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Goal for your child?

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DavidD

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What is your goal for your child? For us it was for Hannah to talk to me and now for her to talk to her teacher. She is handling change better and this was another. Write it out and pray over it nightly and find scripture. Our's for her talking was Mark 7:35 And straightaway his ears were opened, and the string of his tongue was loosed, and he spake plain. And as I would pray over Hannah I would change the his to Hannah or her and would pray, And straightaway Hannah's ears were opened, and the string of Hannah's tongue is loosed, and she is speaking plain. And remember to be a parent is being strength for your child even when you are so weak you don't feel as if you could ever get up and smile again. But stand strong for your blessing from God and God will reward you. I know this first hand. We, my wife and I just recorded Hannah talking and singing and shared this with Hannah's teacher and I will share this with others at Church. (And also remember God did not bring you this far to give up on you don't you give up on God. I have no idea why I just typed that the only reason I could think is someone needs to read this) Always pray for and over you children even when they are in school and for their friends and teachers.
 

Lena75

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Wow, I actually read your post last night and thought about that verse over and over in my mind, about loosening the tongue and being able to speak. Know what? For the first time, Isaiah's helper wrote in the agenda that she had to tell him to be quiet to eat his snack! Wow! He's been very talkative at school today. Now, we'll see if he will be quite so talkative at home! ;) Right now our goal is to get Isaiah not to hit other people. Apparently, this has been a problem at the school and we're all working on this. Trying to come up with new and different ideas to let Isaiah know that he can be in control of some things.
 
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DavidD

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Great news and our Pastor told us about that verse because he used it for his grandson and he is talking a lot. Hannah had problems with pushing her sister and hitting her mother and even me when she would have her melt downs or just if she wanted a toy Courtney was playing with. Prayer and patience and yes even tears and the knowing that God will answer. Hannah still has her days but she is growing out of the anger and she talks almost non stop at home. At school or anywhere else she is still quiet but even that is changing.
 
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Lena75

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We had problems with Isaiah showing any sort of emotion for the longest time. If he got hurt, he never cried. Only the past 2 or 3 years has he finally shown emotion. The funny thing is, he's fascinated with emotion posters! So now he's really trying to make connections. I think he's just about got it down pat. He's also realizing that other people have feelings and emotions too.
The school is concerned with him nudging other kids. He doesn't do it to hurt them, but it's in a friendly manner. Well, a couple weeks ago at a family function, my dad and brother had come up to me on either side of me and just nudged me. Now when I think back, could that be where Isaiah got it from? He notices so many things that we don't think about. Or is it that I do it without thinking? Stuff like this really makes us think about our actions and how they affect our children's lives.
 
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DavidD

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Our town had it's parade today and Hannah was in it on a float from school. Her class won a penny war and one of the prizes was the parade and a movie they will go to tuesday. Hannah did get a little over stimulated with this because I don't think she expected all the people but Stephanie said Hannah did wave, small wave but she did. Once again prayer and God's word spoken over her has been great for all of us. And even though she got a little over worked she only had a small melt down compared to well all out war at times. She got upset at me and started to have one of her melt downs but then she just went and layed down under our coffee table until she calmed down. I thank God for the calmness He has granted Stephanie and yes me this week. Monday is almost here and we should know the results by wednesday. Just wanted to share.
 
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Lena75

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Yep, parades can be overstimulating for our little ones! :) Isaiah was going to be in our town's parade, but they were mostly the adult special needs (they all dressed up as Frosty...cute! :) ) But there weren't going to be any other kids Isaiah's age. So next year, we (family support worker) and I are going to try to get the other parents of special needs in our school/area interested for next year's parade. With watching, Isaiah was mostly interested in the firetrucks and their lights and noise and the bands. He and the other kids got to pet a horse. Enjoyed getting as much as candy as he could. But, by the end Abe had to back him up to the building because he'd started to have his meltdown and started crying. He'd had enough excitement for and hour. He was fine the rest of the day.
This weekend was interesting. Abe and I went out all Saturday and left the kids with his brother and sister. (We went to celebrate our 10th wedding anniversary. ;) ) In Walmart we picked up a Kenny G "Miracles" Christmas cd. This morning I played it. Well, I was busy doing the dishes when I heard the first song playing again! Isaiah'd turned it back on. He's never done that before. Seems to like instrumental music over people singing. So now we've dug up our other classical piano and violin cds. Especially with the holidays coming up - starting next weekend -we're gonna need all the help we can get to unwind! ;)
 
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DavidD

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Hannah is doing better and she loves to sing and even record herself talking and singing and play it to hear herself sing and talk. Like you said, we're gonna need all the help we can get to unwind! Yes we pray but we also listen when God tells us what to do to help. Like I told Stephanie tonight God has created us to be fighters even before we truly served God. We know all is well but our minds at times do not like what is going on. And to a point maybe that is the way it is with Hannah and children who have the meltdowns their minds just say hey it's time to rest. Just a thought if I knew then we wouldn't be talking about meltdowns. We do know our source of strength.
And Happy Anniversary We celebrated 9 years in August.
 
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rakowskidp

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We have two children on the spectrum, with very different profiles. Here's what I'd like to see for them as they grow up:

Jacob is 5.5 and non-verbal. Of course, I'd love to hear him speak. In the short term, though, I'd love for him to develop a more cconsistent and efferctive means of communication in the hope that it would ease his frustration level. For example, the last few nights, he's become very angry and aggressive at bedtime. Through trial and error, we've discovered that he's getting hungry and thirsty, and in frustration of not being able to express himself, he gets angry at us, instead. I'd love to find a workable solution to this problem.

