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Migraines

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rosemoss

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I have FMS, RA and have dealt with migraines since I was a teenager.

Migraines and headaches are a big part of my life, whether I want them to be or not.

I thought we could start a thread where we could vent, share pain relief ideas or just talk about how migraines and headaches affect our lives.

I'll start. :thumbsup:
I woke up this morning about 5am with the sharpest pain behind my right eye and right side of my head. I absolutely dread waking up with a headache. I had major nausea but gratefully I didn't vomit. Anyone who has ever had a migraine or bad, bad headache knows that vomiting is absolute h-e- double hockey sticks!
But I'm feeling better now, it just takes away from your life when you have to spend the entire morning caring for the headache.:sigh:

rosemoss
 
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I will be praying for you! I was healed of trigeminal neuralgia, a neurological disorder that causes electrocution-type pains in the face. I had it almost seven years, and I was terribly ill the past 1.5 years I had it. Then in October I was healed through prayer. During the worst part of the illness, God led me to write a devotional for people who have pain/illnesses. I could not sleep at night because of the pain. I had become extremely isolated. I was healed. and Things have really changed now, and I cannot thank God enough. Even in my darkest hours, He was with me. I felt His presence very strongly. I will pray that your comfort will be great and that relief is on its way. God bless you!
 
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rosemoss

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I have what I call "headpain" and it does happen on the sides of face sometimes. Doctors look at me like I'm nuts when I try to describe it. I had a temporal biopsy done about 4 yrs ago to test for temporal arteritis and it came back negative, thank goodness but I still don't know what this pain is from. 2 doctors say its probably related to the FMS. Who knows. I just deal with it.
withgreatmercy,
I'm interested in reading your book, when did it come out and where would I get it?

rosemoss
 
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I do not know how much you have checked out other disabilities, but you might want to see if you have symptoms of trigeminal neuralgia. If you go to the links on my website, you will see some good sites that describe what it is. I am not sure I can put the web address to my site on this page, so I will send it to you via another means. Take care and keep the faith!
 
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allieisme

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withgreatmercy said:
I am not sure I can put the web address to my site on this page, so I will send it to you via another means. Take care and keep the faith!
No you may not.. Thank you for not putting it up. You can contact members via PM and give them your information that way, or you can put your website in your profile..
 
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night2day

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From what I know migraines can run in families. My mother had them. I've certainly had them. And one of my brothers had them.

From my own experiance I recall having some aches "right behind the eyes and between the brows" and the stomache got a little queasy when I was a kid. Although sometimes I mixed them up with eyestrain though.

They slid into some of the the background during my school years, only to begin returning when I was in college.

I had recovered from 7-8 month fight with Mononucleosis in 1990-1. By the time I returned to college was dealing with various strange symptoms of some unknown illness (would later be known as the Myalgic Encephalomyelitis).

At first the headaches were like I was young, but "differnt" in some way, though I couldn't put I finger on it. Then I began having what I thought were small sinus headaches, thinking my allergies must have been getting worse. (They were actually, but that was beside the point.) Minor nausea came along with them along with a sensitivity to bright light. Unfortunately, at this time, I neither felt the need to keep a diary, monitor, keep up any possible links to the weather and or pollen counts or anything of the sort. It might of helped alot if just did a little research.

By the time graduation came in 1994 the migraines grew worse. They still weren't on a regular-basis, but now the sympoms were changing more. Was unable to take in food or swallow medicine or water. Doctor finally diagosed the problem as "Sinus Headaches" and the inability for my stomach to hold anything was due to "mucus build up".

Unfortunateatly for 6 years I believed the diagnoses. :doh:

By late 2002 not only the migranes had increased rapidly to 3-4 times a week, lasting about 24-27 hours each. (The only way I knew they were seperate is they always took a 4 hour "break" in between if there's nothing to stop the process.) And the symptoms not only grew, they also held a particular pattern which they never failed to take unless, again, something was there to stop the process.

Getting tired of it on one of the "days off" I did a little research on weather.com since I noticed there was a connection between these, the allergies, as well as the weather...especially big weather changes....which lead to a few more sites. I printed a sheet or two and took them to my present doctor. After commenting on all the symptoms he gave me some Maxalt samples. Which is just as well since another Migraine had alreadry started before I got to his office. Two doses of the abortive med (acts to stop migraines in progress) and the migraine was gone.

I then needed to be sent to a Neurologist for a preventative. After a year, I think the Specialist is close. He has me on two strong differnt types of anti-seizure drugs. But, he's still working on it. If he wants me completely off the Maxalt, he'll have to talk to the One in charge with the weather and the pollen counts. Somehow I don't think it works that way.

As it is, the Maxalt puts me to sleep when there is a break through and I'm awake to notice it. Still, it's alot better than the alternative.

Although when it has broken through I guess as much with anyone's elses thoughts would be to crawl underneath a cubby-hole somewhere until it passes.
 
