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Coping with illness

Discussion in 'Chronic Pain & Arthritis' started by Colleen1, Feb 11, 2011.

  1. pumanator

    pumanator Veteran

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    It seems my whole life has been mostly dealing with bullies of one form or another but when, like my neighbor, who calls himself a christian harasses me and my family even committing acts of vandalism I find myself falling down on my face, not in prayer but from my own sin.

    We are commanded to love everyone even our enemies and I have to and want to learn the lesson because I am worn out by this trial and I don't think God is going to cut me any slack...ppl are brutal and mean and in general just plain horrible but we all sin and He died for all of us. I am convinced God wants us to forgive all these ppl but I know that I can only accomplish this with divine intervention.
     
  2. Colleen1

    Colleen1 Legend

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    I hear what you are saying and things can be difficult. Especially when some don't seem to understand how their behavior can hurt others or understand and aren't willing to be a part of some kind of healthy solution. I am struggling with forgiveness and reconciliation as well. I have a difficult time knowing how close or distant to keep some people. Meaning, I'm having a difficult time knowing how to carry on even after someone is forgiven especially if they continue to do hurtful things. I really don't know what to say. I think each situation is different as far as what type of relationship we have with these offenders once we forgive them, etc. is the question I need to go to God with. Forgiveness I think is a must not just because it's commanded of us but because I think it's best for all concerned. Hanging on to hurt and pain and anger isn't healthy for me. With regards to my situation it is difficult because the band aid keeps getting ripped of, so to speak, and some pretty big wounds get poked at time and again. I don't mind listening and appreciate you hearing me out as well. I am praying for you all. Take care.
    p.s. I won't be able to reply the next couple of days but I'll be praying. :prayer:
     
  3. Colleen1

    Colleen1 Legend

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    Right now I'm trying to keep stress at bay so my illness is more easily managed or vice versa. The worse the pain and symptoms the more difficult it is to deal with stress. I have more appointments coming up.
     
  4. Colleen1

    Colleen1 Legend

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    :wave: Good morning everyone. I've been sitting here this morning realizing just how frustrated I am with some health care issues. The frustration in trying to get the proper help for Chronic Fatigue Syndrome and Chronic Myofascial Pain seems to be an ongoing saga. :doh:
     
  5. Colleen1

    Colleen1 Legend

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    Right now I'm trying to decide which treatments I think would be most helpful and what I'd like help with to focus on. Everyone seems to have an opinion but in the end it's my body, mind, life, etc. and I need to figure out what will work so that I can really make some healthy progress rather than just humoring the doctors because I'm frustrated and tired of being assertive. One idea I've had is to go through all the types of treatment written about and to make a list of what I think will be most effective and to ask the questions I need answers to and then to try to come up with a plan to achieve this hopefully with the help of my doctor at the pain clinic. I feel better now that I feel organized and have a plan but I have to admit I'm still worried though. Dealing with doctors isn't always fun.
     
  6. Colleen1

    Colleen1 Legend

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    I went to a ladies tea yesterday and was tired right out today until the afternoon after a good nap. Then I got a couple of chores finished which I'm very happy about. Now, again, I'm tired right out. Still after all this time this cycle of a few chores and then fatigue can still get to me. It makes it so glaringly obvious that I'm different than the average joe. I guess that will have to be okay because it's not going away any time soon. I might as well relax and be content with where things are at in this present time. I know God has a plan.
     
  7. pumanator

    pumanator Veteran

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    I hear you about the fatigue. That has got to be the most frustrating part of what we deal with. The energy that has to be expended to do thing that most ppl never give a second thought in inconceivable. I just replace an old plug in the kitchen to make is GFI compliant for safety and it wiped me out. Makes me wonder how much longer I will be able to work.

    Hang in there colleen and don't let it get you down...easier said than done.
     
