My story is so long and complicated that it would take forever. I'll assume those that suffer can read between the lines.
I fell and crushed my elbow 5 years ago and had surgery. A month after that wierd things happened. First my ears started ringing, dizziness, then pain throughout body. Went from Doctor to Doctor, test after test.
I was dx with neuropathy, but no cause. Scans did find swollen nodes, swollen liver and spleen and some lung nodules. I was scanned every 3 months for 1.5 years and said no cancer, but no change. a few years later my palate in my mouth had a large red spot. Biopsy showed just inflamation. Now it has taken over most of my palate. It's very painful. I went to three Doctors, no answers, just they don't know. I feel it has something to do with whatever else is going on.
I have many symptoms and my life became a living hell. I went from Doctor to Doctor and told I was just stressed. They admit I have some bad disc, some wierd things they can't figure out, neuropathy, but no help.
My worse problem is if I exert myself my skin goes ice cold to the touch. I'm not talking cool, people that touch me say I'm cold as Ice. I can feel the coolness, but I feel like I'm sunburned real bad. If I stop moving, it will subside in about 20 minutes. It's now gotten very bad. I use to be able to go for hours, but now just mild exertion and my skin goes cold, I get very shaky, dizzy and just feel sick. I tell Doctors about this, but they can never feel my cold, because I'm always sitting forever in the waiting room. If I started telling my symptoms, the words "are you stressed" come up.
I've known real stress in my past..my first wife passed long ago. I run a business, ect; it never caused this.
Overall I had a wonderful life before this, married, two kids, a decent business, ect...now I'm fighting to stay in business.
I have severe pain in my liver area, mild spleen. I have pain all over. I know my leg and foot pain is probably back related, although my neuro says it unknown neuropathy.
I got so tired of Doctors, I just stop going for this last year, except to my neuro every three months for meds. No need to complain to her, cause she will just say I'm stressed. Really, Doctors brought stress into my life more than anything before.
I do have some new symptoms. MY nails have ridges in them and white lines going across them. They split and break off. Now the pain has got in all my joints. My hips really hurt bad.
I do get rashes across my face, similair to the lupus rash, but not the whole face. It looks more like poison ivy rash on both cheeks beside the nose. It comes and goes, but when it's there I'm worse.
I have had the blood test for lupus...but clear. I still can't get an answer if that really shows proof. I have every sign of Lupus..still no one knows.
I was 39 when I fell. I was in perfect health before that.
I don't know that it was the fall. Somene mentioned RSD, but my neuro says no. Funny, I've been to 3 Neurologist and they all disagree with each other.
I'm going to try and find another Doctor. Not sure how to find one that will help.
I just want my life back. My children are growing up and I can hardly do anything with them.
I fell and crushed my elbow 5 years ago and had surgery. A month after that wierd things happened. First my ears started ringing, dizziness, then pain throughout body. Went from Doctor to Doctor, test after test.
I was dx with neuropathy, but no cause. Scans did find swollen nodes, swollen liver and spleen and some lung nodules. I was scanned every 3 months for 1.5 years and said no cancer, but no change. a few years later my palate in my mouth had a large red spot. Biopsy showed just inflamation. Now it has taken over most of my palate. It's very painful. I went to three Doctors, no answers, just they don't know. I feel it has something to do with whatever else is going on.
I have many symptoms and my life became a living hell. I went from Doctor to Doctor and told I was just stressed. They admit I have some bad disc, some wierd things they can't figure out, neuropathy, but no help.
My worse problem is if I exert myself my skin goes ice cold to the touch. I'm not talking cool, people that touch me say I'm cold as Ice. I can feel the coolness, but I feel like I'm sunburned real bad. If I stop moving, it will subside in about 20 minutes. It's now gotten very bad. I use to be able to go for hours, but now just mild exertion and my skin goes cold, I get very shaky, dizzy and just feel sick. I tell Doctors about this, but they can never feel my cold, because I'm always sitting forever in the waiting room. If I started telling my symptoms, the words "are you stressed" come up.
I've known real stress in my past..my first wife passed long ago. I run a business, ect; it never caused this.
Overall I had a wonderful life before this, married, two kids, a decent business, ect...now I'm fighting to stay in business.
I have severe pain in my liver area, mild spleen. I have pain all over. I know my leg and foot pain is probably back related, although my neuro says it unknown neuropathy.
I got so tired of Doctors, I just stop going for this last year, except to my neuro every three months for meds. No need to complain to her, cause she will just say I'm stressed. Really, Doctors brought stress into my life more than anything before.
I do have some new symptoms. MY nails have ridges in them and white lines going across them. They split and break off. Now the pain has got in all my joints. My hips really hurt bad.
I do get rashes across my face, similair to the lupus rash, but not the whole face. It looks more like poison ivy rash on both cheeks beside the nose. It comes and goes, but when it's there I'm worse.
I have had the blood test for lupus...but clear. I still can't get an answer if that really shows proof. I have every sign of Lupus..still no one knows.
I was 39 when I fell. I was in perfect health before that.
I don't know that it was the fall. Somene mentioned RSD, but my neuro says no. Funny, I've been to 3 Neurologist and they all disagree with each other.
I'm going to try and find another Doctor. Not sure how to find one that will help.
I just want my life back. My children are growing up and I can hardly do anything with them.
