My daughter has an obscure genetic mutation that causes cystic fibrosis. So far, thanks be to God, she is healthy and thriving. I was wondering if anyone else is dealing with parenting a child with CF? Would be nice to connect.
No i do not have a child with CF, but wanted to acknowledge your post! And say that although i will not know what you will ever go through as a parent of a child with CF i am Lifting up Prayers for you all!
I did have a child tested for it once and i know that that alone is torture!
If you ever need someone to talk to i am here! Just bc i do not share in your same struggle God led me to this for a reason
God Bless You
Yes. My youngest son has CF (F508delta). I'm not sure how much help I can be at this moment, though, as he's still an infant, so I'm sure we're dealing with different issues.