  8. Colleen1

    Colleen1 Legend

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    Some people don't understand just how much energy it takes to do things. For instance, going any where out of my home. It's not just sitting down in a cafe for lunch. It's getting ready. It's driving or making arrangements to get there. It's the bustle and noise at the cafe. It's the visiting with people you meet and ordering your lunch and finding a table. By the time I sit down to eat lunch with a friend I'm already tired.

    I think a big part of the problem is that these illnesses are still widely misunderstood even by some professionals and instead of seeing it as illness it's seen as self pity and depression. In reality this is not the case. My illnesses are nuero-immunlogical and nuero-muscular. Many people see us when we are out and when we are having a fairly good day. But when things are really rough we are at home. This week was a good example of this. Two mornings this week I woke up so tired and in so much pain it took everything I had just to get out of bed at a decent time, take my pills and make it to the couch. The dizzy spells and all the other symptoms are there. It's just easier to describe the illnesses as us having lots of fatigue and pain.

    Yes, before I had disability benefits I hung on to working as much as I could. It's almost as if I was so tired I was worried if I stopped working I'd never be able to get started again. Which, I know sounds silly and doesn't make much sense.

    I hope things are going well with you. I don't mind listening or chatting. Take care.
     
  9. Todd Grace

    Todd Grace The best carpentry and specialty building around

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    Hello fellow pain sufferers,
    I have a marble sized lump to the right of my spine about 3 inches over. My docter said it was called a Copeland node or lump. I have bad hip and leg pain from the sciatica nerve being pinched from compressed lower discs. The nod or lump is painful also and when rubbed or pushed causes burning pain down my right side from the hip down. I was wondering if anyone has had or dealt with this? I asked my doc why they call it Copeland and he said that's the guy who discovered it. When I finish I'm going to Google it.
    Just for laughs to cheer everone up:
    An old man, Jesus and Moses were golfing. Moses hits his tee shot and it lands in the pond. He parts the water, hits off the bottom and gets a birdie. Jesus hits His tee shot towards the same pond but it lands on a lily pad. Jesus walks on the water and hits his 2nd shot into the hole for birdie also. The old man swings wildly topping the ball and dribbles the ball just to the edge of the pond. A frog hops over and eats the ball. An eagle swoops down grabs the frog and begins to fly away. A bolt of lightning strikes and the startled eagle drops the frog which lands on the green popping the ball from it's mouth which rolls into the cup for eagle.
    The old man jumps up and down hollering, " another hole in one."
    Moses looks at Jesus and says, " I hate playing with your Dad."
    I hope everyone is better tomarrow than today.
    With the love of Christ in my heart,
    Todd Grace
     
  10. Colleen1

    Colleen1 Legend

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    Hi. I have never experienced Copeland. I do however have some lower back problems and when my back is out even slightly it creates quite a bit more pain in my entire body. One thing I'm diagnosed with is extensive Chronic Myofascial Pain (nueromuscular) and one of the worst areas is down the sides and backs of my hips and legs. Apparently it's like sciatica. It really hurts. I find massage, moist heat and a prescribed medicated pain ointment to work best. I have started a few physio. stretches and it's helped a bit. Different pain needs to be treated differently. That's about all I can say, other than, you might want to try a pain clinic.

    Yeah, your golf story is very cute. Thanks. Take care and I hope you find some decent help. :)
     
  11. Todd Grace

    Todd Grace The best carpentry and specialty building around

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    Thanks I have. I also find If I sleep on a firm mattress I'll wake up in tremendous pain. Read my bed thread. If I wake in pain I'll walk around the house or in my yard for 15 minutes just to get the motion back. Movement seems to lubricate and ease pain.
    I hope you are able to manage your pain as well.
    T.G.
     
