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Schizophrenia isnt fun

Neostarwcc

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So I was born schizophrenic and found out I also have Bipolar Disorder when i reached my early 20s. I'm now almost 40 (will be 38 in June). Having schizo-affective disorder (Schizophrenia with another mood disorder) has made me feel alienated from the world. Yes, there are other schizophrenic people out there who also have bipolar disorder or developed bipolar disorder later in life. But it feels like I'm the only one that gets psychotic and manic episodes at the same time and the less I sleep due to mania, the more psychotic I get. It's like having the worst of both worlds and I get manic/psychotic at least a few times a year. Often for months at a time. The longest episode I ever had lasted a little over a year.

I learned the hard way to take my meds though. About six years ago I had a massive psychotic/manic episode which lasted for a few months but it was the worst episode I ever had. I attacked my wife multiple times during the episode once where if my dog hadn't intervened (he went right after me after I attacked her in front of him) I might have killed her. While I don't remember most of the episode I do remember attacking her a few times and blacking out and I do remember the time our dog well... protected her.


I can't unsee or unremember it and I remember I attacked her because I thought she was the devil. She stuck with/by me because she knew i wasnt of sound mind when I attacked her. But, i still wish i could forget what i did to her and the fact that i almost killed her.

Needless to say I had to be hospitalized for that attack and I started to get better in the mental hospital. I also learned to take my meds from that point on and I haven't had an episode like that one since.


its been 6 years since that frightening episode and i would NEVER hurt my wife in any way, shape, or form like my drunken father abused me for almost 30 years.

Luckily even when not medicated I only hallucinate or hear voices during psychosis. And now that I'm medicated I only get psychotic/manic a few times a year. My greatest fear is to be locked in a mental ward for life or getting another episode like that one. I live constantly in fear of that everyday because I know that I can be dangerous at times. Especially when not taking my antipsychotics.

So why am I telling everyone this? Idk. I'm just chatty and I'm just hoping that somewhere out there there's another psychotic person out there like me. Or a skilled doctor that understands because most psychiatrists might have a basic idea of whats going on but it feels like even doctors cant understand what its like to completely lose your mind. I'm hoping they share my same fears because I never laid a single finger on my wife EVER when i've been in a sound mind. She stayed with me because I couldn't help it and I didn't recognize who she was or who I was or anybody really. It's extremely scary to be schizophrenic because sometimes you completely lose touch with reality. And that can be scary because you never know which episode is going to land you in a mental hospital. Or worse, when you're in a mental hospital and they try to convince you you're only there temporarily or worse permanently. You never believe them because I think of you are permanently in a hospital they're not going to say "you're not ever getting out."


Or worse. What if I completely forget about my wife and family and they visit me in a hospital and I dont even know who they are? Or if I think everyone close to me is either divine or demonic again? I'm hoping somebody out there understands or at least sympathizes.


Yes, mental hospitals are necessary but this isn't the 1940s when people like me were permanently locked away from their friends and family because they were well... dangerous. We have medication for that now but I just can't help but think about my ex GF who was in and out of mental hospitals her whole life. Now she's in Prison (she's getting out in a year or two from now for the second time) and she's been completely isolated from her family. Just because she needs that mental help and needs to serve her time.


Just... scary is all. Its really scary.
 
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ryan irving

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So I was born schizophrenic and found out I also have Bipolar Disorder when i reached my early 20s. I'm now almost 40 (will be 38 in June). Having schizo-affective disorder (Schizophrenia with another mood disorder) has made me feel alienated from the world. Yes, there are other schizophrenic people out there who also have bipolar disorder or developed bipolar disorder later in life. But it feels like I'm the only one that gets psychotic and manic episodes at the same time and the less I sleep due to mania, the more psychotic I get. It's like having the worst of both worlds and I get manic/psychotic at least a few times a year. Often for months at a time. The longest episode I ever had lasted a little over a year.

I learned the hard way to take my meds though. About six years ago I had a massive psychotic/manic episode which lasted for a few months but it was the worst episode I ever had. I attacked my wife multiple times during the episode once where if my dog hadn't intervened (he went right after me after I attacked her in front of him) I might have killed her. While I don't remember most of the episode I do remember attacking her a few times and blacking out and I do remember the time our dog well... protected her.


I can't unsee or unremember it and I remember I attacked her because I thought she was the devil. She stuck with/by me because she knew i wasnt of sound mind when I attacked her. But, i still wish i could forget what i did to her and the fact that i almost killed her.

