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Those people who think they know better than you?

Ever have those people who have never gone through what you have, try to tell you exactly what's wrong with you. Including the - you're lazy, you're imagining things, you just need to meet somebody new, you're just depressed...even the "You must have committed the sin of - {fill in the blank} , - and you need to repent."
The old "God's just testing you" line has come up and the "God has some great purpose for you to suffer."
Recently a relative who has had Fibromyalgia but not Chronic Fatigue Syndrome (I have both) decided that since she toughs out her Fibro and can work, I should be able to with both CFS (which is what put me on disability) and Fibro.
I get so fed up with "You just need Yoga," lines.
There are others who think exercise has to be the cure. I've told people "trying to exercise your way outta CFS is like trying to struggle your way out of quicksand!" They don't get it.:doh:
Does anybody ever go through this? I've put up with it for 20 years now and to say I'm tired of it is an understatement. I have told some people that if CFS was contagious "I'd bite them!":mad:...;)
So, anybody else going through this?
:confused:
 
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Two Scoops

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The bible says not to trust in the wisdom of man, but in the power of God. Sometimes people mean well, sometimes people are just ignorant and don't know what to say. When I had chronic pain, people used to say all kinds of things. But the Truth, that is what truly set you free. If someone tells you to exercise your CFS away, know that bodily exercise profits little, but godliness is profitable unto all things. A merry heart does good like medicine.

I am glad that I used to have chronic pain and other health issues. I now know that trials can be used to perfect us. Healing was a wonderful journey. I had some of Job's friends along the way. But I've met some great people on the way. Always trust in God with all your heart! Ask God for wisdom and He will give it to you.

My favorite was when people told me that God will not let us handle more than we can. I was always confused by that, because Jesus said take my yoke because my burden is light. I actually that saying up in the bible. Guess what, its not in there. The bible verse actually says God will not allow us the be tempted above measure, so the verse deals with temptation. People seem to believe more in the tradition of man over the power of God. It wad frustrating hearing things, but you always combat lies with truth.

Another thing that people used to bring up was Pauls thorn in the flesh. Like that was Gods plan for my life. Paul clearly states what the thorn was and why he had it. Once again, traditions of men. Jesus came that we may have life and that we may have it more abundantly. Satan seeks to kill, steal and destroy.
 
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muddleglum

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Ever have those people who have never gone through what you have, try to tell you exactly what's wrong with you.
You can't hide behind that excuse forever.
You just don't try!
You need to see a psychologist. (I refuse to get on permanent disability and live off the gov't.)

I had it worse from those who don't know Christ, including a doctor laughing in my face when I asked a question. I still don't know why he laughed: he refused to write down anything and he knew I was non-hearing. That last even goes for audiologists. You would think that they would write instead of forcing the patient to guess what they say.
 
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CharlesC

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I have heard those words a thousand times. Sort of gets one depressed. I mean, I had a severe stroke at age 16. Could not draw disability and after high school, had to work. I went to businesses, to put in applications, but people could see I should have been approved for disability, so no one would hire me. So I started mowing my grandmother lawn make $20 every time I mowed it. Push mowed and twisted my ankle with every step I took. I went to work with my brother, laying carpet for an apartment building. But the manager told my brother," are you crazy..if he has another stroke we could be sued.. if I see him here again we will fire you". That really made me feel life was so unfair. No place wanted to hire me due to the stroke because of the severity. So one time Social Security Adm said, You can work. So I went to the National Guard Armory and said, I want to join. The commander said no. That I should be drawing disability.And this was around 4 years after the stroke occurred to show its severity. I would cry at night because I had nothing and no way of working. Went to work with my Dad, laying carpet. When it came time to lift it, I would drop it. It was to heavy. My ankle kept twisting. My Dad got upset at me and sent me home. It took a full functioning body and I was working on 60%. Too me, the world could be very cold. I tried cleaning carpets, but was no good at that neither. I would keep dropping the wand and kept getting the carpet to wet. About the 5th year, I went to Moberly Area Community College and got an AA degree. While there I drew disability. After college, I still could not find a job. My Dad said, I was just lazy. So I went to Advent, a place for the handicapped to learn work skills. I found a job as a janitor. Worked it around 3 years and then to the University of Missouri. Went home proud to be a student, but my parents were not so happy. Saying, you are to dumb, you will never amount to a hill of beans, that I think money grows on trees. Well, they were never paying for any of my college. Government grants and Voc Rehab were paying my way. So one time I went home for summer and had found a job at a nursing home. Felt good. Well my Dad started a business and said, What if I need you to watch my business? Huffy and puffy. So I went to my step uncles house and decided to quit my job to help my Dad. So I went home and in one day, my Dad hired someone else. So he says, you will work laying carpets with your brother. So I went to work, but ankle kept twisting and I started limping causing the pad to rip up. So I went home to my Dad's. He was walking out on the front porch and told me, Take your things and go. So I went to my uncles house. He was lazy. They sent me to the food bank to get food. I could not get food stamps. But eventually the food ran out. I stayed 1 month and started loose weight. So I went home. My Dad said, you can stay if you go to a mental institution. So the next day, I went with my Dad to a mental institution. My Dad starts saying all types of bad things about me and my college and says, I want him locked up. So a man walks in and says he knows what is wrong with me. A clear sign of mentally abused. So I stayed at the mental institution for one month. The diagnosed me with affective psychosis and major depression. But after returning home, my Dad tells me he hated me. That after I go to school to not come home again. Too me, that is disowning one. So I quit school and moved into a HUD site for disabled people. Stayed there about 10 years, just to be a big kid. The loneliness of friends deserting me after the stroke, all the tears I had been through, I gave up my dreams and becoming a child. Learned to live life instead of life living me. Today, I am a true Christian, am married, and tonight found out we might be fostering a baby. So everything looks up eventually. I already adopted 3 boys but they are grown now. But a baby would be wonderful. Everything looks up eventually.
 