Lauren is 4.5 and has Asperger syndrome. Among typical peers in places like church, she stands out for a variety of reasons, including her inability to use the toilet, strange reactions to sensory offenses, and anxiety from changes in her environment (I'm not looking forward to introducing her to our new church building in February!). She really wants to play with the other children, but she frightens them. She's aware that she's "diffferent," but doesn't know what that means or how to deal with it. I'd love to see her anxiety and fear diminish to the point where she can develop real friendships.

Thanks for listening!
Dan
 
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kayd1966

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I pray for James every night when I'm putting him to bed...thanks for the reminder to pray scripture. I need to sit down and really seek the Lord's Will for James...Its real easy to pray my will...kwim?

My ultimate goal for James is that he will come to know Jesus as his Savior. There are many little goals along the way but in reality that is the only one that really counts for anything.

Because of Jesus!
KayD
The Lord is not slow in keeping his promise, as some understand slowness.
He is patient with you, not wanting anyone to perish, but everyone to come to repentance.
2 Peter 3:9
 
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Hisrosebud

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My current goal for Caleb is tolieting. Caleb is totally potty trained if he is naked. I was told that he isn't with underwear on because of sensory issues. We just started doing some things with him for sensory issues.


We bought 2 weighted balls from the exercise department from Walmart (5 lbs each) and some of those exercise bands. We are having him jump on the mattress on the floor ever hour or so.

Caleb is going to be 5 in May, they are not sure if he has autism or simply sensory integration disorder. I say simply with laughter, if anyone can imagine how not simple it is.

Today we had a break through. We bought spider man underroos and he actually on two occassions went pee with them on! PRAISE GOD!

I think this first week of "sensory diet" is what is helping, that and prayer.

Jane
 
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MentalSoliloquy

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rakowskidp said:
We have two children on the spectrum, with very different profiles. Here's what I'd like to see for them as they grow up:

Jacob is 5.5 and non-verbal. Of course, I'd love to hear him speak. In the short term, though, I'd love for him to develop a more cconsistent and efferctive means of communication in the hope that it would ease his frustration level. For example, the last few nights, he's become very angry and aggressive at bedtime. Through trial and error, we've discovered that he's getting hungry and thirsty, and in frustration of not being able to express himself, he gets angry at us, instead. I'd love to find a workable solution to this problem.

Have you tried/Considered a Picture Exchange Communication System?
 
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Lena75

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MentalSoliloquy said:
Have you tried/Considered a Picture Exchange Communication System?
This system does wonders! :thumbsup: My son is 9 years old and still has limited communication. We found that sign language was the real door opener, though. Just using simple words for the basic things in everyday life...he had to sign for before he could get what he wanted. Now, at school, he has a list of pictures inside his locker door. The pictures are his routine. He also has a row of pictures on his desk. It also helps him to "read" the pics from left to right and therefore, is good practice for when he reads a book.
 
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kayd1966

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PECS is awesome...that was the start of James speaking (his SLP started PECS with him when he was 2 1/2 and we used them till he started school). It did wonders for him...I still use the pictures for his schedule to help him deal with transitions. Which can be a real challenge sometimes. (as I'm sure we can all relate too).

Because of Jesus!
KayD
The Lord is not slow in keeping his promise, as some understand slowness.
He is patient with you, not wanting anyone to perish, but everyone to come to repentance.
2 Peter 3:9
 
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Hisrosebud

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You wrote about using a picture schedule. Before I knew what one was, I created one for Caleb's morning routine. This is what I did.


I went to the Home Depot (Lowes has them too) counter department. I got those free sample counter top chips. They have little holes in the top. I picked different colors, bright ones.

I drew a picture for each thing he had to do in the morning. (use the potty, wash hands, eat, clear his table, brush teeth etc). Then I hooked them on a metal ring that I bought in Staples.

He flips over each picture as he does his job. The last picture is a sticker of Barney which he gets to watch as soon as his jobs are done.

I spend so much money at Home Depot that I don't think they would mind the 10 missing chips....

Just thought I would share a cheap way to create a picture schedule.

Jane
 
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kayd1966

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AWESOME idea Jane...I've been looking for away to put James' schedule on a key ring but didn't want to use the laminated pictures.

Thanks for sharing!

Because of Jesus!
KayD
married to Eugene (5yrs) & SAHM to James (3) and Sarah (2)
The Lord is not slow in keeping his promise, as some understand slowness.
He is patient with you, not wanting anyone to perish, but everyone to come to repentance.
2 Peter 3:9
 
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kayd1966

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MentalSoliloquy said:
A picture schedule is not PECS, however, great idea!!

James started talking with PECS but since he ended up asking verbally, we dropped using the PECS system and now I just use the pictures to help him deal with his daily schedule. I didn't mean to cause any confusion with the PECS/picture schedule. Sorry if it did:( .

Because of Jesus!
KayD
married to Eugene (5yrs) & SAHM to James (3) and Sarah (2)
April is Autism Awareness Month
The Lord is not slow in keeping his promise, as some understand slowness.
He is patient with you, not wanting anyone to perish, but everyone to come to repentance.
2 Peter 3:9
 
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