T
tryingtobeagain
Guest
As some of you know, I have a duaghter who is suspected of having Asperger's Syndrom (formerly posted under tryingtobe). She had her assesment and they couldn't diagnose because they said she has many symptoms but they are not spread out properly (all her symptoms are in one category). She needs to be reassesed in one year.
Now, my daughter has been diagnosed as developmentally delayed very early and we've had support from our local early intervention program as well as other programs right away. I saw that she was delayed and worked like crazy to catch her up and support her. I did my own research and followed all the specialists advice to the letter. I must mention that I did this all by myself as her father refused to believe that anything was wrong with her despite what the doctors say. I think she's doing absolutely amazing and I am so proud of her everyday.
So here are my two questions:
1) The autism team told me that I was already supporting my daughter as if she had Asperger's syndrome which can be a bad thing. When Asperger's was first suspected, it was because of her behaviour which was difficult to deal with. I immediately started reading on it and it definately sounded like my daughter so I started implementing some of the care and support strategies on my own. The autism team thinks I may have helped her to deal with things in a way that she no longer shows symptoms for some aspects. This means that she won't be elligable for other outside support including financial support. So they tell me I'm doing a good job with her, but it's a constant struggle and now I'm wondering: did I actually hurt her by limitling the support she will receive?
2) Some of her symptoms were getting so much better and then she had a small relapse because of a change in her routine. Her father just moved back to our my city and now wants to take her overnight (she's 3). I don't want to do this because I feel that she will suffer more from the change, and nightitme is one of our biggest struggles if things are not exact. Does anyone know of any research about the need for consistency specifically at night?
Thanks for any advice or feedback you can offer.
Now, my daughter has been diagnosed as developmentally delayed very early and we've had support from our local early intervention program as well as other programs right away. I saw that she was delayed and worked like crazy to catch her up and support her. I did my own research and followed all the specialists advice to the letter. I must mention that I did this all by myself as her father refused to believe that anything was wrong with her despite what the doctors say. I think she's doing absolutely amazing and I am so proud of her everyday.
So here are my two questions:
1) The autism team told me that I was already supporting my daughter as if she had Asperger's syndrome which can be a bad thing. When Asperger's was first suspected, it was because of her behaviour which was difficult to deal with. I immediately started reading on it and it definately sounded like my daughter so I started implementing some of the care and support strategies on my own. The autism team thinks I may have helped her to deal with things in a way that she no longer shows symptoms for some aspects. This means that she won't be elligable for other outside support including financial support. So they tell me I'm doing a good job with her, but it's a constant struggle and now I'm wondering: did I actually hurt her by limitling the support she will receive?
2) Some of her symptoms were getting so much better and then she had a small relapse because of a change in her routine. Her father just moved back to our my city and now wants to take her overnight (she's 3). I don't want to do this because I feel that she will suffer more from the change, and nightitme is one of our biggest struggles if things are not exact. Does anyone know of any research about the need for consistency specifically at night?
Thanks for any advice or feedback you can offer.