Needless to say I had to be hospitalized for that attack and I started to get better in the mental hospital. I also learned to take my meds from that point on and I haven't had an episode like that one since.


its been 6 years since that frightening episode and i would NEVER hurt my wife in any way, shape, or form like my drunken father abused me for almost 30 years.

Luckily even when not medicated I only hallucinate or hear voices during psychosis. And now that I'm medicated I only get psychotic/manic a few times a year. My greatest fear is to be locked in a mental ward for life or getting another episode like that one. I live constantly in fear of that everyday because I know that I can be dangerous at times. Especially when not taking my antipsychotics.

So why am I telling everyone this? Idk. I'm just chatty and I'm just hoping that somewhere out there there's another psychotic person out there like me. Or a skilled doctor that understands because most psychiatrists might have a basic idea of whats going on but it feels like even doctors cant understand what its like to completely lose your mind. I'm hoping they share my same fears because I never laid a single finger on my wife EVER when i've been in a sound mind. She stayed with me because I couldn't help it and I didn't recognize who she was or who I was or anybody really. It's extremely scary to be schizophrenic because sometimes you completely lose touch with reality. And that can be scary because you never know which episode is going to land you in a mental hospital. Or worse, when you're in a mental hospital and they try to convince you you're only there temporarily or worse permanently. You never believe them because I think of you are permanently in a hospital they're not going to say "you're not ever getting out."


Or worse. What if I completely forget about my wife and family and they visit me in a hospital and I dont even know who they are? Or if I think everyone close to me is either divine or demonic again? I'm hoping somebody out there understands or at least sympathizes.


Yes, mental hospitals are necessary but this isn't the 1940s when people like me were permanently locked away from their friends and family because they were well... dangerous. We have medication for that now but I just can't help but think about my ex GF who was in and out of mental hospitals her whole life. Now she's in Prison (she's getting out in a year or two from now for the second time) and she's been completely isolated from her family. Just because she needs that mental help and needs to serve her time.


Just... scary is all. Its really scary.
Boy am I feeling for you bud. i hope you havent lost hope and that you understand solidly (like you said) that you would never hurt your wife intentionally. I want you to know that i believe you. I have psychosis. I have shared sensations and experiences and sometimes when i get frustrated I lose control of the experience and sometimes accidentally have a thought that hurts Jesus. I don't want it to happen, I just want to pray or calm down but my shared experience takes a life of its own and all I can do is run and hide. I've been dealing with this for months. its a nightmare. I have such little autonomy over my fears that yesterday I accidentally slapped Jesus and I had to devote the remainder of my resources and day understanding that I didnt will that. Boy after something like that it makes you self condemn almost immediately. Please dont have a guilty conscience or self condemn. You are a good person. believe it...
 
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Neostarwcc

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Boy am I feeling for you bud. i hope you havent lost hope and that you understand solidly (like you said) that you would never hurt your wife intentionally. I want you to know that i believe you. I have psychosis. I have shared sensations and experiences and sometimes when i get frustrated I lose control of the experience and sometimes accidentally have a thought that hurts Jesus. I don't want it to happen, I just want to pray or calm down but my shared experience takes a life of its own and all I can do is run and hide. I've been dealing with this for months. its a nightmare. I have such little autonomy over my fears that yesterday I accidentally slapped Jesus and I had to devote the remainder of my resources and day understanding that I didnt will that. Boy after something like that it makes you self condemn almost immediately. Please dont have a guilty conscience or self condemn. You are a good person. believe it...

Hey! Thanks! I'm glad there's somebody out there that's going through the same thing! It's great to know that somebody else knows what I'm going through and believes that I didn't intend to hurt my wife. She knows it too or she wouldn't have stayed with me. I definitely was not in a sound mind when I hurt her and was completely absent from reality. Even the hospital that had to treat me believed me that I wasn't at fault and didn't know what I was doing but they were like "you hurt her so you're going to be here for at least a week until you get better".

Anyway, thanks I know I'm a good person. You made my day by reaching out. Thank you.
 
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AceWestfall08

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Schizo is definately a beast. But it can be managed. I know your struggle. schizoaffective bipolar type 2 here. This illness has changed my life completely, but it has also taught me to appreciate the smaller things in life. The find genuine joy in little things like relationships and small moments with family. Or the love and appreciation of a pet/animal. It allows be to take small victories and celebrate them as major victories. Which allows me to build upon towards the next victory. Hang in there. the most important thing, is NOT TO LOSE HOPE. Hope is our lifeforce.
 
