Worst thing ever said to you or a loved one about your disability
Just a thread to rant. Mine has to be when my aunt asked my mother wether I would be able to understand how to play the game they were playing last Christmas or if it would be better if they have me play with play dough with my younger cousins who are 4 and 7. Keep in mind I am LD with an IQ of 138...so to put it lightly I am competent.
I have a handicapped parking permit. I had spinal surgery a year ago due to herniated disk. The disc is surrounded by a hard shell called an ulnar that holds fluid. Not only was my disc out of place, the ulnar was broken, the fluid had all leaked out, and my sciatic nerve was being crushed.
In addition to that I have degenerative disk disease in my back, osteoarthritis in my back. bursitis in my hip. rheumatoid arthritis, and fibromyalgia.
I once had a man who was parked in another spot watch me park in a handicapped spot. He then after I went into the store left a really nasty hateful letter on my windshield cussing me and telling me he called the cops with my license number and threatening I would be arrested. Granted this did not happen and would not since I have the permit legally, but it made me mad.
lavenderskies, that guy was so out of line! I will say something to those who park without a handicap permit in a handicapped space, those lazy people anger me. But having a tag, I hate how people think I need to "prove" that I'm worthy of such a spot. I was born with Spina Bifida, and have dealt with similiar comments towards me when I park. Oh well, karma will catch up with them some day
The worst situation was my father when my illnesses became much more prominant and harder to deal with. Like many people, they aren't too sensative to people with "invisible illnesses" until a symptom becomes too easy to notice. (Such as like being unconcerned about someone dealing with full blown migraine on a nearly weekly to daily basis...but then being concerned when there are hand tremors as a side-effect from a daily preventative migraine drug that help stop those migraines from occuring.)
Being my pastor at the time made it all the worse. Some of the illness prevented and still prevents me from attending church normally. He denied me communion and pastoral care constantly thinking I was using the illness to "fudge" on church attendance purposely. He's retired now so the issue is moot. It still hurts though.
In fact, one of the worst things about illnesses not well understood and disbelieved despite overwhelming evidence to support their reality is being disbelieved. Medical researchers and others in the medical comunity have accumuliated growing evidence illnesses once believed to be either "stress-related" or "merely depression" have a real bio-medical basis
Strangers aren't really expected to understand. Friends and family are supposed to be differnt.
"Be a sinner, and let your sins be strong, but let your trust in Christ be stronger, and rejoice in Christ who is the victor over sin, death, and the world." ~~ Martin Luther (1521) ~~
I have arthritis and hate it when people treat me like I'm slow because of it or because I seem low on energy... I've got an IQ within a point of cassie121's, so I'm actually probably much smarter than them...
I had a friend who said she assumed I wouldn't marry (not in those words exactly, but yeah, she said it) and my mum is on record as being so relieved that I found someone who knew all about my disability and really truly accepted me anyway that she burst into tears and spent the next few months urging me to marry him, quick.
I had to tell her four times that yes, he really did know and no, he didn't just think I have a couple of problems with my knees and yes, I did explain everything and yes, he really didn't care.
I do understand her heart in it and her fear for me and all that jazz. However, I felt totally humiliated, to put it mildly.
I have since told her I do not want to discuss my relationships with her ever again.
By the way, my bf at that time, while a nice enough bloke, was not a "keeper" for me. Would never have worked. We broke up and mum was not accepting of it. That's when I wound up telling her we would not be discussing this kind of thing anymore.
__________________ "Your love defines me" - Paul Colman Trio, 'Your Love' "The Gospel is not an invitation. It is a declaration of what God has already made of us in Jesus Christ" - C. Baxter Kruger. "The heart of the New Testament is the relationship between the Father and the Son in the Spirit" - J.B. Torrance.
l went to this disabled class in school and they said on grad night everyone who has disablies should finally be able to over come it after this night will make a big differnce.
That upseted me l'm not over it l'm upset you can't just get over it. That was wrong for him to say that first of all he doesnt know how people with disabilities feel. Maybe if he was disabled he wouldn't say that or am l just over reacting?
I was born with 2 thumbs on my right hand, thankfully the extra one was removed when I was about 2yrs old, but I still have a lump on the side of my hand and it was quite prominant when I was a child. When I was in primary school I told my teacher (a nun) about it and she said something like...oh you should be in a circus !!! I was about 8yrs old....I'll never forget that as long as I live.