Fibromyalgia

[AbidingInHim]

Hello,

after doing a lot of research and having a mother with fibromyalgia....I believe I might be suffering from the same it too......my question for you is.....is it worth going tohough a lot of testing and possible misdiagnoses and everything else that going to a doctor involves.....if there is nothing that can be done for you other then treat the symptoms......if you have this and were properly diagnosed....would you have gone through the diagnotstic proscess again?

Thank you for your guidance and in put
Roxanna

 

[tapero]

It's been so long I can barely remember all the tests they did, but I would want to be sure it's not something else that needs medication, so I think I would go through with the testing again myself. Hope that helps! Tapero

 

[2scoops]

It's been so long I can barely remember all the tests they did, but I would want to be sure it's not something else that needs medication, so I think I would go through with the testing again myself. Hope that helps! Tapero

First I would read a book called Freedom From Fibromyalgia by Nancy Selfridge. You may want to do a search on John E Sarno. Seek truth.

 

[frank1234]

Hello,

after doing a lot of research and having a mother with fibromyalgia....I believe I might be suffering from the same it too......my question for you is.....is it worth going tohough a lot of testing and possible misdiagnoses and everything else that going to a doctor involves.....if there is nothing that can be done for you other then treat the symptoms......if you have this and were properly diagnosed....would you have gone through the diagnotstic proscess again?

Thank you for your guidance and in put
Roxanna

I have learned that the way to deal with these types of illnesses is to treat the root cause, and for that you have to go through the Alternative treatments and medicines. Also their tests are much more different than regular tests and will help you deal with what's causing the problem and not just the symptoms. Of coarse they also can give you alternative medicine for the symptoms while not avoiding the cause. GOD be with you.

 

[Merlin]

It's good if you value a label.

 

[mont974x4]

I have fibro on top of my ankylosing spondylitis. The only diference between the two is my joints and bones are affected...my si joints and spine are fusing.

www.spondylitis.org has some useful info, plus many on the message boards have fought through years of testing/diagnosis/misdiagnosis. It seems most of the ladies get misdiagnosed or have the added diagnosis of fibro although I am a man the fibro seems to go hand in hand with my disease.

 

[MollyVee]

I would say yes to testing and actually being diagnosed. In all probability you are familiar with the symptoms of fibro but what if it were something else? I have self diagnosed myself from time to time and often I was wr ong.

 

[chris777]

I suggest coping without medication if at all possible, as my Fibro was both caused by medication , as well as cripplingly worsened by it.

It "bloomed" in early 2000 after being put on topomax,(to come off of a string of garbage psychotropic meds) following my divorce.

It took 3 years for me to get pain meds, and one of the main reasons I took them was to keep up on the job, and then after trying methadone with no benefit, I was put on Duragesic, the 3rd day on it I started burning which wasn't entirely unusual, until It got severe on the 4th day, and lasted in a cyclical nature for 3-4 hours, with 2 or 3 hours of easing, along with chills nausea and sweating. This lasted for over a month before finally subsiding and leaving me with a drasticly increased overall pain level, along with reducing my stamina to next to nothing. I tried to work, but could only work for an hour or 2 before noddng off from drousyness, or being in too much pain to work, so I would lie down for 20- 40 minutes and repeat, needless to say I was fired. I tried repeatedly to explain the situation, particurlarly the dramatic worsening of my symproms, to my doctors, who just blew it off as coincidence, and tols me it was just normal fibro. My body literally felt like the description of hell with weeping and gnashing of teeth.
I am now attempting to (unsuccessfuly) get on disability, and have been repeatedly told I can perorm the very job I was fired from over a year and a half ago, by the government agents. I honestly don't know what to do, If it werent for my parents, both me and my daughter would be homeless.
I just wish the doctors could find something, to explain it, or at the very least one of them would pay attention, and not just dismiss it as typical fibro. The pain doctor that helped "cause" me to get worse, and then dismiss my pain, freaked out about some alleged heartbeat irregularities, demanding my primary physician test my heart, but just blew me off when I told her of how duragesic destroyed my life, and that it would(and did) cost me my livelyhood.
I had a heart catheter friday, and the results were clear.
I will attempt to try a 3rd round of physical therapy, (which i am slightly hopeful for being that its aquatic , but I am not getting too hopeful as it has been a year and a half, and no one has helped me significantly, nor believed, or at least comprehended what I have told them. My family keeps telling me to get a job, I just dont know of anything I can do, as I was fired from a call center position.

