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Sufferers can realise the suffering was not so intolerable after all
Intolerable and hopeless (meaning without prospect of improvement) suffering is an eligibility criterion for euthanasia/assisted suicide in the Netherlands, Belgium, and Canada. Despite having been used as such a criterion for decades (at least in the Netherlands; shorter periods in other countries), it is still widely debated as to its meaning and applicability as an operational criterion.
One paper by Dr Lieve Thienpont and colleagues from Belgium has raised important issues regarding the criterion. In that paper, they report on a qualitative analysis of what one might call “testimonies of suffering” of over two dozen patients who requested euthanasiaor physician-assisted suicide (EAS) based on psychiatric disorders.
One patient, a 52-year-old woman, is quoted:
…Moreover, the people around you cannot believe that you want to die, because you’re looking so good, so no one would allow you to die. So when I finally got the permission to die, that was a huge relief. [ … ] I have to admit that since my request to die was considered to be acceptable, I’m experiencing better moments and I’m also in doubt now. I’m still in therapy and there we discuss other available options.
The authors of the paper quote another patient — a 30-year-old woman — as an example of how a patient’s suffering is compounded by “friends, family and/or physicians neglecting or underestimating these struggles and suffering”, or “sweeping aside”(ignoring) the patient’s request for euthanasia:
Saying that someone is working, studying and experiencing a good home situation — and therefore asking what the problem is — is a commonplace platitude that undermines my readiness to open up, as you’ve noticed earlier. It’s a question that I can expect from non-therapists and which detracts from the fact that I suffer unbearably. Would that also mean that a cancer patient, who works and experiences a good home situation, can’t suffer unbearably? Work or study isn’t sufficient, as feeling at home in this world means so much more.
I think there are several things we can learn from these patients. But first some background: According to a previous paper by the same authors (Thienpont et al, BMJ Open 2015), these patients had been deemed to be suffering intolerably and also without prospect for improvement due to their conditions being treatment resistant. Thus, they met two of the crucial eligibility criteria for euthanasia in Belgium. In this paper, the authors reported that 16 percent of persons (8 out of 48) granted approval for EAS changed their minds, like the first patient described above.
Continued below.
How could 'intolerable suffering' be quantified to justify ending a life? » MercatorNet
Intolerable and hopeless (meaning without prospect of improvement) suffering is an eligibility criterion for euthanasia/assisted suicide in the Netherlands, Belgium, and Canada. Despite having been used as such a criterion for decades (at least in the Netherlands; shorter periods in other countries), it is still widely debated as to its meaning and applicability as an operational criterion.
One paper by Dr Lieve Thienpont and colleagues from Belgium has raised important issues regarding the criterion. In that paper, they report on a qualitative analysis of what one might call “testimonies of suffering” of over two dozen patients who requested euthanasiaor physician-assisted suicide (EAS) based on psychiatric disorders.
One patient, a 52-year-old woman, is quoted:
…Moreover, the people around you cannot believe that you want to die, because you’re looking so good, so no one would allow you to die. So when I finally got the permission to die, that was a huge relief. [ … ] I have to admit that since my request to die was considered to be acceptable, I’m experiencing better moments and I’m also in doubt now. I’m still in therapy and there we discuss other available options.
The authors of the paper quote another patient — a 30-year-old woman — as an example of how a patient’s suffering is compounded by “friends, family and/or physicians neglecting or underestimating these struggles and suffering”, or “sweeping aside”(ignoring) the patient’s request for euthanasia:
Saying that someone is working, studying and experiencing a good home situation — and therefore asking what the problem is — is a commonplace platitude that undermines my readiness to open up, as you’ve noticed earlier. It’s a question that I can expect from non-therapists and which detracts from the fact that I suffer unbearably. Would that also mean that a cancer patient, who works and experiences a good home situation, can’t suffer unbearably? Work or study isn’t sufficient, as feeling at home in this world means so much more.
I think there are several things we can learn from these patients. But first some background: According to a previous paper by the same authors (Thienpont et al, BMJ Open 2015), these patients had been deemed to be suffering intolerably and also without prospect for improvement due to their conditions being treatment resistant. Thus, they met two of the crucial eligibility criteria for euthanasia in Belgium. In this paper, the authors reported that 16 percent of persons (8 out of 48) granted approval for EAS changed their minds, like the first patient described above.
Continued below.
How could 'intolerable suffering' be quantified to justify ending a life? » MercatorNet