Spina bifida and the like... (CP as well)

[Pure_Joy]

Does anyone have or know someone who has this (dis)ability? My best friend has CP and my cousin has something that was labled SB but was actually a tumor on his spinal chord at birth.. I will tell more later g2g now.

 

[FollowHisPath]

My little baby cousin who is 2 has mild or moderate CP

 

[aimejl]

I have spina bifida.

 

[lostchildhood]

Does anyone have or know someone who has this (dis)ability? My best friend has CP and my cousin has something that was labled SB but was actually a tumor on his spinal chord at birth.. I will tell more later g2g now.

i have spina bifida too

 

[EdmundtheJustified]

I was born 21 years ago with a mild form of myelomeningocele. Well, it turned out to be mild. Doctors said I wouldn't walk, and though it took me a little bit longer, I enjoyed relative stability for about fifteen years.
Last year, it was discovered that somehow my cerebellum was being irritated and actually being pulled down my spinal column (the metaphor my doctor used was that of a ketchup bottle being squeezed). Unfortunately, it was discovered after I lost my ability to walk. The doctor was able to "trap" the cerebellum in its location so the problem wouldn't get worse, and after a month in a rehabilitation center, another month of outpatient therapy, and daily practice, my walking has returned, though I am weaker than I was. Anyone else relate?

 

[jasperjedi]

I have spina bifida and have never been able to walk, which I think is better than losing the ability to walk