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rosemoss

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My dad had migraines, and so did his Mom. My oldest son has them every once in awhile. An interesting bit is that we are all the oldest in the family. :eek:
I've used Maxalt before, it worked. I remember it made me extremely sleepy and at the time I was a PCA, personal care attendant taking care of a 21 yr old girl with cerebral palsy and was deaf/blind. If I had a migraine while working, I couldn't just go to sleep, I had to watch her, although a couple of times she would lie down with me because I just couldn't handle the pain.
Immetrex made me sick to my stomach each and every time I took it.
I'm now on Exert.
Does a migraine for you ever start with an aura or some kind of "sign"? Alot of times I wake up with them. But, I have experienced an aura many times, its so weird. I was at work recently(different job, this one clerical) and I was working and I started the aura, it makes my eyesight go extremely funky and I can't see well for about 3-5min. But there's no pain at this point. So I take a exert and 9 times out of 10 it aborts the pain. It helps the meds alot of I can go lie down or sit quietly in calm place for about 15-20 min so the meds can do their best.
I know about the wanting to crawl in a dark, cool hole and just stay there.
My Mom and Dads house is very open and airy with lots of natural light coming in all of the time. My Mom calls our house the "cave", because I have mini blinds and pull blinds and curtains on each window so if I need to, I can make my own little cave! :D Good thing my husband doesn't mind.
Hang in there and God Bless,
rosemoss
 
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night2day

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rosemoss said:
Does a migraine for you ever start with an aura or some kind of "sign"? Alot of times I wake up with them. But, I have experienced an aura many times, its so weird. I was at work recently(different job, this one clerical) and I was working and I started the aura, it makes my eyesight go extremely funky and I can't see well for about 3-5min. But there's no pain at this point. So I take a exert and 9 times out of 10 it aborts the pain. It helps the meds alot of I can go lie down or sit quietly in calm place for about 15-20 min so the meds can do their best.

I think the Migraines with the auras are known as "Classics". I have "Common" which means...no aura. There are various other types of Migraines too. But I think these two are the more well known.

And from what I do know, (and you already know from your above posts) :cry: it is possiple to have a few differant types of head pain going on at the same time. (My mother has been known to get Migrain and cluster headaches. Ow!)


Sorry to cut it short...but
lighting + computer = BAD
 
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night2day

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Ok, in the clear for the moment. But they'll be back. They'll always be back...

rosemoss said:
My dad had migraines, and so did his Mom. My oldest son has them every once in awhile. An interesting bit is that we are all the oldest in the family. :eek:

Very! If it was just "all in the family" I wouldn't have been surprised. But the oldest?

I do know my mother's brother also deals with them.

I've used Maxalt before, it worked. I remember it made me extremely sleepy and at the time I was a PCA, personal care attendant taking care of a 21 yr old girl with cerebral palsy and was deaf/blind. If I had a migraine while working, I couldn't just go to sleep, I had to watch her, although a couple of times she would lie down with me because I just couldn't handle the pain. Immetrex made me sick to my stomach each and every time I took it. I'm now on Exert.

Never heard of Exert before. As for as the Maxalt goes, most of the times I get knocked out cold for 8-10 hours. And by then the Migraine symptoms were mostly well covered up to notice them much. (Although I notice even with the abortives as well as the preventatives all they do is suppress the activity and whatever is felt. It doesn't halt it completely.) And my blood pressure rises to 80/100. A concern especially since for some reason my brian isn't getting needed bloodflow to certain areas. And Maxalt, Imtarex, and other akin meds work by by lessening the inflamation by lowering down the bloodflow.

It was kind of your charge to understand when you needed breaks now and then. Really hard to about move with a Migraine at all, as well as when there's a drug making one sick.

I know about the wanting to crawl in a dark, cool hole and just stay there. My Mom and Dads house is very open and airy with lots of natural light coming in all of the time. My Mom calls our house the "cave", because I have mini blinds and pull blinds and curtains on each window so if I need to, I can make my own little cave! :D Good thing my husband doesn't mind.

I usually just hide underneath the blankets and stuff my face into the pillow. ;)

Hang in there and God Bless

You too!

Btw, if audiosensativity happens to be a problem or a growing problem I've found reduction/hearing protection headphones has helped quite a bit. I would heavily recommend if anyone was interested, they consider the really soft padded tops. They aren't cheap of course. But if one acquires the cheap ones with the hardened plastic, all they'll be doing is irritating an already sore spot.
 
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rosemoss

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night2day,
Thanks for the encouraging words, I appreciate them.
It's good to talk with other people, I've met several sweet and caring people at this site and I'm very thankful for that!!!:bow:

Hope you didn't get too bad of a storm. It was thundering here last night and suppose to storm tonight, the rain would be nice but not the wind and lightening!

Have a goodnight!

rosemoss
 
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night2day

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rosemoss said:
Thanks for the encouraging words, I appreciate them.
It's good to talk with other people, I've met several sweet and caring people at this site and I'm very thankful for that!!!:bow:

Me too. :amen:


Hope you didn't get too bad of a storm. It was thundering here last night and suppose to storm tonight, the rain would be nice but not the wind and lightening!

