Prayers for me please.

Sorry for making a duplicate thread but I figured the old thread was getting kind of full and I wasnt able to describe the whole situation and it was about my father in law passing away and I didnt want to change the topic about me.

Ok so here's whats going on.

Theres several things going on in my life right now. One, as you know my father in law passed away last Sunday and my wife and I are going from New York to Ohio for the funeral this Sunday and will be returning on the 10th. Two, ive been suffering many months with severe asthma and gasping for air at night thinking it was my sleep apnea at night when in reality it was my severe asthma. This gasping at night stumped my pulmonologist for many, many months he ran every test in the book and couldnt figure it out and meanwhile we tried every asthma treatment available for my asthma and nothing could provide relief long enough. Eventually we both together came up with the idea for a biologic so he ordered a blood test and when the results came back it turns out, I have eosinophilic asthma. For those who dont know what that is Its a very rare very severe form of asthma that definitely qualifies me for a biologic and medicaid approved the biologic in 2 days so very quickly.

Anyway, this afternoon I start my first dose of the biologic and ive been taking trelegy (an inhaler) for a few days now. Im hoping and praying they both give me some relief together because ive been suffering for many months. Just absolutely suffering and I need prayers on this. I also need prayers because when my wife and I get back from the funeral I will be prepping for 4 days (the 11th-to 14th) for a colonoscopy on the 15th so they can finally figure out why ive been constipated for decades and try to get that straightened out.

Oh and my psychiatrist just out me on caplyta yesterday and im being taken off of latuda slowly because I was concerned about my weight and caplyta is much easier on weight gain. Latudas been very helpful over the years but its been keeping me over 400 pounds so id rather not jeopardize my health to keep my sanity when other antipsychotics can help with my schizoaffective disorder a lot easier.

Anyway, thats whats going on keep me in your prayers and we can pray and hope together that everything works out. Thanks for your prayers and sorry again for the double post.

Ok so sorry about not posting an update yesterday we didn't get home until late and I was busy.

So the nucala worked pretty much from the moment my pulmonologist gave the injection. My pulmonoligst said this was impossible so I asked both google ai and chatgpt what could have gone on and they both said that nucala starts working by blocking il5 receptors immediately and can start opening airways from immediately after the injection is given and many people report starting to feeling relief right after the injection which is what happened to me.

Today I'm feeling and breathing MUCH better as was I yesterday so thank you for your prayers they worked. However my nighttime gasping still hasn't improved in fact, last night it got significantly worse. I'm going to have my wife check in with a pharmacist before we leave for Ohio tomorrow and see what they say. Maybe it will improve over time? But I'm REALLY glad my insurance doesn't have to pay for another biologic. Nucala was plenty expensive enough on its own.

We made it to Ohio okay. It took us 14 hours to get here. We left at 8 am this morning and we got here at 10 o clock at night. I'm tired I'm going to bed it's been a long day. Just figured I'd let everyone know we made it to Ohio okay.

We're on our way home we've been on the road for 6 hours so far. So far the roads haven't been terrible but they're supposed to get far worse on the journey back. Keep us in your prayers and I will keep y'all updated.

we pretty much just got home. The roads were TERRIBLE and I selfishly encouraged my wife to drive the rest of the way instead of get a hotel in potsdam/Canton but, we're here, we're safe and we didn't crash. We did go off of the road and need to call geico to get us towed out of the ditch but we were fine. But, I feel SO guilty for being so selfish. The roads were just so terrible and I put our lives in danger just because I wanted to go home. Just... not good. Anyway, we're home and we got here safe.