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Not only is this affecting me physically, it is affecting me mentally.
you're right, it takes a huge toll
I'm so tired of being in pain with little energy & not being able to function like a normal human being
it doesn't seem fair many days, does it?
my daffodils (avatar) this year did cheer me...somewhat
been having more trouble sleeping
I've always been a side sleeper but lately, my 2 shoulders & 2 hips have too much pain to sleep on my sides
trying to get to sleep on back but it's hard
I've started taking tylenol pm few times a week but don't think it's a long term solution
any sleeping tips for those with fibromyalgia?
discovered biofreeze & husband's been putting it on my shoulders, upper back which helps at first but it wears off
always been a side sleeper but lately, my 2 shoulders & 2 hips have too much pain to sleep on my sides
try to sleep on back but it's hard for this here side sleeper!
started taking tylenol pm few times a week but don't think it's a long term solution
discovered biofreeze which helps pain but it wears off
any sleeping tips?
always been a side sleeper but lately, my 2 shoulders & 2 hips have too much pain to sleep on my sides
try to sleep on back but it's hard for this here side sleeper!
started taking tylenol pm few times a week but don't think it's a long term solution
discovered biofreeze which helps pain but it wears off
any sleeping tips?
been sleeping on air mattresses for maybe 4-5 yrs?
gentler on my body- just got two new ones so if one blows....
yrs ago did try the magnesium/malic acid for several mos but it did nothing
now it's summer temps & I don't do well with summer/winter; feel somewhat better in spring/fall
not on any meds whatsoever & haven't had physical in 11 yrs so don't have a Dr now
cholesterol ck yrs ago, nurse said "don't u eat?" lol...mine was quite low as we were "almost" vegetarians then
we're not beef eaters, fish once/wk, chicken once/mos so maybe I need more protein?
tried to get a Dr before covid hit & kept getting turned down- guess Drs have all the pts they need
haven't seen rheumatologist since yr diagnosed & his suggestion was move out west to lower humidity
thanks for replies & hope for better health for everyone!
Being in the UK and having to rely on the NHS we dont get medication like the posts on here seem to indicate other countries do. There is one thing though that I found very effective to the point I was able to eliminate maybe 90% of the pain I was suffering. Its quite simply that all the pain I was suffering was from parts of my body that were getting cold while I was asleep. I now have to wrap myself up in a duvet, a thick one for winter and a thin one for summer. Its improtant it covers every part of meexcept to a degree my chest. If I sleep n my side I have to pull it up around my back and neck completely covering the shoulder on the bed or that shoulder will be very painful in the morning. I also have to cover the other shoulder, make sure my back is completely covered and my legs dont stick out or have any cold air getting in. Basically a cacoon.always been a side sleeper but lately, my 2 shoulders & 2 hips have too much pain to sleep on my sides
try to sleep on back but it's hard for this here side sleeper!
started taking tylenol pm few times a week but don't think it's a long term solution
discovered biofreeze which helps pain but it wears off
any sleeping tips?
Tylenol pm is only a short term fix. I have been using temazepam for fifteen years and it is still working regardless of what bed I use. The primary aspect of my sleep is pain management. I take 800 (I think) mg. of gabapentin four times a day and 60 mg. of fluoxetine twice a day which is keeping my pain under control.
If you don't mind me asking, do you ever experience periods of weakness where you just have to sit and rest for a couple of hours? Also, if you miss a dosage of your gabapentin do you have some form of reaction? The reason I'm asking is because there are times when I am just worn out and I really haven't done anything significant to wear myself out except miss taking a dose of my gabapentin. I also take lipitor for my cholesterol which I've heard possibly might add to my aches and pains but I'm not sure if it would make me feel worn out.
@Hvizsgyak
yes, lack of energy is tough
I've coined phrase "exhausted beyond exhaust"
last time visited zoo, rented electric scooter as zoo has hills; it was great to keep up with husband & child
If you don't mind me asking, do you ever experience periods of weakness where you just have to sit and rest for a couple of hours? Also, if you miss a dosage of your gabapentin do you have some form of reaction? The reason I'm asking is because there are times when I am just worn out and I really haven't done anything significant to wear myself out except miss taking a dose of my gabapentin. I also take lipitor for my cholesterol which I've heard possibly might add to my aches and pains but I'm not sure if it would make me feel worn out.
Periods of weakness with 'Fibro are nit unusual. The gabapentin does noth8ng, that I know o9f, to either help or worsen them. I have forgotten to take a dose, 30 u twice a day, felt no different. I understood Gaba to be for pain, I did not experience any greeter pain when I forgot one dose. Now ever, 2 does I would think is when you would start feeling it. I've never skipped 2 dosees. Fibro weakness is not your usual type of weakness. I've been so tired that I was hesitant to go to sleep---I felt I would get too tired to keep breathing! Anything experienced with Fibro is of a greasier intensity than normal. We get hypersensitive to pain, a pinprick to anyone else, feels like a much bigger needle was used plus it was driven in with a hammer to us! An itch is so intense you feel like you are going to loose your mind , feel like your going to pull out your hair and run around screaming naked in the streets. I hate an itch! I have to bare down with my nai8ls to the [point I almost draw blood in order to minimize the pain from the itch!
If you don't mind me asking, do you ever experience periods of weakness where you just have to sit and rest for a couple of hours? Also, if you miss a dosage of your gabapentin do you have some form of reaction? The reason I'm asking is because there are times when I am just worn out and I really haven't done anything significant to wear myself out except miss taking a dose of my gabapentin. I also take lipitor for my cholesterol which I've heard possibly might add to my aches and pains but I'm not sure if it would make me feel worn out.
I suffer from fibromyalgia, diagnosed in 2006. I take gabapentin 600mg five times a day (total 3000mg/day). Doctors often prescribe gabapentin in tiny doses that do nothing for most people with fibro. A larger dose, and taken more frequently, made a huge difference for me. The other thing I take is medical marijuana, an edible/gummy that includes both thc and cbd, several times a day. It works great, at least for me, for pain, numbness, and sleep.
Gabapentin has been working for me for the past sixteen years.
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