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OldFashionGal

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I have Hydrocephalus aka water on the brain and a DOCTOR told me I needed to exercise to get rid of the headaches!?!?!!?! :scratch::swoon:

Well I have scoliosis as well so it hurts to exercise for a long period of time. :doh:Just frustrating. :sigh:

Wow, Army Wife that was sure not very caring of your doctor :( When my husband was in the hospital being sent home when he could not even stand up the doctor releasing him told me he had anxiety. I am like anxiety?? You gotta be kidding. If anything my husband takes things too good LOL I took my husband back to the ER the SAME DAY and talked to the ER doctor. He said he thought my husband was ok but would do a CAT just to make sure and turned out he had a LARGE brain tumor so big they had to put plates in his head. They would not even let me drive him to a hospital 10 minutes away that does brain surgery as they took him by ambulance. That doctor can be thankful I didn't listen to her!! I sure hope you get better :)
 
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OldFashionGal

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I have heard those words a thousand times. Sort of gets one depressed. I mean, I had a severe stroke at age 16. Could not draw disability and after high school, had to work. I went to businesses, to put in applications, but people could see I should have been approved for disability, so no one would hire me. So I started mowing my grandmother lawn make $20 every time I mowed it. Push mowed and twisted my ankle with every step I took. I went to work with my brother, laying carpet for an apartment building. But the manager told my brother," are you crazy..if he has another stroke we could be sued.. if I see him here again we will fire you". That really made me feel life was so unfair. No place wanted to hire me due to the stroke because of the severity. So one time Social Security Adm said, You can work. So I went to the National Guard Armory and said, I want to join. The commander said no. That I should be drawing disability.And this was around 4 years after the stroke occurred to show its severity. I would cry at night because I had nothing and no way of working. Went to work with my Dad, laying carpet. When it came time to lift it, I would drop it. It was to heavy. My ankle kept twisting. My Dad got upset at me and sent me home. It took a full functioning body and I was working on 60%. Too me, the world could be very cold. I tried cleaning carpets, but was no good at that neither. I would keep dropping the wand and kept getting the carpet to wet. About the 5th year, I went to Moberly Area Community College and got an AA degree. While there I drew disability. After college, I still could not find a job. My Dad said, I was just lazy. So I went to Advent, a place for the handicapped to learn work skills. I found a job as a janitor. Worked it around 3 years and then to the University of Missouri. Went home proud to be a student, but my parents were not so happy. Saying, you are to dumb, you will never amount to a hill of beans, that I think money grows on trees. Well, they were never paying for any of my college. Government grants and Voc Rehab were paying my way. So one time I went home for summer and had found a job at a nursing home. Felt good. Well my Dad started a business and said, What if I need you to watch my business? Huffy and puffy. So I went to my step uncles house and decided to quit my job to help my Dad. So I went home and in one day, my Dad hired someone else. So he says, you will work laying carpets with your brother. So I went to work, but ankle kept twisting and I started limping causing the pad to rip up. So I went home to my Dad's. He was walking out on the front porch and told me, Take your things and go. So I went to my uncles house. He was lazy. They sent me to the food bank to get food. I could not get food stamps. But eventually the food ran out. I stayed 1 month and started loose weight. So I went home. My Dad said, you can stay if you go to a mental institution. So the next day, I went with my Dad to a mental institution. My Dad starts saying all types of bad things about me and my college and says, I want him locked up. So a man walks in and says he knows what is wrong with me. A clear sign of mentally abused. So I stayed at the mental institution for one month. The diagnosed me with affective psychosis and major depression. But after returning home, my Dad tells me he hated me. That after I go to school to not come home again. Too me, that is disowning one. So I quit school and moved into a HUD site for disabled people. Stayed there about 10 years, just to be a big kid. The loneliness of friends deserting me after the stroke, all the tears I had been through, I gave up my dreams and becoming a child. Learned to live life instead of life living me. Today, I am a true Christian, am married, and tonight found out we might be fostering a baby. So everything looks up eventually. I already adopted 3 boys but they are grown now. But a baby would be wonderful. Everything looks up eventually.

So sorry to read all you went through :( but glad things got better for you!
 
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