Advice on Elder Care

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ufonium2

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Hey guys, I don't know if any of you have experience with this, but we're in a bind and need advice.

My grandparents have two adult daughters, both of whom live in the same town, about two hours (on a horrible road) away from them. My grandparents ' siblings are all either dead, moved far away, or in worse shape than them. They have friends and family in their town, but none of these people are in the position to be any help, either in an emergency or in a long-term situation, to my grandparents. The town is also two hours away from the nearest decent hospital, and probably three from the nearest good hospital.

Anyway, my grandparents are getting up there. My grandpa has dementia that comes and goes, and is sometimes severe. My grandmother is in great health for someone her age, but taking care of my grandfather is way more than she can handle in the long run. My mother, who is retired, and her sister, who is not, basically take turns driving there once or twice a week to take care of some situation, either a legal thing my grandparents don't understand, my grandpa's dementia being particularly bad, or my grandmother being too sick to handle everything.

Everyone's life would be way better if my grandparents would just move to where their kids are. But they won't. My grandpa is convinced every time he leaves his town that he is being taken to a home, so sometimes you can't get him in the car. I think my grandmother thinks that moving in with her daughter, or even moving near to them, would mean she was helpless. So, they won't move.

Anyone have any experience with this? Strategies? Books?
 

ufonium2

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I should add that even though my mother is retired, my father is not. And he's an elected official five years from retirement, and it would be career suicide for them to move. My aunt is in a similar situation, as she's placebound in her job as well. There are no jobs in my grandparents' town, so none of us could move there. So really they are the only ones who can move.
 
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ufonium2

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Well..you cant make them do anything.

Of course, but it seems kind of callous to sit back and let them keep endangering themselves (this is really what it amounts to, in their situation and so far from help).

Would they consider moving to a retirement facility?

I don't think they would ever do that willingly. As I said, my grandpa won't even get in the car sometimes because he thinks we're taking him to a home (which we've never even considered, but he's got it in his head anyway). Plus, they're in a very rural area, and there are no fancy "assisted living" places for several hours in any direction. The nursing homes around them are the old-school warehouse style places that I wouldn't put my worst enemy in. My husband's grandmother lives in a very cool Alzheimer's-specific community, where she has her own apartment but also 24-hour help if/when she needs it. There's nothing like that near my family, though.
 
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ufonium2

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Are they low-income enough to qualify for a state sponsored visiting nurse?

That's a good idea. I doubt they would qualify and I'm not sure how they would respond to it, but it's worth looking into. I think if my grandmother had a couple of days a week where she could go out without my grandpa (like a "mother's day out" thing), that it would ease the situation considerably. As it is, she can't leave my grandpa alone, so he's with her 24/7. Plus, building a relationship with a capable person they could call in an emergency would be awesome
 
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DonVA

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I had an uncle, God rest his soul, who suffered from Lewes Body Dementia, which is sort of a combination of Parkinson's and Alzheimers. My poor aunt, who had hoped that in their retirement they'd be traveling the world, found herself in a situation where all she could do was watch her husband drift further and further away. She did enlist the help of a housekeeper who understood their situation and was willing to stay alone with him during the hours she was in the home cleaning, giving my aunt an opportunity to actually have one day a week to do things outside of the house that she needed to do without having to take him along.

Not sure if that's an option. Are they in an area where a hospice nurse might assist?
 
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VickiY

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Honestly, I'd opt for a combination of home health aides (not as expensive as folk think) and maybe something like Meals on Wheels, which provides lunch for a small fee. if they didn't have to cook, it might be a help to your grandmother. Also, I'd try to set up sort of rotating visitors with the family on weekends...when my grandmother was ill, we spent a bit of time each weekend just cooking her favourite foods and putting them in freezer "plate" containers, so all she had to do to get a really good home-cooked-to-her-specifications meal was microwave. less fuss, less clean-up, etc.

Good luck!
 
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ClementofRome

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Just two months ago, my elderly grandparents moved in with my parents. It is a very humbling thing. But having spend much time with them recently, I can say that it was a good move.

Now keep in mind, we up in the the mountians of western NC marry early, so my grandparents are only 40 years my elder!

May God grant them peace and a pain free existence in the final days, months, years (?) of their life.

I know that this does not serve as advice, but just to let you know that you are not alone.

Forgive me,
Clem
 
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ufonium2

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Thanks for the advice, everybody!

Clem, are you not aware that I'm from rural Kentucky? A 40-year gap between three generations sounds about right:p Actually, having relatively young grandparents was the main reason I was so keen to start a family right after marriage. My dad's parents were old and ill my whole childhood (they lived with us), while my mom's parents were just hitting their middle-aged stride when I was a kid. I'm really thankful that they were so healthy and active for so much of my life, and I want my kids to know my parents that way, too.

Everybody else, those are some really good suggestions. They live in a very rural place, so I don't know exactly what's available to them or the quality of it, but we'll definitely check into it. The thing about depressed rural areas is that such a large percentage of the population qualifies for government services, that it's not generally profitable for private companies to offer them. Like my kid won't qualify for Head Start, but everybody else will, so there will be no pre-school for him to go to. I wonder if we'll run into the same problem with home health/hospice/etc.
 
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Mary of Bethany

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Ufonium -

we finally had to put my Mom in a nursing home last August, after she became too weak to be cared for at home, but before that we were able to care for her at home since she first became ill at the beginning of 2004. We were able to hire a live-in nurse to stay with her during the week, then we took turns staying with her on weekends.

When I say "we" I'm referring to my siblings and I - there are 4 of us in the area, so that the burden did not fall on any one person.

The nurse was someone we were able to find through a family connection, and she did not ask for the going rate that you would have to pay for a nurse through an agency.

I don't know if *any* of this is possible in your parents' situation, but hopefully something is helpful.

It's a horrible decision to have to take your parents from their home, but the way our society works these days, with family generations being separated the way we are, there is sometimes no better choice.

Hugs and prayers for you, your parents, and your grandparents as you struggle with this!


Mary
 
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cassc

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My Grandfather lived independently until the age of 92 about 3 hrs away from the rest of the family. At 92 he came down with another bout of pneumonia and we "kidnapped him" as he tells people since then he has lives with my Aunt. This has not been easier for either of them but luckily he was able to understand that living with my aunt is in his best interest. Some places have adult daycare programs, this may be hard as he would need to be driven there, but it is worth looking into. We have used a private home health aid for my great aunt and uncle who never had children (she has Alzheimer's and he cancer) and it was much more reasonable then we would have expected, but my great aunt never really got comfortable having her (or anyone she can't remember) around so it did not really work out. My great uncle who recently passed away did go into a hospice care center because his wife (at 90) felt she could not care for him and they again have no children. It was not what we had wanted but he simply was not able to get the care at home even with a home health care nurse it was still to hard on my great aunt.

There are often no easy options in these circumstances, people live longer but maintaining quality of life is very challenging. Let us know what types of services (if any) you uncover in their area.
 
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Shubunkin

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Just make sure if you do hire an in-home care giver, make sure they have had a thorough background check. We have stories in the newspaper here that caregivers hired take advantage of the elderly people they care for, like making them sign over their house to them, and so forth.
 
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Orthosdoxa

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My great-grandmother was horribly abused by someone who was hired to care for her, I just remembered that after what cygne said. It involved constipation, and a spoon, and that's all I'll say about that. :( I never even knew her, but thinking about it makes me want to cry. So yes, do be careful.
 
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