Fibromyalgia

[tlyn]

I would love to excerise and walk but when I try then I am down for a day or more and I have to be able to work. No one seems to understand that I cannot do these things. It is not just pain a normal person would feel. I use to walk my dog everyday. Within the last three years I have had to stop completely trying to walk him even a block. I cannot do my housework. My daughter does the heavy stuff. I have to sit in a chair to wash dishes. I am just so sick and tired of this life like this. I get so depressed most days. I just want to go home and sleep. My weekends are usually spend sleeping anymore other than going to church. I have tried some supplements but I can't afford to keep taking them and most of them take 3 months to even help you. I take advil like crazy and that can cause other problems. Today is just not a good day.
I am sorry to go on and on just like at the end of rope today.
I need a healing so badly.

 

[stumpsitting101]

tlyn,
I am so sorry for your having a bad day and for your battle with this disorder. Sad thing is that this a relative new disorder and not much research has gone into it as yet. Another thing to be brought to mind is, that the medical field has now found that there are other less researched disorders which are masked by Fibro. Many Doctors see the Fibro initially, start treatment for it and not recognize something else actually behind it.
Many of the Lupus Strains hide behind Fibro.

Any sign of weight loss or muscle loss or response, usually indicates something beyond Fibro.

I still battle with chronic fatigue, and cold/wet weather, but this thing can be beat, with the Lord's Grace.

Blessings and will be Praying for you and all Fibro suffers.
Ken

 

[Muzza]

I can understand the not being able to exercise. To a degree at least. I just thank God that im able to exercise now.

 

[Lbiagm]

i totally understand tlyn.

 

[Smooches]

I can totally understand your bad days! I often get into a depression because of my pain and my inability to do things that other people my age can do.. I broke my neck in 1992 (well, a few times(4)!) I think that it is frustrating for my husband and my son certainly does not understand it. He know little of my pain and is wanting to run and jump and play.. It is a shame that there is not a cure or even the hope of one soon. I think it is so important to have people you can talk to when your days are bad! Just someone who understands is a God send! God Bless to all!

Smooches

 

[Lbiagm]

i understand his pov smooches.

 

[Smooches]

yeah it is a hard thing being in yolur twenties and married to someone w ho feels like they are in their 80's...he is SO SO SO WONDERFUL though... An awsome man who loves me no matter! Smooches to my husband ~Tongue Sticker Outer!~

 

[Lbiagm]

thats good smooches.

 

[Muzza]

Yeah you absolutely need to have a supporting husband/wife/family if you have FMS. It would be so much harder if you dont.

 

[Lbiagm]

that is so true muzza.

 

[KnightRobby]

Hi everyone. I posted this to "Servant4Christ" just a minute ago. I have fibromyalgia at age 18 - it's nuts, isn't it? This world we live in, I don't know what is happening.

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I am 18 and I have severe fibromyalgia, Chronic Fatigue Immune Dysfunction, and horrible migraines. I know EXACTLY how you feel, as I too suffer from severe back pain, but that is only one of my many, many symptoms. Doctors will not treat me because they are afraid to treat a little 18 year old with any type of major medicine and my family is about to lose our medical insurance, we are trying so hard to find a solution, etc. I don't know how people deal with this - they just take it one slow day at a time.

I have had this for around roughly four years now, had to drop out of school (was a straight A student, became ill, couldn't focus on anything), tried my best in homeschooling, but my life now is on the couch and in the bed. I will tell you now: do not over do it, as your LIFE IS MORE IMPORTANT THAN YOUR SCHOOLING! If you search on the computer, you will find that many people our age try to stick it out and be strong at school, but literally collapse and there is life-long consequences. My Mom too suffers from fibromyalgia and it is terrible to see her suffer, I hate it. HATE IT so much.

I know the pain you feel, not only in your body, but your heart and soul. It is so hard, people look at us like we are nothing, like they don't understand our pain, and shrug us off; doctors have told me that they have found no phsycial evidence for my pain, yet other doctors have diagnosed me (and said, "You have fibro, but I will just send you back to your worthless primary doctor now so he can look at you and go, 'Duh.'"), and even so other doctors don't believe me.

Do you know who Lauren Hillenbrand is? She is the renown author of "Seabiscuit: The American Legend" and her novel has become famous, made into a movie. She suffers from chronic pain and fatigue, doctors did not believe her, and the reason they believe her now is because she is successful and has money...I guess that is what it takes anymore. Yet she is a leader, bringing forth the message of us who are suffering down here in this forgotten society. She is speaking out for those that cannot speak, for they suffer in so much pain that their words are even painful.

Her voice has even been at the White House, articles about her condition have spread through magazines - she is making a difference. By God's will, in our life time pray that doctors find a solution for this problem, will give us the treatment we deserve. You need to tell everyone around you that it is your LEGAL right that you get medical treatment for your severe pain. IT IS! Remember that!

The government knows that this is spiraling out of control - it is, it's just the facts. They too are scared I feel, but at the same time they need to openly admit that there is a large epidemic problems, and even doctors are frightened with what to do. Because more and more people call them, telling them that they have a son or daughter that is suffering from fibro, CFIDS - what have you.

I will tell you, that it is only normal to be sad and upset about this. I can understand that. I think what you need is someone to care on a genuine level and don't think of me as "just another member" out here (lol), because I know EXACTLY what you are going through. I still am going through it with my family. Remember, you don't have to keep it bottled up inside of you, let it go, cry in front of God - it is only normal. Jesus cried to God, and God continually cries to us. Your tears are felt.

