I won't be on the forums much anymore (life is getting to busy for me to justify this little "lazy moment" of my day--heehee), but I wanted to ask a favor of some of you.
Last week we noticed a funny little ridge in the middle of my youngest son's skull. We didn't think much of it, but I did do some internet research and didn't really like what I found. So we took him into our Pediatricion and then over for skull X-rays.
Apparently his soft spot is fusing together way before it ever should. It's growing in on itself, causing the ridge like bump, but the problem is: in most cases, it cuts off room for the brain to grow and expand.
We have no idea, at this moment, if the skull will continue to close in on itself or if this is all that it will do. We have no idea, really, and only time will tell. All we do know is that so far, it's not a good thing! If it continues and the brain has no room, that causes all sorts of problems (as you can imagine what having a squished brain would do).
The only thing that helps is to have skull surgery, which is a hard thing to contemplate when you look at a cute little 1.5 year old toddler scampering happily about. It's hard to imagine his brain slowly being cut off, or the thought of someone sawing into it in the hopes that it will help give the brain room to grow. Again, this could be nothing--it could just be a little ridge and everything else will develop just fine. That's just it--we don't really know, and we're not going to for a little while till we see how this all plays out.
We're not freaking out or anything. Actually, we both have a very calm sense of peace about it. We're not sure if we're supposed to be fighting the enemy, or if this is the hand of God, or what... until we do have a clear sense of what's going on, I think we'll continue doing what we are doing: walking in the Father, trusting Him to be big enough to know what's going on and what we need to do about it. And big enough to decide the future of our sweetheart, whether that means a fully functional life or dealing with some difficult issues--he still belongs to the Lord either which way, and God's glory will be seen through his life.
But all that to still say, we'd really covet your prayers. Just to know what to do (spiritually speaking and linearly), for peace to continue, for excellence in medical help (if that's what is needed), etc... His name is Israel, by the way.
I really really really appreciate it. And I'll miss all of you too! I'll probably come back once or twice for more goodbye's, but I really need to stop spending time at CF at this stage. Real Life has more than enough for me in there, and I feel like I'm supposed to be "all there" for now. *grin*
Blessings,
Molly
Last week we noticed a funny little ridge in the middle of my youngest son's skull. We didn't think much of it, but I did do some internet research and didn't really like what I found. So we took him into our Pediatricion and then over for skull X-rays.
Apparently his soft spot is fusing together way before it ever should. It's growing in on itself, causing the ridge like bump, but the problem is: in most cases, it cuts off room for the brain to grow and expand.
We have no idea, at this moment, if the skull will continue to close in on itself or if this is all that it will do. We have no idea, really, and only time will tell. All we do know is that so far, it's not a good thing! If it continues and the brain has no room, that causes all sorts of problems (as you can imagine what having a squished brain would do).
The only thing that helps is to have skull surgery, which is a hard thing to contemplate when you look at a cute little 1.5 year old toddler scampering happily about. It's hard to imagine his brain slowly being cut off, or the thought of someone sawing into it in the hopes that it will help give the brain room to grow. Again, this could be nothing--it could just be a little ridge and everything else will develop just fine. That's just it--we don't really know, and we're not going to for a little while till we see how this all plays out.
We're not freaking out or anything. Actually, we both have a very calm sense of peace about it. We're not sure if we're supposed to be fighting the enemy, or if this is the hand of God, or what... until we do have a clear sense of what's going on, I think we'll continue doing what we are doing: walking in the Father, trusting Him to be big enough to know what's going on and what we need to do about it. And big enough to decide the future of our sweetheart, whether that means a fully functional life or dealing with some difficult issues--he still belongs to the Lord either which way, and God's glory will be seen through his life.
But all that to still say, we'd really covet your prayers. Just to know what to do (spiritually speaking and linearly), for peace to continue, for excellence in medical help (if that's what is needed), etc... His name is Israel, by the way.
I really really really appreciate it. And I'll miss all of you too! I'll probably come back once or twice for more goodbye's, but I really need to stop spending time at CF at this stage. Real Life has more than enough for me in there, and I feel like I'm supposed to be "all there" for now. *grin*
Blessings,
Molly
Prayers for your family, Israel, and also the doctors that are involved in his care! You will be missed, Molly!