Lotta thunder and lighting. And some hail. Lasted part of the night. Was supposed to have a chance for severe weather this afternoon and this evening. Fortunately, it didn't show. We need the rain too. (We'll, there is a debate over needing and personally wanting the rain. Heh. But anyway...) Just not the severe stuff.
 
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I have had migraines my whole life. No one knew what they were at first, doctors just told my mom, it is normal for kids to have headaches. I didnt know anyone else had them. At 18 I saw my first neurologist. Since then I had gone through local doctors, cuz nothing they did seemed to work. Finally I got sent to Diamond Headache Clinic. I had gone there for several years.

I had gone through so much. Now I live with my mom and two brothers so they can keep an eye on me.

My headaches cause stars, so mine are classified as Migraine with Aura and Vascular Tension Headaches. Also I have a problem with my memory. I will lose days-I used to call them black outs, my doctor said I was having amnesia. I lost my driving privledges for awhile. Now I just make sure someone is in the car with me. I get the real bad upset stomache, throwing up, blurred vision (a strange thing with me, is one of my eyes has a wider dialation than the other one. I saw a specialist but he said there is nothing wrong with my eyes). They make me so weak.

I have moved to another state so I no longer go to DHC. I see a really nice neurologist/migraine specialist here. I get something called Trigger Point Injections. They help a lot. I never knew sleeping gave me so much problems-I had never known what it was like not to feel pain when I laid on my head. He also treats me with an anti seizure medicine, called Topamax and the muscle relaxer Zanaflex. Then on a as is needed regimine I have Frova-a vaso constricter-it has a two hour duration. And I have an orally discinigrating Zomig another vaso constricter, it really helps when you wake up with a migraine and are already sick. Or if you are out and you feel one coming on. (For me, this has been the most effective treatment plan).

I did try that Botox injections for migraines. It was given at the pressure points we migrainers have. It helped a lot of people, just not me. It made it so I couldnt squint and protect my eyes from the light. I had a five month long headache. I had to wear sunglasses all the time, and hats. The sun is a big trigger for me.

I hate migraines. They steal your life, and place you in a dark dungeon of silence. It is like life just passes you right by. You are robbed of being a good mother, friend, wife, daughter.

A cure would be nice.
 
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night2day

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There are quite a few differnt types of migraines out there. It wasn't until the late last century science began realizing they weren't "just stress" but were actually a real medial condition, which vary in degree and severity. Some can paralyze a person for days, place them in a hospital, or even cause strokes. Others remain benign, yet still very painful, While others linger within the gray areas.

With the average person, it seems a Migraine is just a "headahe". Of course, they never head one either.

Two sites I found with good info on Migraines include:

Miagraine Facts

M.A.G.N.U.M.
 
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rosemoss

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Yes, Treasurer, a cure would be nice.
On the really, really bad days I just thank God that someday we will be with Him, in His Glory, and we will be pain free. :amen:
In the meantime, its a blessing that we have this website that can bring us together to talk about our pains and problems, make suggestions and just listen. Alot of people go through chronic pain with no one in their life to support them, to love them. :sigh:

God Bless You,

rosemoss
 
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Thank you Rosemoss.

I totally agree, it is so nice to know someone out there knows and understands. My brother thinks I can pop a pill and go. If it were only so easy.

My family really doesnt understand, and it doesnt seem like they really want to. But I guess it is hard for others to understand something they have never known.

It was nice to see a thread about this topic. The last time I got to talk with others like me was about seven years ago-give or take. When I had one of my stays at the Diamond Headache Hospital. They had a really cool support group.
 
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night2day

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rosemoss said:
Thanks night2day, I'm gonna check those sites out.
How are you doing today? I'm praying you have no pain today!:prayer:
God Bless,
rosemoss


Thanks. :) Praying you find relief as well. Not everyone is the same and if there treatments availble to something, not everyone will react the same.

I'm fine. It wasn't my head really bothering me earlier. I went shopping and couldn't take much being out today. Think "it was the everything else".

As long as the weather stays stable and the pollen isn't that high...the Migraine medicine handles the Migraines for the a good part of the time. And even when I have to take the Maxalt, better that than the alternative. If I didn't have the Migraine medication....er...I wouldn't wanna think about it. None of my other medication would matter. Wouldn't be able to tolerate the medications. Or any food or drink for that matter. :cry:

What concerns me when the time comes is the same concern that already faces alot of Americans: Insurance, medications, & paying for them.

Would also even be nice if some of these medicines were OTC (over-the-counter), but there's no such thing. Ang pain reliever labeled as Migraine Relief brands such as by Tylonol or Alieve or whatever is just that...a label. The product carries the exact same ingrediants as their regular pain reliever. Was told by a Wal-Mart pharmcist of this when I asked.
 
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My doctor had told me some of those over the counter meds for migraines just added caffiene. I know they used to use caffiene like they use Imitrex now. (Crazy one of my doctors had migraines, he said he could take a couple of asprin and a cup of coffee and it would go away--oh to be so lucky). Didnt Cafergot have caffiene in it--back in the day (short for caffiene and an ergotamine).


That is something interesting about our migraines, not all of them are the same. What works for one may not work for another-medicine wise.

Blessings all.
 
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