Hi Im Renee. I have 5 children, Ryan is 15, Bekcah is 12, Robbie is 11 and he has Prader Willi Syndrom, Raelynn is 7 and Daniel is 4 and he is legally blind.
My two boys that have special needs have two totally different things.
Robbie:
Prader Willi Syndrome is a chromasomal defect effect chromosome 15. He has moderate mental retardation with some destinct facial features, he has small hands and feet, and short stature, but the biggest thing is the part of the brain that tells you your full doesn't function. He is hungry all the time. He seeks food, eating anything that appears to be edible, from any where he can find it. There are also the behavior problems. He also is the most loveing child. And he love Jesus with all of his heart.
Daniel:
Daniel was born with Optic Nerve Coloboma's and Micropthalmia. In the last year his left retina has completely detached and he is 100% blind in his left eye. Optic Nerve Colobomas are defects in the formation of the pupil. The severity depends on when the defect happened while he was forming as a fetus. Daniel's Colobomas are about as sever as you can get before it affects the brain. Micropthalmia is simply small eyes. Although Daniel's Eyes look very small his case of Micropthalmia is moderate. Some children who have this condition only have a small eye but with an almost empty socket. His detached retina happened because of the severity of his coloboma's. We are at risk of it happening in the other eye also and have to keep an eye on him. Daniel is a very active 4 year old. He goes and goes and goes, just like the energizer bunny! He makes me tired. LOL
I just wanted to introduce myself and my special needs children. I am looking forward to getting to know you all!
My two boys that have special needs have two totally different things.
Robbie:
Prader Willi Syndrome is a chromasomal defect effect chromosome 15. He has moderate mental retardation with some destinct facial features, he has small hands and feet, and short stature, but the biggest thing is the part of the brain that tells you your full doesn't function. He is hungry all the time. He seeks food, eating anything that appears to be edible, from any where he can find it. There are also the behavior problems. He also is the most loveing child. And he love Jesus with all of his heart.
Daniel:
Daniel was born with Optic Nerve Coloboma's and Micropthalmia. In the last year his left retina has completely detached and he is 100% blind in his left eye. Optic Nerve Colobomas are defects in the formation of the pupil. The severity depends on when the defect happened while he was forming as a fetus. Daniel's Colobomas are about as sever as you can get before it affects the brain. Micropthalmia is simply small eyes. Although Daniel's Eyes look very small his case of Micropthalmia is moderate. Some children who have this condition only have a small eye but with an almost empty socket. His detached retina happened because of the severity of his coloboma's. We are at risk of it happening in the other eye also and have to keep an eye on him. Daniel is a very active 4 year old. He goes and goes and goes, just like the energizer bunny! He makes me tired. LOL
I just wanted to introduce myself and my special needs children. I am looking forward to getting to know you all!
