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Does anyone on here suffer from Fibromyalgia?

Discussion in 'Chronic Pain & Arthritis' started by Ave Maria, Aug 6, 2011.

  1. bbbbbbb

    bbbbbbb Well-Known Member

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    I found the article interesting. I have not had any side effects myself.
     
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  2. FireDragon76

    FireDragon76 Well-Known Member Supporter

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    Conventional medicine hasn't offered much relief for my fibromyalgia. I found alot of benefit turning to alternative medicine, particularly Chinese medicine. Today, years after being diagnosed, my symptoms have greatly improved.

    In my case, a TCM practitioner told me it was "Liver-Spleen disharmony, brain-fog, and depleted kidney energy". She put me on a concoction made of pseudoginseng, bones, and a dozen other herbs. She also gave me several rounds of acupuncture. After that, I started to eat a different diet (my diet is semi-macrobiotic and semi-vegan, but more Asian and less mediterranean) taking Triple Leaf detox tea once in a while.

    What I deal with more now days is small intestinal bacteria overgrowth, which might be an underlying factor in the condition in the first place. I was also told I have a mass in my abdomen that's fairly uncomfortable at times, I'm going to have it looked at next week. It might be causing mechanical intestinal problems that fuel bacterial overgrowth.

    CBD has been a good painkiller through it all, but it won't really attack the underlying condition. It does make pain more manageable, however. Fibromyalgia seems to be caused by some kind of severe stress or illness that brings it on.
     
    Last edited: Sep 22, 2021
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  3. bbbbbbb

    bbbbbbb Well-Known Member

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    Different things work, or don't work, for all of us. I am very grateful I am functional.
     
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  4. FireDragon76

    FireDragon76 Well-Known Member Supporter

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    I went to a rheumatologist referred by my insurance company whose prescription was to rub sesamee oil on where it hurt. No kidding. I was doing yoga and had no problems with lack of flexibility, but my whole body felt like it was on fire: his solution was I needed a good massage. I gave up on MD's after that.

    Things probably have improved since my diagnosis. It's just difficult to find a doctor that either takes it seriously or has any clue what to do, other than put you on heavy duty anticonvulsants (which have some pretty bad side effects).
     
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  5. mama2one

    mama2one Well-Known Member

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    when I was working, often paid for massotherapy to get me through work week
    she had extra training to know how to work on those with fibromyalgia- it really hurt but helped me in long run

    terrible time sleeping this summer

    some days, only get 3-5 hrs sleep so feeling like a zombie
    need 7 hrs but it's been weeks since getting a 7 hr sleep

    now that fall is here with cooler temps/less humidity, hope my sleep improves
     
    Last edited: Sep 23, 2021
  6. Lost4words

    Lost4words Jesus I Trust In You Supporter

    +10,540
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    God bless all those who suffer with pain etc. May God lay His healing hands on everyone.
     
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  7. bbbbbbb

    bbbbbbb Well-Known Member

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    I can definitely relate to your challenge. I went to a highly-recommended rheumatologist. After waiting 2 1/2 hours in the waiting room and then another 1/2 hour in the exam room, some old codger in a white lab coat came in and started examining me for arthritis. After it finally dawned on him that I don't have symptoms of arthritis and he told me that I could not have fibromyalgia because there is no such disease. He said I had a myofascial pain syndrome and that if I did some gentle water exercise I would be right as rain in two weeks. He was wrong and I refused to pay his exorbitant bill.

    I am very grateful for my doctor. It took three wasted trips to Mayo Clinic before I found my doctor locally. He has kept me functioning for fifteen years now.
     
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  8. bbbbbbb

    bbbbbbb Well-Known Member

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    I can definitely relate to the insomnia. I found a sleep doctor who was able to help me immensely. I am getting about six hours a night, plus a good nap or two during the day. I know what it is to feel like a zombie. There are a lot of meds out there for insomnia, but be careful because some have really nasty side effects.
     
  9. bbbbbbb

    bbbbbbb Well-Known Member

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    Thank you!
     
  10. FireDragon76

    FireDragon76 Well-Known Member Supporter

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    I think what really helped me was trying to get my underlying health conditions under control. In a significant minority of people with fibromyalgia, they also have problems like bacterial and fungal dysbiosis. That can put a heavy toxic load on your body, and can even negatively effect your mood (because beneficial bacteria living in your colon actually help you produce neurotransmitters like serotonin). Somebody with fewer underlying health conditions might see a big benefit to doing stuff like changing their diet and eating fermented foods or consuming probiotics.
     