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Neostarwcc

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Schizo is definately a beast. But it can be managed. I know your struggle. schizoaffective bipolar type 2 here. This illness has changed my life completely, but it has also taught me to appreciate the smaller things in life. The find genuine joy in little things like relationships and small moments with family. Or the love and appreciation of a pet/animal. It allows be to take small victories and celebrate them as major victories. Which allows me to build upon towards the next victory. Hang in there. the most important thing, is NOT TO LOSE HOPE. Hope is our lifeforce.


I mean now that im medicated with Caplyta its literally been the most helpful antipsychotic ive EVER been on. I've been on it for about a month now and my mania is doing much, much better than it was ever before on Latuda or any other antipsychotic. It does wonders for my mood and mania. Latuda did very well at treating my psychotic symptoms but did very little for my mania.

Cayplyta is literally lifting the weight on everything right now. Im off latuda, it's dealing with my psychotic symptoms so far, ive been manic three times since ive been on it but ive recovered from the episodes very, very fast and my mood is 50,000x better. Love Caplyta!
 
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AceWestfall08

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i am currently in my maniac stage right now. I went off my medicine around thanksgiving because my insurance ran out. I just recently got my insuarance back and now im on day 3 of being back on my medicine. Last week, i barely slept at all, i was so maniac. The last few days though, i have been able to get some sleep and quiet my mind.
During my maniac stages, i believe that i am walking like enoch with God directly, or i am the archangel michael fighting demons.
I am thankful that my mind is now starting to quiet down again slowly as i get back on my medicine.
 
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Neostarwcc

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i am currently in my maniac stage right now. I went off my medicine around thanksgiving because my insurance ran out. I just recently got my insuarance back and now im on day 3 of being back on my medicine. Last week, i barely slept at all, i was so maniac. The last few days though, i have been able to get some sleep and quiet my mind.
During my maniac stages, i believe that i am walking like enoch with God directly, or i am the archangel michael fighting demons.
I am thankful that my mind is now starting to quiet down again slowly as i get back on my medicine.


Honestly? I know what thats like. I've technically had schizoaffective disorder my entire life. I am nearly 40 years old in a few months I will hit the big 40 and I will find out either tomorrow or the next day whether or not my daughter is going to finally arrive (my wife may or may not be pregnant she is testing tomorrow morning and again on the 2nd if tomorrow is negative but there honestly a very good chance that she is.).

But anyway enough about me I am just very excited about my daughter potentially finally coming into the world its totally off topic. Anyway, I know what thats like. I had my first manic and psychotic episode in 2011 so almost 15 years ago. But as a child I got hallucinations and some symptoms of schizophrenia I just thought those symptoms were normal so I didnt tell my mother about them. My mother was a nurse for over 45 years before she finally retired about 5 years ago so my mom would have recognized the signs of mental illness right away and gotten me help as a child but as a child I thought the hallucinations were a normal thing every kid experienced so I never told her.

Then in 2011 my first episode happened and... it was a big one. It wasnt my largest ever but it was pretty big. During my largest ever I had completely lost my mind and had hit my wife (I cant remember if I had shared that in the OP or not i posted this topic like 5 years ago).

But... anyway... long story short? I know EXACTLY what you're going through. Often when I used to go manic I used to go manic for 3-4 months at a time straight. My manic episodes were long and terrible and felt like they were never ending and honestly? I had thought of self harm several times. But God and CF got me through those times.

I dont know what its like to not have insurance though my mom gave me insurance until I was 21 amd ive had medicaid ever since then. I got ssi at the age of around 24 or 25 until around 6 months ago when they cut me off because my wife Jeanette made too money. So back then I had almost lost my medicaid because I lost my ssi.

It literally takes over $200,000 in medical costs and medicine to keep me alive every year so I HAVE to have medicaid. So luckily I always will qualify for it because they will always go based off of my income which is $0 and because they will always go off of my disability which is permanent (schizoaffevtive disorder which is permanent and severe without over $100,000 worth of medication a year to manage it and my eosinophelic asthma and other issues. So I will always qualify for medicaid because of my income, absurdly high medical costs, and permanent disability. If you live in the states maybe you should consider medicaid too depending on how much you make or if you're married. Because if you're mental illness is debilitating enough, you'll always qualify. You'd just have to reapply every year.
 
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