newly confirmed diagnosis

[KristinaB]

I recently got a confirmed diagnosis of the following:

Neuropathy of the right side. I am totally numb from right shoulder to right ankle. Muscles work fine, but I can't feel anything. I've been purposely burned with a lit cigarette by a brother who did not believe me.

Chronic Fibromyalgia concentrating on the lower body. I have problems walking and rely on a rollator and I just turned 48.

Also, I have found that I am allergic to cow's dairy. That has been a blessing in disguise in ultimate proportions with a few minor "Aw Man"s" in there. (I miss pizza)

And to top it off, 5 years ago, I went total deaf. I knew that would happen and some days that is also a blessing. think teenagers and the fact that I don't have to hear them now. Mine are 16 & 17.

I do not take medicine of any sort. I used to be on Cymbalta and after a few years, even the strongest dose was not helping. I tend to have a high threshold for pain, so that helps, but I also have Tylenol 3 for a last resort.

I am in need of losing weight, but due to the pain and instability of my legs from the fibro and also my neuropathy, I'm not sure how to get the exercise. My eating is very good and healthy, I just lack in exercise. The doctor suggested swimming, but I ended up with stress fractures in my feet from that. Anyone have any ideas?

 

[pumanator]

I have a similar prob with my knees... I like to walk, they don't. I picked up a used recumbent exercise bike on craigslist cheap. Low impact and easy enough to start out on.

Sorry no one has posted but I and other I am sure are praying for you.

Lord bless.

 

[KristinaB]

Pumanator-

I used to have a recumbent bike, but for some reason, hubby sold it without talking to me. May see if I can get another one. Thanks for the reminder.

 

[pumanator]

They do rock for those of us with bad backs and knees...I got a $900 Nordictrac on craigs for 250 plus a 40 repair. People buy this stuff then hang clothes on them thus folks like us don't have to pay retail.

 

[pumanator]

*Nordictrac bike...yup, they make them too.

 

[KristinaB]

I know my recumbent bike also opened up and became an elliptical trainer. Hubby used it for the walking and I used the bike. Not bad. I remember getting it from Fingerhut for about $600.

 

[pumanator]

you could probably replace it used if you are willing to drive...most of the deals I find are of course...in the next county lol.

 

[sk8Joyful]

I have a similar prob with my knees... I like to walk, they don't.

I picked up a used recumbent exercise bike on craigslist
cheap. Low impact and easy enough to start out on.

Thanks pumanator for your Rep-comment, & prayers re my Iceskating
see,
one day while practicing at age 55, them knees started whimpering - Well,
us skaters don't have time for nonsense; so
a family-member teased me about needing to EAT YOUR JELLO
nuh-uh, said i like a fool: 'None o' that Junk belongs in me'
They said: Fine, suffer! & don't skate. <- UM,
no! neither of those 2 were an option.
Eventually ................ I ATE JELLO 3x wk, 2x wk, 1x week, then none.
& Guess what!
My knees never hurt since: even at age 60 on the ice...for couple hours! How kewl is that!!

 

[kasietjie]

Joyful, that sounds intereting, but what is Jello (I'm not in USA)?

 

[kasietjie]

Hi Kristina,

I also suffer from Fibromyalgia, and it's always chronic as there is no cure - unless Divine healing! You will also find it will not only stay in part of your body, but any other stressors can worsen it. I had a burnout and that triggered the whole thing into a few degrees worse.
Thinking of you!

 

[pumanator]

my mom use to hammer a spoon full of the stuff in medical form for as long as I can remember, unfortunately you ended up with rheumatoid arthritis and unsure how much dosing helped. I know I could do better all around with diet and exercise...but it's really gotten hard.

 

[kasietjie]

But what is it?

 

[pumanator]

Knox gelatin...no flavor, just, yuk lol

 

[Colleen1]

I recently got a confirmed diagnosis of the following:

Neuropathy of the right side. I am totally numb from right shoulder to right ankle. Muscles work fine, but I can't feel anything. I've been purposely burned with a lit cigarette by a brother who did not believe me.

Chronic Fibromyalgia concentrating on the lower body. I have problems walking and rely on a rollator and I just turned 48.

Also, I have found that I am allergic to cow's dairy. That has been a blessing in disguise in ultimate proportions with a few minor "Aw Man"s" in there. (I miss pizza)

And to top it off, 5 years ago, I went total deaf. I knew that would happen and some days that is also a blessing. think teenagers and the fact that I don't have to hear them now. Mine are 16 & 17.

I do not take medicine of any sort. I used to be on Cymbalta and after a few years, even the strongest dose was not helping. I tend to have a high threshold for pain, so that helps, but I also have Tylenol 3 for a last resort.

I am in need of losing weight, but due to the pain and instability of my legs from the fibro and also my neuropathy, I'm not sure how to get the exercise. My eating is very good and healthy, I just lack in exercise. The doctor suggested swimming, but I ended up with stress fractures in my feet from that. Anyone have any ideas?

Hi, sorry to hear you haven't been feeling well. It's not easy and even more difficult without proper diagnosis. Not good you're ill but now that you're diagnosed hopefully you'll be able to get some really good support.