Sorry to rant a bit, I just am frustrated.

 

[Friendshipcake]

Praying for each of you......

 

[LibertyChic]

Hello all..

I was recently "tentatively" diagnosed with fibro. How does one know for certain that it's fibro and not something else?

 

[Linnis]

That's the thing with fibro, it's not something they can pick up with a blood test. They come to the decision you have it based on seeing how you are, your symptoms etc over time and ruling out things they can test for. It took me almost 3 years to confirm I had it. My Aunt just got her confirmation because her doctors were waiting for the long term symptoms to become clear etc.

If you are in pain, can't sleep well, think clearly. It might be worth it to go through the trouble. I had one doctor try to convince my parents I was sleeping because of some sort of mental illness.

 

[yeshuaslavejeff]

simple

 

[AdeliaGreen]

I was diagnosed earlier this year after having increasingly worse symptoms for several years. Unexplained nausea, headaches, random muscle and joint pain, fatigue, brain fog... you name it. No one understood what was wrong with me and people seemed to think I was making it up which made me get worse because I became very emotional and closed off about it. I was very releived when I received my diagnosis because now there was a name for it and there were options for therapy. I am currently in physical therapy, massage therapy and I am seeing a naturopathic doctor. I do feel that it is helping me, especially my naturopathic doctor. I am currently on a detox program and we're trying to figure out if I have any more food sensitivities (some foods can trigger symptoms or make existing ones worse) I already know that I am lactose intolerant, can't handle greasy foods and I cannot have caffeine as it really messes with my stomach. I am on my way to feeling better and I am truly excited to see more improvement in my physical and emotional being.

So, for those of you unsure of if you should keep searching for a diagnosis or if you should seek therapy... please do it! God created doctors and he gifted them with knowledge to help us. Please get help, you deserve to feel better. Don't just do it for yourself, do it for those who love and care about you. They are hurting too because they know they can't do anything to help you on their own.

Be blessed!

 

[yeshuaslavejeff]

simple

 

[LibertyChic]

a lot of your listed symptoms are potentially allergy related.

a book called "the pulse test" by DR COCA explains how to discover what you're allergic to in about 3 weeks yourself.

Quite often, allergies are taken into consideration before we are given a diagnosis of Fibromyalgia.

 

[yeshuaslavejeff]

simple

 

[LibertyChic]

that may be true, but blood and skin tests are notoriously unreliable.
the pulse test is sometimes only 80% reliable, but is inexpensive and easy to do yourself,
and the pulse test reveals allergies that other standard tests don't.
i haven't heard of any ama licensed doctors or clinics in the usa that does reliable allergy testing unless they learned it and imported it from europe.

even going on a strict restriction diet can have dramatic results, not knowing what the allergies are yet, but just elimination of several things at once from diet and exposure. a great reference is maureen salamans book "all your health questions answered",used by 100,000 licensed doctors in the usa (which isn't a lot of doctors relatively). she also specifies protocol that very few doctors ever learn that can help with many different ailments. read it for yourself and be amazed as well as helped.

You seem to be insinuating that Fibromyalgia is not a true syndrome. Is this what you're saying?

 

[yeshuaslavejeff]

simple

 

[LibertyChic]

No, not at all. My wife got ssi for it, although 10 years later she was healed during a raw food diet.

One is not "healed" from fibro. Sorry.

As for skin and blood tests being "notoriously unreliable," I would love to hear your source on that.

 

[yeshuaslavejeff]

simple