  12. Colleen1

    Colleen1 Legend

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    AHA! Yeah, I've come across your 'bed thread'. Yes, I have a bed that works for me and it does make a difference. I also have a very comfy couch and I'm on my way to buying a recliner that will help. Even comfortable shoes make a difference. I understand what you mean when you say, "get the motion back". I have lots of pain in the morning regardless of what mattress I'm sleeping on. It's slow moving for me in the morning and I do things little by little in the morning (e.g. a few physio. stretches, etc.) to "get the motion back". But honestly some mornings I'm so bad it takes every thing I've got to get out of bed at a decent time, take my pills and get to the couch. I have lots of fatigue so that doesn't help and vice versa the pain doesn't help the fatigue. Things are better than they were and I have a good doctor now that understands and is supportive. Just being validated and understood is helpful in itself. Yeah, I hear you; it's not easy. Good to talk to people who understand. Take care.
     
  13. Colleen1

    Colleen1 Legend

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    Any body try physio. in regards to dealing with pain? Any pointers to keep in mind?

    When it comes to Chronic Fatigue Syndrome and Chronic Myofascial Pain, what treatments / things have you tried and how helpful were they?

    :confused:
     
  14. Colleen1

    Colleen1 Legend

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    I'm not a doctor so please understand I can only share what I understand from my perspective. I'd hate to steer you the wrong way. I still have much to learn about myofascial pain. Unfortunately, when there isn't one way of classifying illness people can use different terms and criterion so it can make things difficult to describe. Hopefully the following is helpful and accurate enough to explain things a bit. But, a doctor needs to explain things and if you have access to the internet I would suggest researching this topic at places you would consider reputable and from professionals who are reputable in the field.

    All Myofascial pain involves pain in the musculoskeletal system. Myofascial pain is a genereal name used to describe pain in this system. Myofascial pain can be caused by different things e.g. injuries, fatigue, etc. Some scientists / drs. call chronic (persistent) myofascial pain Myofascial Pain Syndrome; others call it Chronic Myofascial Pain (disease). In Canada we call it Myofascial Pain Syndrome but consider it a neuro-muscular illness not a psychological illness as do the drs. who use the name Chronic Myofascial Pain (disease). Below I've added some info. and a link that give a fairly good description of myofascial pain. However, the latest research says that Chronic Myofascial Pain is can be caused because the fascia (coating around the muscle) isn't working properly (this point is not include in the info. below).

    "When you say that you have “muscle knots,” you are talking about myofascial trigger points.
    There are no actual knots involved, of course. A trigger point (TrP) is a small patch of tightly contracted muscle, an isolated spasm affecting just a small patch of muscle tissue (not a whole-muscle spasm like a “charlie horse” or cramp10). That small patch of knotted muscle cuts off its own blood supply, which irritates it even more — a vicious cycle called “metabolic crisis.” ... A collection of too many nasty trigger points is called myofascial pain syndrome (MPS)." Paul Ingraham &Tim Taylor MD


    Myofascial Pain Syndrome (Muscle Pain) Causes, Symptoms, Diagnosis and Treatment on MedicineNet.com


    http://www.cdha.nshealth.ca/patientinformation/nshealthnet/0972.pdf


    iSTOP: Myofascial Pain


     
  15. Colleen1

    Colleen1 Legend

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  16. Colleen1

    Colleen1 Legend

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    All I've got to say today is, boy, some people don't get it. This can be one of the hardest things about chronic illness.
     
  17. Colleen1

    Colleen1 Legend

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    Have a Blessed Easter!
    [​IMG]
     
  18. LadyNRA

    LadyNRA Regular Member

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    Especially if the illness isn't 'showing' itself on the outside. Just saying'...
     
  19. Colleen1

    Colleen1 Legend

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    Yeah, you are so right. Thanks for understanding. Joni Erickson has a really neat blurb about Chronic Fatigue Syndrome on her web site. It really is worth listening to. It's great!!!!

    http://www.joniandfriends.org/radio/2006/7/5/invisible-disabilites/
     
    Last edited: Apr 21, 2011
  20. Colleen1

    Colleen1 Legend

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    Have a Blessed Holiday!
    [​IMG]
     
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