Hi. I have only just found this section of the forum.
I am Carer for my husband who has post polio syndrome. Not many people know much about this, but if affects him very badly and he is deteriorating. I, too, have bad arthritis and am in a lot of pain a lot of the time, and find walking very difficult at times.
Things have been really bad just lately, and I feel wrung out completely. I feel as if I am nobody, since the OT people are only concerned with him, and make changes to our house that are for him and that do not take any account of me. Well, we have rebelled against this, to be honest, but that means we are now left on our own. We told them about this problem but they did not listen and so we decided to paddle our own canoe regarding such things.
It is just driving me mad at times, because I feel emotionally empty and at the end sometimes. There is no-one to talk to about this. We tried talking to our priest but it did not work as he was not too interested. We don't know where to go now. I tried the Carer's Association but that was mainly for people caring for children who are disabled.
I am not explaining this very well at all, as in a way, to explain it properly means to put myself in touch with so much inner pain again. Some days I do not know how to go on, and feel like ending it all. I know this should not be, and that I must not do that, and would not do it, but I do get these feelings and thoughts.
I wish I could explain better but I just can't.
Don't know if anyone will see this, as I realise this is a part of the forum that is not often visited. But thankyou for listening if you have read this, and God bless you.
I am Carer for my husband who has post polio syndrome. Not many people know much about this, but if affects him very badly and he is deteriorating. I, too, have bad arthritis and am in a lot of pain a lot of the time, and find walking very difficult at times.
Things have been really bad just lately, and I feel wrung out completely. I feel as if I am nobody, since the OT people are only concerned with him, and make changes to our house that are for him and that do not take any account of me. Well, we have rebelled against this, to be honest, but that means we are now left on our own. We told them about this problem but they did not listen and so we decided to paddle our own canoe regarding such things.
It is just driving me mad at times, because I feel emotionally empty and at the end sometimes. There is no-one to talk to about this. We tried talking to our priest but it did not work as he was not too interested. We don't know where to go now. I tried the Carer's Association but that was mainly for people caring for children who are disabled.
I am not explaining this very well at all, as in a way, to explain it properly means to put myself in touch with so much inner pain again. Some days I do not know how to go on, and feel like ending it all. I know this should not be, and that I must not do that, and would not do it, but I do get these feelings and thoughts.
I wish I could explain better but I just can't.
Don't know if anyone will see this, as I realise this is a part of the forum that is not often visited. But thankyou for listening if you have read this, and God bless you.
