don't you just get her fixed" I think my head will implode/explode--or just spin around 360 degrees!! My daughter will have to undergo several brain surgeries....she does NOT need to be "fixed" as though she has a flat tire!!

Oh well, you are not alone....if that is any consolation.

 

[CaseyK]

No he is not christian, actually I saw him in a church for the first time in my life today b/c we had our girls dedicated.

It is just frustrating that they think b/c they aren't "perfect" then you should stop. Yes my child has albinism and sensory integration dysfuntion but that isn't who she is. She is a sweet, loving, adorable little girl and I don't care if I end up with 10 more just like her. It is time consuming with her therapy but that is time we get together and even her older sister helps out.

I just don't understand why people say oh you should stop or you are really going to have more even though they might have her issues. ARGHHHHH

Sorry I just get frustrated everything I think of this

 

[kayd1966]

Hang in there...family can be very frustrating and it goes both ways.

My family doesn't believe anything is "wrong" they don't understand why I did therapy and now that my son is thriving and fitting it well with his peers I get the "see I told you there was nothing wrong".

The main thing is, can you look yourself in the mirror and know you are doing the best thing for your kids. If you can...then who cares what anyone says.

God Bless!

 

[InHisSpirit]

The difference is we see our children as gifts where outsiders can see them as burdens. The way we love our children with special needs I believe no one can really understand the way we do.