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Respiratory A forum for the support of those suffering from asthma and respiratory diseases.

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Old 9th July 2008, 05:36 PM
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Pulmonary Fibrosis

Does anyone here suffer from pulmonary fibrosis? My dh is being test for it and i wanted to talk to others to find out what to expect if he does in fact have it. Thanks.
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  #2  
Old 18th July 2008, 12:56 AM
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It's so ironic that you should ask, or rather, that I found your post right after talking to an old friend who just shared that she was recently diagnosed with Pulmonary Fibrosis. Until the past May, I'd never even heard of the term, but my mother-in-law had been growing increasingly ill and was hospitalized with puzzling symptoms that they at first suspected was pneumonia. After extensive testing, the doctors told us that she has Pulmonary Fibrosis, and we all scrambled to find out as much as we could. They guessed that she'd possibly had it for several years without being diagnosed or treated, and within two short weeks, we lost her to it. Now she was one that never complained of anything, and had a very high threshold for pain tolerance, and we'd like to think if it had been caught sooner, she'd have lived longer. She was also in her mid 80's.

I don't mean to alarm you. My friend says that they are treating her with steroids to slow down the progression of the disease. I do truly hope your loved one finds out it's something else.

((I hope it's alright to post a link to an outside site? http://www.pulmonaryfibrosis.org/ipf.htm I'm sure you can do a search and find much more information as well, but this gives you some basic answers about it))
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Old 18th July 2008, 10:28 AM
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Thank you so much for your post. We are waiting for the results of the CT scan and hopefully everything will come back normal. I will post again as soon as we get the results.
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