Disabilitys

[sunshine100]

Do you have a disability?If so what kind of disability do you have?I have sld,and a rare blood disease,it's not really a disease they just call it that.

 

[Messerve]

Amblyopia. It only bothers me when I'm tired, really. And in the Western world, short stature can be a handicap...

 

[Sabertooth]

Aspergers, but I consider it a handicap (rather than a disability)...

 

[Yarddog]

Do you have a disability?If so what kind of disability do you have?I have sld,and a rare blood disease,it's not really a disease they just call it that.

I have a form of MD called Charcot Marie Tooth's disease. It's an inherited neurological disorder which effects the nerves furthest from the spinal cord which would be the feet. It slowly kills the nerves and progresses up the legs and then the hands, and so on.

 

[sunshineforJesus]

I have a d d,o c d,and learning disabilities plus am developmentally delayed.

 

[MariaJLM]

Yes, mental illness. PTSD, anxiety, and depression. It's certainly crippling enough in my day to day life that I can't work.

 

[MariaJLM]

I have a form of MD called Charcot Marie Tooth's disease. It's an inherited neurological disorder which effects the nerves furthest from the spinal cord which would be the feet. It slowly kills the nerves and progresses up the legs and then the hands, and so on.

Is this like ALS?

 

[Yarddog]

Is this like ALS?

It has similarities but not as bad. It is not lethal but can be very disabling depending on how progressive it is in the individual.

 

[MariaJLM]

It has similarities but not as bad. It is not lethal but can be very disabling depending on how progressive it is in the individual.

So most people don't end up completely paralyzed like they do with ALS?

 

[Yarddog]

So most people don't end up completely paralyzed like they do with ALS?

No. I'm 64 and don't have a case as aggressive as others. Doctors don't think I'll need a wheel chair but that depends on how long I live.

My feet are almost numb now so the pain of the dying nerves aren't as bad. I still have muscle tone in my calves but people with a more aggressive form lose theirs and need braces to help support their ankles and aid walking.

Many people with less aggressive forms of CMT may never know they have the disease. They think their weak ankles and foot problems are just part of age.

God bless