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Not new, but newly dx'd

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MoeSzyslak

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Welcome to the club. Well, you've always been in the club, now you got the card to prove it.

My son is PDD-NOS and ADHD. I don't get the ADHD at all. I'm so laid back. I'm the type that will daze out for an hour while looking at a pattern on the wall while he's bouncing off the walls. We're all a little different, thats what makes the world interesting.

So how did your diagnosis come about? I can see in your profile that your married, so obviously your an adult. So it wasn't the standard diagnosis as a child. Did you have a child diagnosed and it brought you to light? I find peoples stories interesting.
 
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Bron

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Nice to meet you, MoeSzyslak. You're right, I have two kids diagnosed before me. I've always struggled socially, and had other struggles which I never understood. I had some sort of mental breakdown as a child, which lasted for years, and I've always wondered why that would have happened. Then it happened again a couple of years ago, and led to a lot of self-analysis. Then my son was dx'd somewhere around that time. So I was reading up on AS madly, and started recognising things in myself. Then I hooked up with one of the aspie forums, and found, wow, people who had the same experiences as me. So then I was self-diagnosed. But because of ongoing problems, like with anxiety and high stress and needing meds for that, I decided I needed to see someone more than a GP and get an official dx. And here I am. It was a process

I can pretty well pass as NT, so people who know me socially have a hard time accepting me saying I have AS. Ironically, that's quite hard (boohoo poor me *roll eyes*) But I think it's good for more "invisible" auties to have official dx - kind of like getting the word out there, maybe part of the process of getting the world autie-friendly. Here's hoping, anyway.
 
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carlyle418

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Bron, the story of your diagnosis is similar to mine, though my 3yo daughter has not been diagnosed (yet). Like you, many people who know me socially have a hard time accepting that I have AS, especially those who have experience with Aspie kids. They don't seem to realize that Aspies often learn to hide the traits by adulthood.

For those who are important in my life, such as my parents and my in-laws, I've found Tim Page's book, Parallel Play, to be very helpful. Tim, who was diagnosed in his 40s, has done quite a bit to bring invisible auties into view with this book, I think. If you can get them to read it, they'll get a good foundation for what goes on in your head. For me, it has been very helpful in building understanding, especially with my parents, who have often said I was a "difficult child."
 
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Bron

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I found this link to what appears to be Tim Page's entire short book Personal History: Parallel Play : The New Yorker
I found it very touching, even beautiful, because even though his life does not read like mine, it is on the same "frequency". I guess it's his autistic core resonating with mine.

My parents don't read books (ADD), but over Christmas when we've all been together, some interesting discussions have been had, and maybe some light may be breaking through in terms of understanding why I choose to be diagnosed this far on in life, and even why I choose to "label" my children.

I've also been given this link, Grandparent Autism Network which is the Grandparent Autism Network, which under the Networking section, has articles shared by grandparents of kids on the spectrum, who have gained new understanding and perspective. I'm hoping to get my parents onto this site.
 
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carlyle418

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Yep, you found the right Tim Page. His life isn't exactly like mine, either, but I felt much like you describe here when I read the book.

I'm glad to hear that you are having good discussions with your parents. I think a strong support structure is very important to succeeding as an aspie. I have been very blessed in that regard even though it has taken a very long time for my parents to understand. I just recently spoke to them for the first time in over a year.

Keep at it. I think you are heading in a good direction.
 
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