The General Mental Health Forum is now a Read Only Forum. As we had two large areas making it difficult for many to find, we decided to combine the Mental Health & the Recovery sections of the forum into Mental Health & Recovery as a whole. Physical Health still remains as it's own area within the entire Recovery area.
If you are having struggles, need support in a particular area that you aren't finding a specific recovery area forum, you may find the General Struggles forum a great place to post. Any any that is related to emotions, self-esteem, insomnia, anger, relationship dynamics due to mental health and recovery and other issues that don't fit better in another forum would be examples of topics that might go there.
If you have spiritual issues related to a mental health and recovery issue, please use the Recovery Related Spiritual Advice forum. This forum is designed to be like Christian Advice, only for recovery type of issues. Recovery being like a family in many ways, allows us to support one another together. May you be blessed today and each day.
Kristen.NewCreation and FreeinChrist
By Jesus' stripes we are healed. Just cast your cares to the Lord and trust that you are healthy. Keep saying out loud BY JESUS' STRIPES WE ARE HEALED! Claim it. Have faith. Praying for you. Start positive thinking. Stop paranoid doubtful thinking.
Hi everybody!
My sickness started when I was 6 months old, so I guess I did not have enough faith
I got poisoned with mercury from medications they gave babies for teething troubles and had symptoms of cfs since. Then I was poisoned again when my dad gave me some liquid mercury to play with. A visit to the dentist caused permanent neurological problems as he gave me NO2 which you should never give to people with MTHFR mutations.
At 17 I was unfit for full time work and continued to worsen as I aged. In time I got diagnosed with Fibromyalgia, CFS, Autoimmune Thyroid Disease (Hashimotos) Interstitial Cystitis, and then 15 years ago with Lyme Disease.
I am in severe pain all of the time but have not been able to tolerate any medications for about 20 years, since I had a severe pesticide exposure. I cannot eat most foods, nor most supplements and it is unsure whether I can tolerate antibiotics for the Lyme.
I did find some answers in getting my genes tested at the lab in the US 23andme which the FDA wants to close down. They do it for $99. I found out that the mercury switched on genetic defects (stress and poor diet does it as well) and that my body has great problems detoxifying. Also folate and b12 metabolism are greatly slowed down so I need to take activated forms of these nutrients as do many people with cfs (people on a cfs forum found they had the same defects) but the worse and longer the situation has gone on, is the worse effects you get from taking them.)
So I am in a position where anything that can help me is not tolerated. So I guess I should positively think that they are? What nonsense.
Anyway much love and sympathies to you all fellow strugglers. Organic non processed food is the way to go and doing without medications has saved my life I think.
For those who have the same mutations which is very likely, you need to cut out anything that has artificially enriched vitamins. Folic acid is deadly to us as it cannot be metabolised and builds up in the body. No 1 deadly additive.
Most untreated Lyme suicides are through the pain. I am just keeping my head above water as I have no support or family. Churches have never helped, in fact they have made things worse for me due to feelings of rejection which I already get from a useless NHS.
God's blessings to you.
It could possibly be true.Yeah...I know what you mean.
They keep saying how MILD/moderate exercise and stretching helps. It's probably true.
PS: since you day both you and your mom have it and I believe my mom did, too...I wonder if it's hereditary?
It could possibly be true.
Oh yes, a doctor told my mom "All you need to do is exercise. Thats your only problem"
I'm so glad you didnt listen to him! I've learned that doctors dont want to learn and grow, they want to stick to what they read when they became a doctor. Anything new has to either come from a textbook or a required "moving with the times" about new treatments and diseases. They close their minds and ears if a patient comes in and tells them something they're new to hearing. It's why I laugh when I watch these shows that say "Talk to your doctor, tell them and help them learn" I'm like "LOL!" because it doesnt work. Not with the doctors I've been to, or Mom has been to, and thats -a lot-.While it is true we do need to move, we must be careful about how we exercise. We do not build up muscle like normal people do with exercise. They've done studies of people in similar condition, but one group with fibro and the other normal. They took blood samples before, during and after exercise. Normals have an increase of certain chemicals that get released during exercise (ok--so I forget what they are!!) it's normal to do that, but then they drop back down after a couple of hours---ours remain high for as long as 36 hours or more post exercise. We can actually destroy muscle if we overdo. What we do must be gentle. I had one idiot dr tell me that strict, vigorous exercise would actually cure this!!--There is no record of that and certainly doesn't explain how a 9 year old gymnist came down with this! Had I listened to this quack I'd be in serious trouble now. The above research hadn't come out then. Everybody is different, and some people can tolerate more exercise than others.
Thank you so much for your encouraging words I've never heard of that site but I will check it out right now. My fur babies are the best! They give me such laughs every day, they are awesome! I have a boxer/great dane and a little long haired chihuahua.Jennie:
Your new game plan should include a great deal of laughter!! "It doeth good, like a medicine!"--On patientslikeme.com under the fibromyalgia forum they have a "Lighter side" thread where are posted the funnier side of life--alot of animal funnies that really get you laughing. Also in new game plan, if you don't already have one--we do love our fur babies--and some prefer the feathered variety--whatever--God has given us animals for a reason, they give us unconditional love and keep our spirits and our energy and our love levels up. It is extremely difficult to cope with life when in constant pain, but it's really important for us to try to maintain a positive outlook and count our blessings, even when we feel like we've been run over by a Mac truck, over and over.