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  11. mama2one

    mama2one Well-Known Member

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    change diet to what exactly?

    -we eat sauerkraut
    -fruits & veggies: red grapefruit, kiwi, granny smith apples, broccoli, peas, cabbage, romaine lettuce & cucumbers
    -I eat onions & tomatoes daily
    -eat fish about once weekly
    -chicken/eggs each about once every 10 days
     
  12. mama2one

    mama2one Well-Known Member

    +9,811
    United States
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    not on any prescription meds & don't have a Dr now

    husband said get a GP
    so tried before pandemic but after being turned down twice, I gave up

    haven't had a physical in 11 years
    that Dr is not on insurance & only went for required physical to adopt
     
    Last edited: Sep 24, 2021
  13. bbbbbbb

    bbbbbbb Well-Known Member

    +11,328
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    Your husband is right. It took me a long time to find my doctor. Even the great Mayo Clinic failed me after three trips. A good doctor is very hard to find, but they are out there.
     
  14. bbbbbbb

    bbbbbbb Well-Known Member

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    I have not noticed any correlation between my diet and my fibro. For some of us, that is the case and changing diet can help.
     
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  15. FireDragon76

    FireDragon76 Well-Known Member Supporter

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    This is good but it has to be actually made through fermentation and contain live and active cultures of bacteria. Nothing canned can be alive.

    That's good, though I have to wonder about the protein content as that seems rather low (only chicken or eggs once a week)? No beans? Where's the grain and starches? (those are the foods that really feed beneficial bacteria. Barley and oats in particular are excellent for this). As a general rule, you want to try to eat over 30 different types of plants, fruits, seeds, or grains every week.

    Gut dysbiosis can also be caused by stress, illness, and medication (antibiotics), and not necessarily diet.
     
    Last edited: Sep 24, 2021
  16. mama2one

    mama2one Well-Known Member

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    yes, we eat beans, capanelli, pierogies, long cooking rice with fish
    our protein is probably on low side

    I cut down on stress, no illness except fibro, took antibiotic once in last 20 yrs (used husband's prescription)
     
    Last edited: Sep 24, 2021
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  17. mama2one

    mama2one Well-Known Member

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    how many here with fibromyalgia have been able to get disability?


    saw article today that long haul covid is a disability
    symptoms listed seem a lot like fibromyalgia: brain fog, pain, fatigue but also shortness of breath

    if people will get disability for long haul, shouldn't we for fibromyalgia?
     
  18. bbbbbbb

    bbbbbbb Well-Known Member

    +11,328
    Non-Denom
    I have fortunately been able to continue work. I am self-employed which helps immensely. Getting disability for fibromyalgia is possible, but extremely difficult. You run up against an entrenched government bureaucracy which is convinced that there is no such malady as fibromyalgia, but is perfectly willing and happy to provide welfare funding of all sorts for illegal immigrants.
     
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  19. MissFaithfullyHis

    MissFaithfullyHis New Member

    34
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    Single
    Back in 2020, I had a panic attack which ultimately triggered a mysterious pain I would feel on my chest (where my ribs and sternum meet) and on the backside as well. This also caused internal nerve and joint pain that I would feel across my arms, knees, head and lower back. After many doctor and ER visits, I was told it could be Costochondritis, Fibromyalgia or just plain old stress.

    Around October 2020, I decided to stop visiting doctors (plus the amount of money I spending was off the wall!) and to just let my body heal on its own. Eventually, the pain did subside, but I continue to have flare ups every now and then. I'm actually having an episode now, but it's not as excruciating as it was during 2020 - This episode was triggered from stress and over eating processed food.

    Even though I have not been clinically diagnosed with Fibro, but I understand the chronic pain that comes with it. I pray that everyone here will overcome this and to continue trust in the Lord.

    God bless!
     
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  20. mama2one

    mama2one Well-Known Member

    +9,811
    United States
    Christian
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    to find out if you have fibromyalgia, see a rheumatologist
    one who diagnosed me said there is no cure

    I have a lot of daily pain
    I use a lot of biofreeze

    somedays, I can barely walk due to hip pain
    the pain can be overwhelming

    a person hit my car on the hwy & totaled my car
    accident triggered fibromyalgia from trauma to my body

    it's difficult to get restful sleep which increases the pain
    then the pain causes lack of sleep
    endless cycle
     
    Last edited: Apr 7, 2022
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