I try my hardest to smile through my neck, head, eye, shoulder, and back pain - uh! And it isn't fun! It is constant, and has been for FOUR YEARS, no break at all.

I will pray for you and everyone that suffers like us,
Robby

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@Muzza, I like your avatar. It is sharp 8) I love art and try heroic individuals (when I can anyway ). The colors are done so well. Just amazing.

Thanks for listening and reply...please!
Robby

 

[Muzza]

Yeah you're right on the taking it easy with schooling or work or anything that you want to do. I have periods of time where the FM settles down and im able to function really well, go and do stuff with friends, think straight etc. At the moment its flared up rather badly, mainly because of the weather I think. This past week we had a 1 in a 100 year storm. Major flooding for some areas, friends house was flooded out, the city im in was cut off by road from everywhere around it for a short period of time, the rivers were swollen. They even had to dynamite some of the flood banks to relieve the pressure.
Anyway, because of that weather, cold when it should be warm summer, and a very damp atmosphere, im very sore, muscles aching all over.
You just need to take it easy when your like this. Im going to do minimum for the next few days till it calms down a bit. Granted do enough exercise to keep going, but no more than I need to do.

Bottom line is, take care of yourself. Your the only one that knows how you feel.

Going on with the whole schooling thing. I was doing a diploma of counselling a couple of years ago, and half way through the year I had to stop. My health flared up badly and I had what essentially amounts to a breakdown. Im just now getting past that to the point where life is manageable again. Dont ever do that to yourself. If you need to take a break then do so. I had to make a judgement call on the course and stop studying for the rest of the year. If I hadnt then my health would probably have gone much worse than it did.

Be careful with things if you dont know how you'll react to them.

Thanks for sharing Robby, nice to know your not alone out there, even though I kind of wish I was, because then others wouldnt be going through what we have to cope with.
The Avatar is from a series of comics called 'Archangels'. Its a Christian series. 9 comics, very similar to the whole Xmen style, but purely from a Christian mindset. Awesum comics, you should check them out.

 

[KnightRobby]

I have periods of time where the FM settles down and im able to function really well, go and do stuff with friends, think straight etc.

Well, maybe you will go into remission sometime. Many people do. But if you do, make sure you take it easy most of all. I have heard of stories when people are incredibly sick and they go into remission, suddenly feel the energy, and want to desperately catch up with life. One has to remember not to do this, because it can really strain the body. Take it easy.

I myself cannot do any type of excercising, or else, I will have a terrible migraine the next day, be down in bed for over a week. I cannot do situps (though I am not fat at all, hopefully I don't get that way - lol kidding) because it simply hurts my back, neck, and head way to much. Not to mention pushups...don't get me started.

Yet then I only get energy spurts, not a break from the constant, CONSTANT pain. Never can get a break from that. It is impossible. Having Chronic Fatigue and fibro, plus chronic migraines can just be overwhelming - not only for me, but for my family. Especially my Mom - she HATES to see me suffer. Hates it even more than being sick herself, I can see it in her eyes.

Yes, I have noticed the weather has affected my health greatly. Especially season changes and when allergy season comes around. My sinuses just feel swollen during that time making the pain even worse.

The Avatar is from a series of comics called 'Archangels'. Its a Christian series. 9 comics, very similar to the whole Xmen style, but purely from a Christian mindset. Awesum comics, you should check them out.

I am definitely going to check it out I love that type of art. Looks very cool.

And thank you Muzza, no really, thank you
Robby

 

[~Wisdom Seeker~]

How many people out there have either heard of or have Fibromyalgia?

I have it. Exercise is the only thing that keeps me from being tired and in pain all the time. I still have days that are harder than others. But....the world doesn't stop just because I don't feel good. Besides...I'm a Mom. I can't just lie down. It's just not an option.

 

[~Wisdom Seeker~]

Hi everyone. I posted this to "Servant4Christ" just a minute ago. I have fibromyalgia at age 18 - it's nuts, isn't it?

I was diagnosed at 23. My doctors did a history and determined that it probably started around age 17, the same time as my Lupus Disease.

I've lived with this for 24 years now? I've learned what causes flair ups and how to prevent them with eating right, exercise, suppliments, avoiding stress.

What it comes down to is that Lupus and Fibromyalgia are chronic. I've learned to adapt.

 

[Muzza]

Hmmm yeah managing is very important. Today has been the worst day ive had for a long time, so ive just been doing nothing all day but chat online of play card games with a couple of friends. Oh and watch some TV and Futurama. Which is all good.
So many of my friends just dont know how to slow down and take things relaxed. I really wish they would, because I just know theyll come to something bad if they dont.

 

[Lbiagm]

i feel ya'lls pain because i have to deal with my mom having it.

 

[Muzza]

Yeah.

 

[Lbiagm]

yep muzza.

 

[allieisme]

I was diagnosed with it a few years ago, but I never agreed with the diagnosis, I know there was something else wrong. The doctors didn't know what and just pinned the fibromyalgia logo on me. After 6 months I had my official diagnosis, rheumatoid arthritis.

Wow, that's horrible.. My friend has RA and is in constant pain, she is 29 and she has had it for a couple of years, and its gone rampid throughout her body, in fact she went to the ER last week because her throat/lymph nodes were swollen and the ER dr said she was only receiving 80% of her oxygen and that the RA was trying to find spots to attack in her throat because it couldnt find anywhere else to latch on (?) or attack..
Didn't they test your RA before they diagnosed you with fibro?